Routine Success is a mobile application supporting the independence of neurodivergent young adults.

Build routines to prompt users as needed. Schedule these routines to notify the user at the appropriate times. Schedule routines to repeat on a daily, weekly, or monthly basis as needed.

Connect to learn more:

Website: https://sites.google.com/view/routine-success/home

Email: [email protected]

College Ready: https://www.college-ready.com/

For additional resources and more information about Visible you can find us here:

Web: ⁠⁠⁠⁠⁠https://visiblenationaltrust.com/⁠⁠⁠⁠⁠

Podcast (ABC's of Disability Planning) - ⁠⁠⁠⁠⁠https://anchor.fm/abcs-disability-planning⁠⁠⁠⁠⁠

Waypoints - ⁠⁠⁠⁠⁠https://waypoints.substack.com/

ECR Planning offers professional support to families needing to access long-term care Medicaid benefits in their loved one’s state.

Meet with one of ECR's expert Benefits Advisors to determine eligibility and decide if it makes sense for your family to hire a Medicaid planner. If working with them is the right fit, you will move on to the application process. During this call, you may decide that a Benefits Consultation is more appropriate for your situation.

Step 2

You fill out a comprehensive intake questionnaire and discuss the answers with your Medicaid Specialist. You will have time to ask questions and clarify anything that doesn’t make sense. ECR's team then pulls together the necessary financial information to submit your completed application.

ECR's team of experts and Certified Medicaid Planners™ are with you the entire time. If there is a need for other documentation as the state reviews your loved one’s application, they help you take care of that. They work with tenacity and compassion to advocate for your family until benefits are in place.

Connect to learn more:

Websites:

eldercareresourceplanning.org

medicaidplanningassistance.org

Phone: 415-854-8653

Kaiser Family Foundation (KFF): https://www.kff.org/

For additional resources and more information about Visible you can find us here:

Web: ⁠⁠⁠⁠https://visiblenationaltrust.com/⁠⁠⁠⁠

Podcast (ABC's of Disability Planning) - ⁠⁠⁠⁠https://anchor.fm/abcs-disability-planning⁠⁠⁠⁠

Waypoints - ⁠⁠⁠⁠https://waypoints.substack.com/

The Undiagnosed Diseases Network (UDN) is a research study funded by the National Institutes of Health. Its purpose is to bring together clinical and research experts from across the United States to solve the most challenging medical mysteries using advanced technologies.

Through this study, we hope to both help individual patients and families living with the burden of undiagnosed diseases and contribute to the understanding of how the human body works.

If you decide to apply for this study, you will need to answer a series of brief questions through our application portal, the UDN Gateway (link below), related to the following:

A study recommendation letter from a health care provider (for example, a specialist, primary care physician, nurse practitioner, or genetic counselor) is also necessary to submit the online application to the UDN. The letter must be written in English, signed, and on letterhead. A relative cannot write a letter. The study recommendation letter must include:

We have prepared a sheet of information for you to share with your provider, as well as a set of example study recommendation letters.

Please provide us with a 1-page patient narrative telling us your story from your perspective. We will have received the letter from your referring provider, but the narrative may help the UDN understand your medical history directly from you. Sometimes photos help the UDN team better understand the symptoms the applicant is experiencing. If you would like to provide a narrative and/or photo, please upload it to the application.

Phone: 1-844-746-4836

email: UDNConnect.org

For additional resources and more information about Visible you can find us here:

Web: ⁠⁠⁠https://visiblenationaltrust.com/⁠⁠⁠

Podcast (ABC's of Disability Planning) - ⁠⁠⁠https://anchor.fm/abcs-disability-planning⁠⁠⁠

Waypoints - ⁠⁠⁠https://waypoints.substack.com/

NavigateMD provides a one-of-a-kind service to those with disabilities, their families, and others. Their platform connects these individuals with medical providers, businesses, non-profit organizations, and other resources that meet their needs. They understand that finding the help you need can often feel like a full-time job, resulting in high-stress levels and feeling overwhelmed. NavigateMD strives to make that a problem of the past with its easy-to-use, convenient, and time-efficient platform.

Connect to learn more:

Website: https://navigatemd.com/

Phone: 1-888-898-0230

Email: [email protected]

For additional resources and more information about Visible you can find us here:

Web: ⁠⁠⁠https://visiblenationaltrust.com/⁠⁠⁠

Podcast (ABC's of Disability Planning) - ⁠⁠⁠https://anchor.fm/abcs-disability-planning⁠⁠⁠

Waypoints - ⁠⁠⁠https://waypoints.substack.com/

Partners4Housing believes housing is the foundation of a good life. They are creating shared living solutions for adults with disabilities across the United States. They help you navigate the complex service agencies and secure housing for your loved one.

Their Products:

Resources mentioned in the episode:

Affordable Housing Online

Family Opportunity Mortgage Loan Program

Connect to learn more:

Website: https://partners4housing.com/

Email: [email protected]

Phone: 971-599-1010

Facebook: @Partners4Housing

IG: @partners4housing

For additional resources and more information about Visible you can find us here:

Web: ⁠⁠https://visiblenationaltrust.com/⁠⁠

Podcast (ABC's of Disability Planning) - ⁠⁠https://anchor.fm/abcs-disability-planning⁠⁠

Waypoints - ⁠⁠https://waypoints.substack.com/

SimplyHome’s remote direct support professional (rDSP) solution helps you give more people access to greater independence.

Whether you are looking for ways to expand capacity or better support your existing care teams, SimplyHome's new remote DSP solution provides real-time connectivity to real people. It’s a simple way to confidently accomplish more while providing exceptional care.

Both providers and end-users rate remote support services as providing more privacy, security, and independence than traditional services.

Connect to learn more:

Website: https://www.simply-home.com/

Phone: (877) 684-3581

Facebook: @SimplyHome

X: @simply_home

For additional resources and more information about Visible you can find us here:

Web: ⁠https://visiblenationaltrust.com/⁠

Podcast (ABC's of Disability Planning) - ⁠https://anchor.fm/abcs-disability-planning⁠

Waypoints - ⁠https://waypoints.substack.com/

https://reallifeaccess.com/courses/

Facebook: @RealLifeAccess

LinkedIn: https://www.linkedin.com/company/real-life-access/

For additional resources and more information about Visible you can find us here:

Web: ⁠⁠⁠https://visiblenationaltrust.com/⁠⁠⁠

Podcast (ABC's of Disability Planning) - ⁠⁠⁠https://anchor.fm/abcs-disability-planning⁠⁠⁠

Waypoints - ⁠⁠⁠https://waypoints.substack.com/

RightHear provides talking signage so everyone can interpret and understand their surroundings in real-time.

The environment comes to life through audio descriptions delivered directly to a smartphone or tablet.
Helping everyone, everywhere explore, navigate, and experience the world safely and independently.

RightHear’s solution works both indoors and outdoors. 

It supports any industry, sector, or size of venue, from a Safari Park to a university campus to a hotel to a local eatery, and everything in between. 

It’s easy for businesses to install, easy to program, and even easier to use.

Website: https://www.right-hear.com/

Phone: 917-732-2811

IG: @righthearapp

Discord Community: https://discord.com/invite/d6wwRM4vNJ

For additional resources and more information about Visible you can find us here:

Web: ⁠⁠https://visiblenationaltrust.com/⁠⁠

Podcast (ABC's of Disability Planning) - ⁠⁠https://anchor.fm/abcs-disability-planning⁠⁠

Waypoints - ⁠⁠https://waypoints.substack.com/

The Experiential Life App brings together parents and caregivers raising neurodivergent kids through community, webinars, parent support, and downloadable resources, all contained in a convenient app on your favorite device. 

Learn from the experts in real-time, or binge-watch the webinars at a time most convenient for you.

Need more information that you can reference later? Download resources shared by our experts, or access our library of scripts to help you communicate with your growing list of providers to call.

Connect with other parents and caregivers raising neurodivergent kids. Find your community of people who get where you are, support where you are going, celebrate the wins and help you through the hard.

Connect to learn more:

IG: @experiential.homeschool.life

Website: https://experiential-life.com/

Link to the episode about the State Developmental Disability Councils: https://spotifyanchor-web.app.link/e/qRWJyZ5QINb

Lifeline Support Program: https://www.lifelinesupport.org/

For additional resources and more information about Visible you can find us here:

Web: ⁠⁠⁠https://visiblenationaltrust.com/⁠⁠⁠

Podcast (ABC's of Disability Planning) - ⁠⁠⁠https://anchor.fm/abcs-disability-planning⁠⁠⁠

Waypoints - ⁠⁠⁠https://waypoints.substack.com/

What is Dravet Syndrome?

Enter the Dravet Syndrome Foundation (DSF).

DSF is a nonprofit organization that acts as a convener of the Dravet syndrome community.  Since their founding in 2009, they have engaged and educated all of their community stakeholders – patient families, clinicians, researchers, industry partners, and others – to envision and fight for better treatments, and one day a cure for Dravet syndrome.

They believe that efforts to improve the quality of life for those affected by Dravet syndrome must include the patient's voice and experience to help guide outcomes. DSF is proud to be the largest non-governmental funder of Dravet syndrome research, worldwide.

Connect to learn more:

Website: https://dravetfoundation.org/

X: @curedravet

IG: @dravetsyndromefoundation

Email: [email protected]

Phone: (203) 392-1955

For more information about Eric Jorgensen you can find him here:

Web: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://visiblenationaltrust.com/⁠⁠⁠⁠

Waypoints: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://waypoints.substack.com/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/eric-jorgensen-visible-national-trust/⁠⁠⁠