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Today we’re announcing a new cluster headache advocacy and research initiative: ClusterFree
Learn more about how you (and anyone) can help.
Our missionClusterFree's mission is to help cluster headache patients globally access safe, effective pain relief treatments as soon as possible through advocacy and research.
Cluster headache (also known as ‘suicide headache’) is considered the most painful condition known to mankind. We believe it is one of the largest sources of preventable extreme suffering in humans today. Every year, about 3 million adults (and an unknown number of minors) suffer from this debilitating condition.
And yet, even in the EU, only 47% of the cluster headache population had unrestricted access to standard treatments (primarily oxygen and triptans) in 2019. Despite affecting a similar number of people as multiple sclerosis, global investment into cluster headache is minuscule.
At the same time, countless patients have reported previously unattainable relief using certain psychedelics, even at low doses. For example, psilocybin, LSD and 5-MeO-DALT can effectively prevent attacks, and N,N-DMT can abort attacks within seconds and also have some preventative effects. However, these life-saving treatments are inaccessible to the vast majority of patients.
We want to tackle these problems by:
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Outline:
(00:37) Our mission
(02:32) About us
(03:22) How you (and anyone) can help
(04:59) Room for funding
(06:41) Work with us
(06:54) Further information
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First published:
Source:
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Narrated by TYPE III AUDIO.
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Images from the article:
Apple Podcasts and Spotify do not show images in the episode description. Try Pocket Casts, or another podcast app.
By EA Forum TeamToday we’re announcing a new cluster headache advocacy and research initiative: ClusterFree
Learn more about how you (and anyone) can help.
Our missionClusterFree's mission is to help cluster headache patients globally access safe, effective pain relief treatments as soon as possible through advocacy and research.
Cluster headache (also known as ‘suicide headache’) is considered the most painful condition known to mankind. We believe it is one of the largest sources of preventable extreme suffering in humans today. Every year, about 3 million adults (and an unknown number of minors) suffer from this debilitating condition.
And yet, even in the EU, only 47% of the cluster headache population had unrestricted access to standard treatments (primarily oxygen and triptans) in 2019. Despite affecting a similar number of people as multiple sclerosis, global investment into cluster headache is minuscule.
At the same time, countless patients have reported previously unattainable relief using certain psychedelics, even at low doses. For example, psilocybin, LSD and 5-MeO-DALT can effectively prevent attacks, and N,N-DMT can abort attacks within seconds and also have some preventative effects. However, these life-saving treatments are inaccessible to the vast majority of patients.
We want to tackle these problems by:
---
Outline:
(00:37) Our mission
(02:32) About us
(03:22) How you (and anyone) can help
(04:59) Room for funding
(06:41) Work with us
(06:54) Further information
---
First published:
Source:
---
Narrated by TYPE III AUDIO.
---
Images from the article:
Apple Podcasts and Spotify do not show images in the episode description. Try Pocket Casts, or another podcast app.