Show Notes:

Ashley talks with SRF Co-founder and Syngap Dad Mike Graglia. Mike talks about founding SRF with his wife, Ashley Evans & raising a Syngapian child. He offers his best advice to new SYNGAP1 parents.

What is SYNGAP1: https://www.syngapresearchfund.org/home/what-is-syngap1

Syngap Research Fund: https://www.syngapresearchfund.org/

Donate: https://www.syngapresearchfund.org/donate/donate#googtrans(en|en)

Mike Graglia: https://www.syngapresearchfund.org/team/mike-graglia

Ashley Evans: https://www.syngapresearchfund.org/team/ashley-evans-mphil-mba-co-founder

Mike & Ashley’s Story: https://youtu.be/lLO2hsAi4-M & feature in Newsweek:  https://www.newsweek.com/my-son-syngap1-rare-genetic-condition-1776362

Tony’s Warrior Story: https://www.syngapresearchfund.org/syngap-warrior/tony

Number Blocks:  https://www.netflix.com/title/81272431

Connect with SRF:

Facebook: https://www.facebook.com/cureSYNGAP1

Twitter: https://twitter.com/intent/user?screen_name=cureSYNGAP1

Instagram: https://www.instagram.com/curesyngap1/

LinkedIn: https://www.linkedin.com/company/curesyngap1/

TikTok: https://www.tiktok.com/@curesyngap1

SYNGAP10 Weekly Video Podcast with Mike: https://www.youtube.com/playlist?list=PLjpr3a14_ls38mAeOZeErFpEjbrw5mGhR

Follow Ashley Frye:

Facebook: https://www.facebook.com/ashley.hewettfrye

LinkedIn: https://www.linkedin.com/in/ashley-frye-62095582/

Instagram:  https://www.instagram.com/fryemom/

Nathan’s Warrior Story: https://www.syngapresearchfund.org/syngap-warrior/nathan

Wednesday SRF Family Zoom Meeting:

Syngap.Fund/SRFfam Meeting ID - 972 0059 2178 Passcode - 848417

Comments: [email protected]

Music: In the Forest... by Lesfm from Pixabay 

Episode 002 SynGAP Stories, February 21, 2023

#Syngap #SYNGAP1 #epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology