ALS Podcast

Greater Philadelphia Chapter board member Danielle Mariano joins the ALS Podcast to discuss her father's battle with Lou Gehrig's Disease, the named fund set up in his memory, and her involvement in the Hershey Walk to Defeat ALS. Join Danielle, her team, and over a 1,000 others on June 6, 2015 for the Hershey Walk to Defeat ALS at www.hersheywalktodefeatals.org

Karen Delaney Shideleff, along with sisters Kathy and Chrissie and cousin Chantelle with her daughter Delaney, take part in this podcast episode recorded literally in the halls of the United States Congress. The Delaney family was once again on hand for annual ALS Advocacy Days in Washington, DC to make the case for funding ALS research. Listen to their family story, which includes over two dozen members of the extended family having had a familial form of ALS, how they get involved in research studies, and their participation in the upcoming ALS Express bike ride and the Walk to Defeat ALS.Join them at ALS Express on May 30 at www.als-express.org Join Delaney Strong and other teams at a Walk to Defeat ALS at www.gpcwalktodefeatals.org

Kelly Almasy sits down with the ALS Association Podcast to discuss her role as Clinical Research Coordinator at the ALS Treatment Center at Pennsylvania Hospital. In this podcast, she talks about the process of clinical trials, why things take time and money, how people can get involved, and what motivates everybody at the ALS Center to work towards a cure. Listen and then join Kelly at an event, as a donor, or as an advocate at www.alsphiladlephia.org

Pennsylvania State Representative Bryan Cutler joins the podcast to talk about his parents' battles with ALS, how the fight against ALS is personal to him, taking his story to Harrisburg, and how people can be effective advocates for ALS patient care and research.Get involved in advocacy at www.alsphiladelphia.org/advocate or email [email protected]

In this episode, Barry Schultz and his wife Susan talk about his many years living with ALS, the support of family and friends, and their active participation in the ALS Express Bike Ride. Join Barry and his team Barry's Bikers, or form your own team, for the 2015 bike ride at www.als-express.org To learn more about the fight against ALS, visit www.alsphiladelphia.org and follow on all social media @alsphiladelphia

For over a decade, Jim DeAngelis of the Lakewood BlueClaws baseball team and Allison Walker, Events Director at the Greater Philadelphia Chapter, have worked together on the Walk to Defeat ALS. What was once the Seaside Board...Walk to Defeat ALS is now the Lakewood Walk to Defeat ALS, which this year takes place on Saturday, May 2. In this podcast, Jim and Allison talk about organizing the walk, how it has grown, and why this event is so meaningful to both of them.Listen, share, and support the walk at www.lakewoodwalktodefeatals.org Find a walk near you at www.gpcwalktodefeatals.org or donate directly to the cause at www.alsphiladelphia.org