The Allo Podcast

Amber's Story


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Amber already had a difficult and rare blood disorder (TTP) but treatment for her unknown disease resulted in her developing antibodies, resulting in alloimmunization in her first pregnancy. A chance visit with a different doctor made the difference with her first child, but extraordinary measures were needed when she became pregnant with twins. Bethany and Molly are in for quite a tale of HDFN in already unusual circumstances. 

Show Themes

  • Pregnancy with secondary disease
  • Managing alloimmunization with twins
  • When to get an IUT
  • Making difficult decisions with twins 
  • After birth in the NICU and preemie challenges 

Links

  • TTP information Platelet Disorders - Thrombotic Thrombocytopenic Purpura (TTP) | NHLBI, NIH
  • TTP and Pregnancy TTP and pregnancy | Blood | American Society of Hematology (ashpublications.org)
  • MoM calculator Calculators & Tools - Allo Hope Foundation
  • IUT outcomes with hydrops Liden  https://www.sciencedirect.com/science/article/abs/pii/S0002937801313728 
  • Nystagmus Nystagmus: Definition, Causes & Treatment (clevelandclinic.org)
  • NEC Necrotizing Enterocolitis (NEC): What is it, Causes & Treatment (clevelandclinic.org)
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The Allo PodcastBy Allo Hope Foundation