In this weeks episode of Talk FX, we are joined with special guest Erika Vasquez who shares with us her FX diagnosis journeys for her son and daughter! She also shares her perspective on the upcoming school year and the important decision on virtual education vs. in-person education for children with Fragile X!

In this weeks episode, we welcome back the FRAXA Research Foundation! We talk with Elle Skala, creator of The Step Up for Fragile X Virtual Event for Fragile X Awareness Day! She discusses the purpose of the event, how YOU can get involved, and much more!

In this weeks episode of Talk FX, we’re joined with Wendy and Debbie, Both Mom’s of boys with Fragile X Syndrome. They get real about the journey of potty training children with FX! The successful and non-successful approaches, and recognizing that every child’s journey is different! Wendy and Debbie also share their children’s life skills strengths and their capabilities of being independent! July is Fragile X Awareness Month!

In this weeks episode of Talk Fragile X, Mom’s of Children with FX, Kelsie and Debbie share the importance of Fragile X Awareness month, and ways to create more awareness of FX even during these current times of social distancing! We also talk about how the NFXF International FX Conference has been impactful so far, and the importance of utilizing these virtual series as resources - whether you’re a newly diagnosed FX family, self-advocate, sibling of a child with FX, or a full-mutation carrier!

In this weeks episode of Talk Fragile X, Priscilla shares her journey of finding out her Fragile X Carrier status, and how her and her husband decided to use IVF (In Vitro Fertilization) in their journey of having children. This is a procedure that is used to aid in fertility or prevent genetic complications. As well as to assist in the conception of a child.

In this weeks episode of Talk FX, we have the pleasure of talking with Samantha and Paul, parents of their 18 month old son who was diagnosed with Fragile X Syndrome just 2 months ago! We are excited for you to be encouraged by their perspectives on this new journey of theirs, and the way they advocate for their son on a daily basis. This episode can be especially encouraging for other families who have received a new diagnosis.

We had the privilege of getting to know all about AMP (Autism Movement Project) Sports & Fitness! They’re an organization that works with kids and adults with developmental delays (such as Autism, Fragile X Syndrome, Down Syndrome, etc.) We talk about their mission, success stories, envisions for AMP, the importance of inclusion for special needs individuals, and much more!

In this weeks episode, we talk with David Bjork, Director of Community Relations at FRAXA Research Foundation. He shares on the background of FRAXA, where they were at when they started, and where they are today with FX clinical trials and their efforts to find a cure for Fragile X Syndrome!

When you find out the news that you’re a Fragile X Carrier, it is often a difficult time, especially for those that may not have even heard of FX before! Well you’re not alone! In this weeks episode of Talk FX, Nicole shares her journey of how Fragile X has affected her life, and how she has used her story to create more advocacy and awareness of FX in her community!

When families receive the diagnosis that their child has Fragile X Syndrome, you often hear “Fragile What??” In this episode, Michelle and Kaitlyn, both Mom’s of Fragile X Children, share their inspiring FX diagnosis stories!