In this episode I sat down with Violet aka hi its vi. Violet is a disability advocate, filmmaker, and content creator with almost 100 thousand followers on TikTok. Violet’s advocacy focuses on the representation of people with dwarfism in the media. For context, we recorded this episode on February 3rd following remarks made by the President and the media about people with dwarfism. This is a conversation unpacking how society perceives, acts toward, and talks about people with dwarfism as well as the relationship between disability organizations and politics. Trigger warning for harmful rhetoric.

Relief For Disabled People Impacted By The Los Angeles Fires:

Richard Devylder Disaster Relief Fund: https://disabilitydisasteraccess.org/rd-relief-fund/

United Spinal Disaster Relief Grant: https://unitedspinal.org/disaster-relief-grant/

Inevitable Foundation Emergency Relief Fund: https://www.inevitable.foundation/erf  

Follow Violet: TikTok: @hi.itsvi Instagram: @hello.itsvi

Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: [email protected]

Read With Me:

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The StoryGraph

This episode was edited and produced by Ben Curwin

In this week’s episode I sat down with Adam Ayers. Adam is the current president of the Dwarf Athletic Association of America, also known as DAAA. DAAA is a non-profit organization that provides athletic opportunities for people of short stature. The organization consists of a core Board of Directors who are supported by volunteers and philanthropic contributors. We discuss how DAAA has evolved since its founding in 1985, what happens behind the scenes to make the games accessible and successful, the magic of DAAA and much, much more.

Learn more about and support the Mascots Matter Campaign using the link here: https://bit.ly/4h6XN16

Relief For Disabled People Impacted By The Los Angeles Fires:

Richard Devylder Disaster Relief Fund: https://disabilitydisasteraccess.org/rd-relief-fund/

United Spinal Disaster Relief Grant: https://unitedspinal.org/disaster-relief-grant/

Inevitable Foundation Emergency Relief Fund: https://www.inevitable.foundation/erf

Follow DAAA: Instagram: @daaanationalgames Website: http://www.daaa.org Email: [email protected]

Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: [email protected]

Read With Me:

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The StoryGraph

This episode was edited and produced by Ben Curwin

In this week’s episode I sat down with Keely Cat-Wells. Keely, a Forbes 30 Under 30 honoree and Presidential Leadership Scholar, has been a dedicated advocate for disability rights since becoming Disabled in her teens. She is the CEO of Making Space, a talent acquisition and learning platform and co-founded Making Space Media, producing content that centers Disabled voices. We discuss investing in disability, the success of creating pipelines to companies such as NBC, Indeed, and Hello Sunshine, making outer space accessible and much, much more.

This episode was recorded before the LA fires.

Learn more about and support the Mascots Matter Campaign using the link here: https://bit.ly/4h6XN16

Relief For Disabled People Impacted By The Los Angeles Fires:

Richard Devylder Disaster Relief Fund: https://disabilitydisasteraccess.org/rd-relief-fund/

United Spinal Disaster Relief Grant: https://unitedspinal.org/disaster-relief-grant/

Inevitable Foundation Emergency Relief Fund: https://www.inevitable.foundation/erf

Follow Keely: Instagram: @keely_cat_wells LinkedIn: Keely Cat-Wells Website: https://keelycatwells.com/

Follow Making Space and Making Space Media: Instagram: @_making_space__ , @_making_space_media Website: https://www.making-space.com/  

Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: [email protected]

Read With Me:

Goodreads

The StoryGraph

This episode was edited and produced by Ben Curwin

In this week’s episode I sat down with Julia Métraux. Julia is Mother Jones' disability reporter, where she covers disability, chronic illness and mental health as it relates to politics. Her experience is influenced by her lived experience with vasculitis, a TBI, ME/CFS and hearing loss. We discuss what it means to be a disability reporter, how reporting on disability has evolved over time, issues and stories she is looking out for in the upcoming administration and much, much more.

Follow Julia: Instagram: @julia.metraux BlueSky: @metrauxjulia Newsletter: Julia Métraux Website: https://juliasmetraux.journoportfolio.com

Mother Jones: Julia Métraux

Mentioned Articles:

The New Yorker

Business Insider

Relief For Disabled People Impacted By The Los Angeles Fires:

Richard Devylder Disaster Relief Fund: https://disabilitydisasteraccess.org/rd-relief-fund/

United Spinal Disaster Relief Grant: https://unitedspinal.org/disaster-relief-grant/

Inevitable Foundation Emergency Relief Fund: https://www.inevitable.foundation/erf

Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: [email protected]

Read With Me:

Goodreads

The StoryGraph

This episode was edited and produced by Ben Curwin

In this week's episode it is just me and the microphone. After my most recent doctor's appointment last week (week of 1/6/2025) I wanted to sit down and update you all on how I'm doing, how I'm feeling, my frustrations, my hopes, my growth, my pain...all of it.

Relief For Disabled People Impacted By The Los Angeles Fires:

Richard Devylder Disaster Relief Fund: https://disabilitydisasteraccess.org/rd-relief-fund/

United Spinal Disaster Relief Grant: https://unitedspinal.org/disaster-relief-grant/

Inevitable Foundation Emergency Relief Fund: https://www.inevitable.foundation/erf

Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: [email protected]

Read With Me:

Goodreads

The StoryGraph

This episode was edited and produced by Ben Curwin

In this week’s episode I sat down with Marissa Bode. Marissa is an artist and actor who made history in her feature-film debut as Nessarose in the film Wicked, being the first actor that is also a wheelchair user to play the part. We discuss her audition process, what Nessa means to her, the importance of seeing disabled characters authentically portrayed on screen and stage and much, much more. And yes, there will be spoilers.

Follow Marissa: Instagram: @marissa_edob TikTok: @marissa_edob YouTube: Marissa Bohdee  

Relief For Disabled People Impacted By The Los Angeles Fires:

Richard Devylder Disaster Relief Fund: https://disabilitydisasteraccess.org/rd-relief-fund/

United Spinal Disaster Relief Grant: https://unitedspinal.org/disaster-relief-grant/

Inevitable Foundation Emergency Relief Fund: https://www.inevitable.foundation/erf

Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: [email protected]

Read With Me:

Goodreads

The StoryGraph

This episode was edited and produced by Ben Curwin

I'm back! After a brief hiatus I am back on the microphone to catch you all up on what has happened in the too many minutes that we've been apart. I share how my recovery has been going, talking about the ups, the downs, the moments of joy, of frustration, and everything in between, before sharing what my plans are for the future of Always Looking Up as we head into the new year.

Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: [email protected]

Read With Me:

Goodreads

The StoryGraph

This episode was edited and produced by Ben Curwin

In this special episode Jillian sat down with Ariella Elm. Ariella is a content creator on TikTok who covers politics, local and global news. With Election Day just around the corner we discuss voting and accessibility and making sure that disabled voices are heard and disabled votes are counted.

Election Resources:

https://vote.gov

https://www.ada.gov

Find Out How to Vote in Your State - AAPD

Follow Ariella: TikTok: @ariellaelm Instagram: ariella.elm Threads: @ariella.elm Twitter/X: @AriellaElm YouTube: Ariella Elm Substack: https://ariellaelm.substack.com 

Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: [email protected]

Read With Me:

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The StoryGraph

This episode was edited and produced by Ben Curwin

In this special episode it is just me and the microphone as I share a little life update as I will be having surgery in the matter of days which means the podcast will be on a bit of hiatus. I then discuss what it has been like to live and exist in my body during this time, the impact it has had on my physical, mental, emotional, and social health before looking ahead to the future, talking about what I'm looking forward to and working towards.

Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: [email protected]

Read With Me:

Goodreads

The StoryGraph

This episode was edited and produced by Ben Curwin

In this week’s episode I sat down with Madison Lawson. Madison is a journalist, model and disability rights activist. Recognizing the importance of authentic representation in media from a young age, Madison strives to bring light to the disabled experience and to create a world that is more equitable for the next generation of disabled people. We discuss the relationship between history and accessibility, how perceptions perpetuate behaviors, the realities of simply existing as a disabled person and much, much more.

Follow Madi: Instagram: @wheelchairbarbie

Watch Madison Share Her Story HERE

Access the Vote: Muscular Dystrophy Association 

Follow Me: Instagram: @jill_ilana , @alwayslookingup.podcast TikTok: @jillian_ilana Website: https://www.jillianilana.com Email: [email protected]

This episode was edited and produced by Ben Curwin.