
Sign up to save your podcasts
Or
Show Notes:
In Episode 3, Ashley talks with SYNGAP1 Mom Corey Baysden. Corey talks about the joys of raising Saylor as well dealing with a difficult diagnosis and finding a community in SRF. As SRF Community Activation Leader, Corey communicates with and advocates for many newly diagnosed families. You can reach her at [email protected].
Saylor’s Warrior Story: https://www.syngapresearchfund.org/syngap-warrior/saylor
Follow Corey Baysden:
What is SYNGAP1: https://www.syngapresearchfund.org/home/what-is-syngap1
Syngap Research Fund: https://www.syngapresearchfund.org/
Donate: https://Syngap.Fund/Donate
SYNGAP1 & Epilepsy
Why Getting a Genetic Diagnosis Matters
How to Get Free Genetic Testing
Special Needs Trusts
Connect with SRF (@curesyngap1):
TikTok
SYNGAP10 Weekly Video Podcast w/ Mike
Follow Ashley Frye:
Nathan’s Warrior Story: https://www.syngapresearchfund.org/syngap-warrior/nathan
Wednesday SRF Family Zoom Meeting:
Syngap.Fund/SRFfam Meeting ID - 972 0059 2178 Passcode - 848417
Comments: [email protected]
Music: In the Forest... by Lesfm from Pixabay
Episode 003 SynGAP Stories, March 7, 2023
#Syngap #SYNGAP1 #epilepsy #autism #raredisease
5
2020 ratings
Show Notes:
In Episode 3, Ashley talks with SYNGAP1 Mom Corey Baysden. Corey talks about the joys of raising Saylor as well dealing with a difficult diagnosis and finding a community in SRF. As SRF Community Activation Leader, Corey communicates with and advocates for many newly diagnosed families. You can reach her at [email protected].
Saylor’s Warrior Story: https://www.syngapresearchfund.org/syngap-warrior/saylor
Follow Corey Baysden:
What is SYNGAP1: https://www.syngapresearchfund.org/home/what-is-syngap1
Syngap Research Fund: https://www.syngapresearchfund.org/
Donate: https://Syngap.Fund/Donate
SYNGAP1 & Epilepsy
Why Getting a Genetic Diagnosis Matters
How to Get Free Genetic Testing
Special Needs Trusts
Connect with SRF (@curesyngap1):
TikTok
SYNGAP10 Weekly Video Podcast w/ Mike
Follow Ashley Frye:
Nathan’s Warrior Story: https://www.syngapresearchfund.org/syngap-warrior/nathan
Wednesday SRF Family Zoom Meeting:
Syngap.Fund/SRFfam Meeting ID - 972 0059 2178 Passcode - 848417
Comments: [email protected]
Music: In the Forest... by Lesfm from Pixabay
Episode 003 SynGAP Stories, March 7, 2023
#Syngap #SYNGAP1 #epilepsy #autism #raredisease
28,431 Listeners
151,609 Listeners
83 Listeners
18 Listeners