ALS Podcast

Often when we discuss ALS and other serious diseases, we use words like hero and brave to describe those who are most affected. However, is that how people with ALS want to be described? In this podcast, John Russo talks about his life with ALS and about the words he likes and dislikes, how people can offer to help in person, and why the best way for people to be a friend to someone with a disease is to not wait until they need a friend, but to start now, before ALS or something like it enters the pictures.

Listen, share, and get involved in supporting ALS care and research at www.alsphiladelphia.org

When the ALS Association Greater Philadelphia Chapter created a t-shirt design contest, many people offered some great ideas. John Crawford created a winning design called CURE ALS based off the Love Park statue in Philadelphia. In this Podcast, John talks about his father's battle with ALS, enjoying the Phillies World Series win together, and how he hopes his shirt design will bring more awareness to ALS and the services and research through The ALS Association. Purchase your CURE ALS shirt at https://www.booster.com/alsphilly today

Military veterans are twice as likely to be diagnosed with ALS as the general population. In this podcast, Violet Graham of the Paralyzed Veterans of America talks about her role in supporting veterans with ALS, making sure that they get the services that they need and deserve, and advocating for their families. Violet works with The ALS Association to connect veterans in Pennsylvania to multiple services to ensure that they get help quickly and efficiently. Learn more about what the PVA does for people with ALS at http://www.pva.org/site/c.ajIRK9NJLcJ2E/b.7896959/k.50AF/Find_ALS_Information_and_Resources.htm

Listen and share her podcast and get involved at www.alsphiladelphia.org

Cory Walts, the Fitness Center Director and Strength and Conditioning Coach at Haverford College, has been organizing the Joe Schwartz '83 Memorial 3k Run/Walk since 2008. In this podcast, Cory talks about his years organizing this great event, the support from students, staff, and alumni, and how this activity has grown over the years to raise thousands of dollars for the ALS cause. Listen, subscribe on iTunes, share, and join the Ninth Annual Run/Walk on Sunday, April 24 by signing up at https://www.facebook.com/JoeSchwartz3K or at http://haverfordathletics.com/genrel/joe_schwartz_information_SC

Pennsylvania State Representative Bryan Cutler returns to the ALS Podcast to talk about his personal history with ALS and the power of advocacy. He is joined by Greater Philadelphia Chapter President Ellyn Phillips as she shares her ALS story on the podcast for the first time and talks about how she and Bryan have known each other for over 20 years in their united battle to end ALS. In this episode, Bryan and Ellyn talk about how ALS has impacted their lives, the value of sharing stories with elected officials, and the growth of The ALS Association in Pennsylvania over the past decades. They also talk about why you should participate in ALS Advocacy in Harrisburg on Wednesday, May 18 or visit Washington, DC from May 8-10. Email [email protected] for more details on how to get involved.

It’s #PodcastDay and today, Tom Giordano of Pond Lehocky Stern Giordano, LLP joins the #Podcast to share his personal story about losing his uncle to ALS and how that experience has influenced his legal career, helping people with Social Security Disability, including others with ALS. Tom is also proud to be among our first sponsors for the 2016 Greater Philadelphia Walk to Defeat ALS. Listen, share, comment, and then join Tom and thousands of others at a walk near you at www.gpcwalktodefeatals.org or find more events at www.alsphiladelphia.org 

Chris Scofield and Scott Israel are both passionate about ALS and the ALS Express bike ride. In this podcast, they talk about their past experience with the ride, their new role on the bike committee, and about how their personal connections to ALS make them so dedicated to finding a cure. Listen, subscribe, share, and then join them at ALS Express on Saturday, June 18, ending at Morey's Piers, by registering at www.als-express.org

The Lake-Quinn family has been raising money for ALS research for 25 years in memory of Billy Lake and in this Podcast, Dan Quinn talks about the quarter century of work for the ALS cause, how loved Billy was by family and friends, and the work that he and Patti Lake-Quinn do for their multiple events with the Chapter. Learn more about the Billy Lake NCAA Beef and Beer on Friday, March 18 and the fall Billy Lake Basketball Marathon at www.billylake.org and get involved today

In the fall of 2015, Chris Martin, Chair of the Greater Philadelphia Walk to Defeat ALS, talked about his family story on our ALS Podcast. Now his mother, Christina Martin, talks about working with her son to fight ALS, how her husband Wayne fought ALS nearly 10 years ago and the Chapter services that helped then, the many events she enjoys, and her extensive work on the Chapter's board. Listen, subscribe on iTunes, and then get involved in the ALS cause today at www.alsphiladelphia.org