The Allo Podcast

Agne's Story


Listen Later

Agne’s experience of growing up in the Soviet Union has left her with a vague medical record that doesn’t explain her severe antibody titer affecting her pregnancies. Bethany and Molly experience the culture shock of Agne’s uncommon options following the loss of her first child to a failed intrauterine blood transfusion, followed by two more unthinkable losses as she searches for the information she needs to have her rainbow baby even when it feels impossible.

Show Themes: 

  • Alloimmunization and HDFN treatments in Eastern Europe 
  • Parental antigen and antibody status testing 
  • Conflicting issues between social views and medical treatment 
  • Social customs on discussing loss and pregnancy complications 
  • Experiencing the Nipocalimab trial in Belgium 

References:

  • Nipocalumab trial Phase 2 results
  • Nipocalimab trial Phase 3 enrollment update

Research for this episode provided by Bethany Weathersby and Molly Sherwood of the Allo Hope Foundation. Find more information at https://allohopefoundation.org.

The Allo Podcast is produced and edited by Media Club.

...more
View all episodesView all episodes
Download on the App Store

The Allo PodcastBy Allo Hope Foundation