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Growing up in the shadow of Cape Kennedy, Adin Burroughs had designs on becoming an astronaut. But When Adin’s body started rejecting any food he ate with cramps, fever, vomiting, diarrhea - he of course went to his doctor. In Adin’s family, a lot of people have problems with their gall bladder, and Adin told this to his doctor. The doctor ran some tests and declared Adin’s gall bladder as well functioning.
But for the next few years Adin was not able to consume solid food and he lived on soup - all the while seeing numerous specialists in an effort to determine why his body was rejecting the foods he ate.
During the worst periods, Adin would have 27 hours of cyclical vomiting in which he wished for the sweet release of death. As if this wasn’t bad enough, Adin also has the neurological disease of MEcfs and it keeps him bedridden half the time.
In this interview, Adin and I also talk about the relationship between COVID and MEcfs, and how the pandemic may be the best thing to ever happen to MEcfs research funding, care and support.
Be a podcast patron
Support Medical Error Interviews on Patreon by becoming a Patron for $2 / month for audio versions.
Premium Patrons get access to video versions of podcasts for $5 / month.
Be my Guest
I am always looking for guests to share their medical error experiences so we help bring awareness and make patients safer.
If you are a survivor, a victim’s surviving family member, a health care worker, advocate, researcher or policy maker and you would like to share your experiences, please send me an email with a brief description: [email protected]
Need a Counsellor?
Like me, many of my clients at Remedies Counseling have experienced the often devastating effects of medical error.
If you need a counsellor for your experience with medical error, or living with a chronic illness(es), I offer online video counseling appointments.
**For my health and life balance, I limit my number of counseling clients.**
Email me to learn more or book an appointment: [email protected]
Scott Simpson:
Counsellor + Patient Advocate + (former) Triathlete
I am a counsellor, patient advocate, and - before I became sick and disabled - a passionate triathlete. Work hard. Train hard. Rest hard.
I have been living with HIV since 1998. I was the first person living with HIV to compete at the triathlon world championships.
Thanks to research and access to medications, HIV is not a problem in my life.
I have been living with ME (myalgic encephalomyelitis) since 2012, and thanks in part to medical error, it is a big problem in my life.
Counseling / Research
I first became aware of the ubiquitousness of medical error during a decade of community based research working with the HIV Prevention Lab at Ryerson University, where I co-authored two research papers on a counseling intervention for people living with HIV, here and here.
Patient participants would often report varying degrees of medical neglect, error and harms as part of their counseling sessions.
Patient Advocacy
I am co-founder of the ME patient advocacy non-profit Millions Missing Canada, and on the Executive Committee of the Interdisciplinary Canadian Collaborative Myalgic Encephalomyelitis Research Network.
I am also a patient advisor for Health Quality Ontario’s Patient and Family Advisory Council, and member of Patients for Patient Safety Canada.
Medical Error Interviews podcast and vidcast emerged to give voice to victims, witnesses and participants in this hidden epidemic so we can create change toward a safer health care system.
My golden retriever Gladys is a constant source of love and joy. I hope to be well enough again one day to race triathlons again. Or even shovel the snow off the sidewalk.
3.6
1414 ratings
Growing up in the shadow of Cape Kennedy, Adin Burroughs had designs on becoming an astronaut. But When Adin’s body started rejecting any food he ate with cramps, fever, vomiting, diarrhea - he of course went to his doctor. In Adin’s family, a lot of people have problems with their gall bladder, and Adin told this to his doctor. The doctor ran some tests and declared Adin’s gall bladder as well functioning.
But for the next few years Adin was not able to consume solid food and he lived on soup - all the while seeing numerous specialists in an effort to determine why his body was rejecting the foods he ate.
During the worst periods, Adin would have 27 hours of cyclical vomiting in which he wished for the sweet release of death. As if this wasn’t bad enough, Adin also has the neurological disease of MEcfs and it keeps him bedridden half the time.
In this interview, Adin and I also talk about the relationship between COVID and MEcfs, and how the pandemic may be the best thing to ever happen to MEcfs research funding, care and support.
Be a podcast patron
Support Medical Error Interviews on Patreon by becoming a Patron for $2 / month for audio versions.
Premium Patrons get access to video versions of podcasts for $5 / month.
Be my Guest
I am always looking for guests to share their medical error experiences so we help bring awareness and make patients safer.
If you are a survivor, a victim’s surviving family member, a health care worker, advocate, researcher or policy maker and you would like to share your experiences, please send me an email with a brief description: [email protected]
Need a Counsellor?
Like me, many of my clients at Remedies Counseling have experienced the often devastating effects of medical error.
If you need a counsellor for your experience with medical error, or living with a chronic illness(es), I offer online video counseling appointments.
**For my health and life balance, I limit my number of counseling clients.**
Email me to learn more or book an appointment: [email protected]
Scott Simpson:
Counsellor + Patient Advocate + (former) Triathlete
I am a counsellor, patient advocate, and - before I became sick and disabled - a passionate triathlete. Work hard. Train hard. Rest hard.
I have been living with HIV since 1998. I was the first person living with HIV to compete at the triathlon world championships.
Thanks to research and access to medications, HIV is not a problem in my life.
I have been living with ME (myalgic encephalomyelitis) since 2012, and thanks in part to medical error, it is a big problem in my life.
Counseling / Research
I first became aware of the ubiquitousness of medical error during a decade of community based research working with the HIV Prevention Lab at Ryerson University, where I co-authored two research papers on a counseling intervention for people living with HIV, here and here.
Patient participants would often report varying degrees of medical neglect, error and harms as part of their counseling sessions.
Patient Advocacy
I am co-founder of the ME patient advocacy non-profit Millions Missing Canada, and on the Executive Committee of the Interdisciplinary Canadian Collaborative Myalgic Encephalomyelitis Research Network.
I am also a patient advisor for Health Quality Ontario’s Patient and Family Advisory Council, and member of Patients for Patient Safety Canada.
Medical Error Interviews podcast and vidcast emerged to give voice to victims, witnesses and participants in this hidden epidemic so we can create change toward a safer health care system.
My golden retriever Gladys is a constant source of love and joy. I hope to be well enough again one day to race triathlons again. Or even shovel the snow off the sidewalk.
483 Listeners