In this episode, we sit down with Amy Spranger, Executive Director of the Cystic Fibrosis Foundation’s Central New York chapter. Amy shares how a random recruiter email led to a decade-long career advocating for people living with CF—and how this community is like no other. From raising millions for research to helping families navigate treatments, Amy breaks down the real impact of this rare disease and the amazing progress being made.

💜 Tune in to hear:

• What cystic fibrosis actually is (and why it’s now considered an adult disease thanks to new treatments)
• How grassroots fundraising has fueled life-changing medical breakthroughs
• Personal stories of hope, resilience, and why now is “a great time to have CF” (yes, really!)
• The role of early detection and why newborn screening is critical
• How YOU can help—whether it’s donating, volunteering, or just sharing the cause

Plus, Amy dishes on the upcoming Great Strides Walk at Delta Lake (May 17), the extreme hike in the Adirondacks, and why she thinks fall is the best season in CNY🍂

If you want to feel inspired and learn how one small but mighty local chapter is making a national impact, this episode is for you! 👟✨

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Show Markers:
(0:00) - How Amy Got Involved
(1:20) - What is CF?
(1:50) - Treatments
(2:45) - Amy's Role
(3:30) - Early Detection & Testing
(7:30) - Positive Stories & Impact
(8:50) - Passionate Community
(9:25) - Research vs. Care
(10:30) - Upcoming Events
(11:30) - Special Moments in Community
(12:45) - Areas Covered
(15:35) - One Key Message
(16:10) - What Inspires Us to Get Involved?
(18:45) - Sharing the Message
(20:15) - Biggest Struggle & CF Awareness Month
(22:00) - Rapid Fire Questions

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Amy's Links
CNY Chapter Website - https://www.cff.org/chapters/central-new-york-chapter
Facebook - https://www.facebook.com/CFFCentralNY
Linkedin - https://www.linkedin.com/in/amy-supparits-spranger-3266a44
IG - https://www.instagram.com/cff_cny

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Love Living Local Links:
Podcast Email - [email protected]
Website - https://www.lovelivinglocal315.com
YouTube - https://www.youtube.com/@LoveLivingLocal315
Facebook - https://www.facebook.com/lovelivinglocal315
Instagram - https://www.instagram.com/lovelivinglocal315
TikTok - https://www.tiktok.com/@lovelivinglocal315
Scott's FB - https://www.facebook.com/scott.grates.1
Scott's Website - https://www.scottgrates.com
Scott's Book - https://www.referralsdonerightbook.com