About IBD

Inflammatory bowel disease (IBD) affects people from all ethnic and cultural groups. In this limited series, we'll explore how inequalities in the healthcare system affect people from diverse backgrounds.

What is it like to not have anyone on your medical team that looks like you or understands your concerns? The diversity of the human experience is often not reflected in the healthcare system. In fact, there's little research into some areas of IBD, including the experience of LGBTQIA+ patients.

Dr Cedric Pulliam, Senior Public Health Advisor at the Centers for Disease Control and Prevention, had a long journey to a diagnosis of Crohn's disease, punctuated by less than helpful advice from specialists. His experiences as a public health advocate, a patient, and a gay male have brought him to be an open advocate for those in the LGBTQ community. Dr Pulliam has advice on how the IBD community can learn from other disease states in how to truly meet the needs of patients.

Find Dr Pulliam on LinkedIn and Twitter.

Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram.

Credits:

Healthcare Disparities in IBD is written, produced, and directed by Amber Tresca.

Theme music, mix, and sound design is by Cooney Studio.

Inflammatory bowel disease (IBD) affects people from all ethnic and cultural groups. In this limited series, we'll explore how inequalities in the healthcare system affect people from diverse backgrounds.

Nutrition is a major component of managing digestive disease. Yet people living with Crohn's disease, ulcerative colitis, or indeterminate colitis may not be offered access to help managing their diet.

Dr Selvi Vasudevan, founder of Dr Selvi's Keys to Ease Crohn's, discusses her Crohn's disease journey and how it led her to pursue the role diet and nutrition play in wellness as well as the cultural influence on our food choices. A child of immigrants from southern India to the United States, she is discovering how best to integrate family life, her culture, and her needs as a person with IBD.

Find Dr Selvi on Facebook, Instagram, Twitter, and on DrSelvi.com.

Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram.

Credits:

Healthcare Disparities in IBD is written, produced, and directed by Amber Tresca.

Theme music, mix, and sound design is by Cooney Studio.

Inflammatory bowel disease (IBD) affects people from all ethnic and cultural groups. In this limited series, we'll explore how inequalities in the healthcare system affect people from diverse backgrounds.

Why do women of color encounter so many barriers when accessing care? Where are the spaces for black and brown patients to share their knowledge, experiences, and support around Crohn's disease, ulcerative colitis, and other immune-mediated and autoimmune conditions?

Melodie Narain-Blackwell, founder of Color of Crohn's and Chronic Illness, discusses her Crohn's disease journey and how it led her to become a voice for the IBD community. She tells us why outreach to minority groups sometimes fails, how she approaches patient education, her ideas on giving patients improved access to care, and how motherhood affects her disease journey.

Find Color of Crohn's and Chronic Illness at COCCI.org, Facebook, Twitter, and Instagram.

Find Melodie Narain-Blackwell at Facebook, Twitter, and Instagram.

Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram.

Credits:

Healthcare Disparities in IBD is written, produced, and directed by Amber Tresca.

Theme music, mix, and sound design is by Cooney Studio.

In this limited series, we'll explore how inequalities in the healthcare system affect people from diverse backgrounds who live with IBD.

Why is there a lack of people of diverse backgrounds who live with Crohn's disease or ulcerative colitis represented in clinical trials? Why are there so many barriers for people of color in accessing IBD care?

Dr Aline Charabaty, Director of the IBD Center at Johns Hopkins Sibley Memorial Hospital and founder of Monday Night IBD on Twitter discusses the scope of inequalities in research and access to care in IBD. What's more: she offers solutions that can be used to address disparities.

Find Aline Charabaty, MD on Facebook, Twitter, Instagram, and at Monday Night IBD.

Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram.

Credits:

Healthcare Disparities in IBD is written, produced, and directed by Amber Tresca.

Theme music, mix, and sound design is by Cooney Studio.

Pregnancy while living with inflammatory bowel disease (IBD) feels scary. But thanks to the groundbreaking Pregnancy Inflammatory bowel disease And Neonatal Outcomes (PIANO) study, there is now so much more data and information to help moms and their doctors make decisions. Dr Mahadevan began the PIANO registry in 2007, which followed women and their babies through pregnancy and after. What was learned from this registry was how IBD medications, and especially biologics, affected pregnancy, birth, and infants. Learn how Dr Mahadevan has grown PIANO over the years, the most important findings so far, and how pregnant women can join the study and help the next generation of moms with IBD and their babies.

Find the PIANO Study at:

• Twitter: @PIANOIBD
• Web: PIANOStudy.org

Find Uma Mahadevan, MD at:

• Twitter: @UmaMahadevanIBD
• LinkedIn: @uma-mahadevan-ibd
• Web: University of California San Francisco

Find Amber J Tresca at:

• AboutIBD.com: About IBD
• Verywell: Verywell Health
• Facebook: @aboutIBD
• Twitter: @aboutIBD
• Pinterest: @aboutibd
• Instagram: @about_IBD

Find Mac Cooney (mix, sound design, and theme music) at:

• Facebook: @maccooneycomposer
• Instagram: @maccooneycomposer
• Web: Cooney Studio
• LinkedIn: @macooney
• Theme music, IBD Dance Party, is from ©Cooney Studio.

Episode transcript and more information at: https://bit.ly/AIBD136

These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

Desiree Schmidt, a 500-hour yoga instructor and owner of a personal training business, shares her passion for helping people with chronic illnesses, which is inspired by her own experience with Crohn's disease. She discusses how yoga has been key in her journey, both physically and mentally.

Amber and Desiree discuss the benefits of different yoga forms and how to choose the right practice based on whether one is in a flare-up or in remission. Desiree points out how it is important to modify poses when living with a health condition, including IBD, to ensure comfort and safety during classes. She offers insights into providing options for different needs, making the yoga accessible for everyone.

Gain valuable insights into the world of yoga, its benefits for chronic illness, and how to embark on your own yoga practice with confidence and guidance.

Find Desiree (Schmidt) VanDaalwyk, NASM-CPT, FNS at:

• Facebook: @desiree.schmidt.566
• LinkedIn: @Desiree VanDaalwyk
• Instagram: @desireevandaalwyk
• Radect Health: Desiree Schmidt

Find Dutchmen Kettlebells at:

• Facebook: @Dutchmenkettlebells
• Instagram: @dutchmenkettlebells
• Web: https://www.dutchmenkettlebells.com/

Find Amber J Tresca at:

• AboutIBD.com: About IBD
• Verywell: Verywell Health
• Facebook: @aboutIBD
• Twitter: @aboutIBD
• Pinterest: @aboutibd
• Instagram: @about_IBD

Find Mac Cooney (mix, sound design, and theme music) at:

• Facebook: @maccooneycomposer
• Instagram: @maccooneycomposer
• Web: Cooney Studio
• Theme music, IBD Dance Party, is from ©Cooney Studio.

Episode transcript and more information at: https://bit.ly/AIBD135

These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

Brad Watson-Davelaar, founder of Gaming for Guts, shares his experiences in living with Crohn's disease and how he found support and community through his IBD journey. He talks about his ostomy surgery and how for him, it is a beginning rather than an end.

Brad describes the upcoming fundraising event sponsored by Gaming for Guts to celebrate World IBD Day on May 19th. It will feature Canadian-themed activities in support of Crohn's and Colitis Canada. The IBD and gaming communities are encouraged to get involved with the fun. Brad also shares his thoughts on how the gaming community helps people with IBD connect to form meaningful relationships.

Find Brad Watson-Davelaar at:

• Facebook: @bwdphoto
• Facebook: @crohnsawarenessproject
• Twitter: @bwdphotocanada
• Instagram: @bwdphoto

Find Gaming4Guts at:

• Facebook: @gaming4guts
• Twitter: @gaming4guts
• Instagram: @gaming4guts
• Web: www.gaming4guts.com
• Discord: https://discord.gg/BpXcmz7
• About IBD Episode 83: The Streamers from Gaming4Guts

Find Amber J Tresca at:

• AboutIBD.com: About IBD
• Verywell: Verywell Health
• Facebook: @aboutIBD
• Twitter: @aboutIBD
• Pinterest: @aboutibd
• Instagram: @about_IBD

Find Mac Cooney (mix, sound design, and theme music) at:

• Facebook: @maccooneycomposer
• Instagram: @maccooneycomposer
• Web: Cooney Studio
• Theme music, IBD Dance Party, is from ©Cooney Studio.

Episode transcript and more information at: https://bit.ly/AIBD134

These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

When is the last time you pooped your pants? Amber speaks with April Michelle Harris, who lives with ulcerative colitis, a type of inflammatory bowel disease (IBD), for over 13 years. April shares her journey, from her initial diagnosis to her struggles with depression and anxiety, and how she has managed to build a fulfilling life despite the many challenges that come with living with a chronic illness.

We also dive into April's new book "I Pooped My Pants", where she shares her story and those of 20 other IBD warriors who have bravely shared their experiences with living with the disease. April's book provides a refreshing and honest perspective on what it's like to live with IBD, and it's a must-read for anyone who wants to learn more about the disease and how it affects people on a daily basis.

Tune in to hear April's inspiring story and learn more about living with a chronic illness, and how you can build a fulfilling life despite the challenges that may come your way.

Find April Michelle Harris at:

• Web: "I Pooped My Pants"
• Web: VirtuallyAprilMichelle
• Instagram: @VirtuallyAprilMichelle
• Instagram: @IPoopedMyPantsBook
• Facebook: Virtually April Michelle
• Book: "I Pooped My Pants" at Amazon

Find Amber J Tresca at:

• AboutIBD.com: About IBD
• Verywell: Verywell Health
• Facebook: @aboutIBD
• Twitter: @aboutIBD
• Pinterest: @aboutibd
• Instagram: @about_IBD

Find Mac Cooney (mix, sound design, and theme music) at:

• Facebook: @maccooneycomposer
• Instagram: @maccooneycomposer
• Web: Cooney Studio
• Theme music, IBD Dance Party, is from ©Cooney Studio.

Episode transcript and more information at: https://bit.ly/AIBD133

These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

Going to a movie can be a frustrating experience for anyone with a digestive or urinary condition. Not only are the bathrooms sometimes far from the theaters, it's difficult to know when to duck out if nature calls. Enter RunPee. The RunPee app is designed to help moviegoers know when the best time is to use the restroom (a peetime) during a movie without missing any important scenes. The creator, Dan Gardner, discusses how he and his team choose the best times to use the restroom while still ensuring that users do not miss any critical moments in the film. Additionally, Gardner talks about the other features of the app, such as movie ratings and reviews, and the importance of understanding the needs of different demographic groups.

Find RunPee at:

• Web: RunPee.com
• Twitter: @RunPee
• LinkedIn: @runpee
• RunPee Android: Android App Store
• RunPee iPhone: iPhone App Store

Find Amber J Tresca at:

• AboutIBD.com: About IBD
• Verywell: Verywell Health
• Facebook: @aboutIBD
• Twitter: @aboutIBD
• Pinterest: @aboutibd
• Instagram: @about_IBD

Find Mac Cooney (mix, sound design, and theme music) at:

• Facebook: @maccooneycomposer
• Instagram: @maccooneycomposer
• Web: Cooney Studio
• Theme music, IBD Dance Party, is from ©Cooney Studio.

Episode transcript and more information at: https://bit.ly/AIBD131

These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

What happens when your professional life and your IBD overlap? Sari Grossman is a research scientist, Crohn's disease patient, and advocate for patients with chronic illnesses. She shares her experience with Crohn's disease, including her family history of IBD, diagnosis at a young age, her unusual symptoms, and the impact it had on her life. She speaks candidly about the physical and emotional challenges of living with a chronic illness, and how she has learned to cope with the ups and downs of her condition.

Find Sari Grossman at:

• Twitter: @saribari99
• Instagram: @saribari99
• LinkedIn: @Sari Grossman

Find Amber J Tresca at:

• AboutIBD.com: About IBD
• Verywell: Verywell Health
• Facebook: @aboutIBD
• Twitter: @aboutIBD
• Pinterest: @aboutibd
• Instagram: @about_IBD

Find Mac Cooney (mix, sound design, and theme music) at:

• Facebook: @maccooneycomposer
• Instagram: @maccooneycomposer
• Web: Cooney Studio
• Theme music, IBD Dance Party, is from ©Cooney Studio.

Episode transcript and more information at: https://bit.ly/AIBD131

These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.