Appearance Matters: The Podcast!

In this episode, we are joined by some of the members of the CARE project team. CARE stands for Craniofacial Microsomia: Accelerating Research and Education and is aimed at investigating the psychosocial impact and healthcare burden of Craniofacial Microsomia.

CAR's own Dr Nicola Stock (Associate Professor), Dr Alessia Johns (Paediatric Psychologist, Children's Hospital Los Angeles), Lazer Schefer (Patient advocate), and Amy Schefer (Parent advocate) join Maia to discuss this exciting project and the importance of conducting impactful research into rare conditions.

To find out more about the CARE project or to take part in the research, click here: https://linktr.ee/careforcfm

To keep up to date with the Centre for Appearance Research, follow us on

• X: twitter.com/CAR_UWE

• Instagram: www.instagram.com/car_uwe/

• Facebook: www.facebook.com/AppearanceResearch

Episode developed and produced by Maia Thornton.

April is Autism Acceptance Month so Nadia speaks with Phaedra Longhurst - an autistic PhD student at Angelia Ruskin University.

The Links to Phaedra's Papers:

Scoping Review: https://doi.org/10.1016/j.rasd.2023.102170

Positive body image in autistic adults interview study: https://doi.org/10.1016/j.bodyim.2023.101655

BAS-2A: https://doi.org/10.1016/j.bodyim.2024.101706

To keep up to date with the Centre for Appearance Research, follow us on

• X: twitter.com/CAR_UWE

• Instagram: www.instagram.com/car_uwe/

• Facebook: www.facebook.com/AppearanceResearch

If you've enjoyed this episode, please do share it with someone else who might also and we'd love it if you could take a minute to rate and review the pod!

Thank you! x

Episode developed and produced by Nadia Craddock.

Find out more about Body Confident Sport - two new body image programmes designed to support girls in sport settings.

Nadia speaks with Dr Emily Matheson, Dr Kat Schneider, Dr Courtney Boucher, and Dr Nicole LeVoi to hear more have this 3-year project from conception to dissemination.

Body Confident Sport Website: https://www.bodyconfidentsport.com

Centre for Appearance Research Website: www.uwe.ac.uk/car

Tucker Center Website: https://www.cehd.umn.edu/tuckercenter/

Papers:

https://doi.org/10.1016/j.bodyim.2023.06.012

https://doi.org/10.1016/j.bodyim.2023.06.013

https://doi.org/10.1016/j.bodyim.2023.05.002

https://doi.org/10.1080/10413200.2023.2212023

https://doi.org/10.1080/1750984X.2023.2258379

https://doi.org/10.1123/iscj.2023-0035

Episode developed and produced by Nadia Craddock.

For our February episode, Abbi finds out all about Alopecia. Alopecia means hair loss and it can affect any or all areas of the body, and can be temporary or permanent.

We are joined by three guests. Firstly, from CAR, we have Research Fellow Dr Kerry Montgomery and Senior Lecturer – formerly Senior Research Fellow at CAR - Dr Fabio Zucchelli. We are also joined by Sue Schilling, CEO of Alopecia UK, a national charity aiming to improve the lives of those affected by alopecia.

Alopecia UK: https://www.alopecia.org.uk/

Men's Chat Short Film: https://www.alopecia.org.uk/mens-chat-a-short-film

Papers discussed:

Men’s experiences of alopecia areata: A qualitative study https://journals.sagepub.com/doi/full/10.1177/20551029221121524

Patients' experiences of primary healthcare and dermatology provision for alopecia

https://onlinelibrary.wiley.com/doi/full/10.1002/ski2.324

Establishing the financial burden of alopecia areata and its predictors

https://onlinelibrary.wiley.com/doi/full/10.1002/ski2.301

Please share, subscribe, rate and review. It really does mean a lot.

Thank you! x

Music by Sian Evans & John Landau: toplinefilm.com

Cover photo by Alopecia UK

Episode developed & produced by Abbi Mathews

This month, we are joined by Christia Huntington, a third year PhD student at the Centre for Appearance Research, who tells us all about her PhD looking into online support for people affected by burn injuries.

HealthTalk Burn Injuries module – www.Healthtalk.org/Burn-Injuries

Dans Fund for Burns - https://dansfundforburns.org/

Take part in Christia's research - https://uwe.eu.qualtrics.com/jfe/form/SV_2u81WX44Tu4Msp8

Please share, subscribe, rate and review. It really does mean a lot.

Thank you! x

Music by Sian Evans & John Landau: toplinefilm.com

Cover photo by Olena Yakobchuk from Shutterstock

Episode developed & produced by Abbi Mathews

Professor Phillippa Diedrichs chats to Nadia about some career defining moments and gives some teasers for her Appearance Matters 10 Conference Keynote address.

More about Phillippa: https://www.phillippadiedrichs.com

Link to info on the 10th Appearance Matters Conference: www.uwe.ac.uk/research/centres-a…ents/am-conference

Prof Nichola Rumsey episode link: https://soundcloud.com/appearance-matters/bonus-episode-professor-nichola-rumsey-obe

Body Confident Sport: https://www.bodyconfidentsport.com/

Kicking off our Appearance Matters 10 Conference Series, Maia speaks with A/Professor Kathleen Bogart.

About Dr Kathleen Bogart

Kathleen was born with a facial difference and is dedicated to research and advocacy intervening on visible difference stigma and ableism. Passionate about the disability community, she is the co-founder of the Disability Advocacy and Research Network (DARN) for disabled psychologists and allies. In addition to more than 55 scientific journal articles, her work has also been featured in the New York Times, Time, and the Financial Times. She has also delivered a TEDx talk, The Psychology of Ableism, and produces a Psychology Today blog focused on the psychology of ableism.

Link to info on the 10th Appearance Matters Conference: https://www.uwe.ac.uk/research/centres-and-groups/appearance/news-and-events/am-conference

Disability Advocacy and Research Network (DARN) https://darndisability.org/

Psychology Today Blog post: https://www.psychologytoday.com/us/blog/disability-is-diversity

Welcome back to the final episode in the summer shorts series! Over the summer, we’re bringing you short episodes focusing on a recently published paper by researchers at the team at the Centre for Appearance Research.

Today, Maia speaks to Kirsty Garbett (Research Fellow at CAR) about her paper titled: ‘Body Image Among Girls In Indonesia: Associations with Disordered Eating Behaviours, Life Engagement, Desire for Cosmetic Surgery and Psychosocial Influences’.

To find our more you can read the published paper here: https://www.mdpi.com/1660-4601/20/14/6394

To hear more related to this topic you can check out previous Appearance Matters the podcast episodes:

Warna Warni Waktu - Improving Girls' Body Confidence in Indonesia https://soundcloud.com/appearance-matters/76-warna-warni-waktu-improving-girls-body-confidence-in-indonesia

Racism, Colourism, and Constructing Whiteness in Indonesia

https://soundcloud.com/appearance-matters/racism-colourism-and-constructing-whiteness-in-indonesia

Summer shorts series developed by Nadia Craddock

Episode produced by Maia Thornton

Photo: Jon Lach via Unsplash

Welcome back to the summer shorts series! Over the summer, we’re bringing you short episodes focusing on a recently published paper by researchers at the team at the Centre for Appearance Research.

Today, Bruna speaks to Nadia Craddock (Senior Research Fellow) about her paper titled: Understanding colourism in the UK: development and assessment of the everyday colourism scale

You can read the paper here: tandfonline.com/doi/pdf/10.1080/01419870.2022.2149275

Check out a previous full-feature Appearance Matters episode on colourism: https://soundcloud.com/appearance-matters/80-understanding-colourism

Summer shorts series developed by Nadia Craddock

Episode produced by Bruna Costa

Photo: Unsplash

Welcome back to the summer shorts series! Over the summer, the CAR podcast team are bringing you bite-sized episodes on a recently published paper from different members of the team at the Centre for Appearance Research.

In this summer short, Abbi speaks with A/Prof Nicola Stock about her recently published paper titled 'Feasibility and Acceptability of the Promoting Resilience in Stress Management-Parent(PRISM-P) Intervention for Caregivers of Children with Craniofacial Conditions'.

Read the paper here: https://journals.sagepub.com/doi/10.1177/10556656231157449?url_ver=Z39.88-2003&rfr_id=ori:rid:crossref.org&rfr_dat=cr_pub%20%200pubmed

Episode produced by Abbi Mathews

Summer shorts series developed by Nadia Craddock