My Spoonie Sisters

Adapting to Life's Challenges with Chronic Illness


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Imagine waking up to find your body in a revolt against the change in weather. Sounds crazy, right? Yet, it's a reality that we've grappled with, alongside life's unexpected roller-coaster rides and the influence of modern fashion trends. This episode is an honest, heartfelt conversation about dealing with chronic illnesses, adapting to medication, finding the right doctor, and even coping with the stress that positive changes can bring. 

Buckle in as we share some laugh-out-loud moments discussing the world of hats and the pressure to be stylish even when our bodies are in a flare. We've got some invaluable insights to share about the power of self-care, rest, and the underrated role of sleep in managing chronic illnesses. Most importantly, we address how to turn life's challenges into opportunities and find support during testing times. So sit back, relax and tune in for an episode filled with candid advice, laughter, and shared experiences.

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Are you living with a chronic illness and want to make your voice heard? Rare Patient Voice connects patients and caregivers with research opportunities—so you can share your experiences and get paid for your time! Your insights help drive real change in healthcare.

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My Spoonie SistersBy Jen Weaver

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