Ataxia, Did You Know?

Research is at a pivotal time for Ataxia – with one medication in clinical trial and more in the pipeline. We received 84 applications for Ataxia research grants this year! Work with us to get as many of them funded as possible. We want to give researchers the support that they need, so that they can look for the answers that we need. Join NAF’s 2017 Research Drive!

Make a contribution today

https://ataxia.donorpages.com/2017ResearchDrive/

Dana Mauro talks about:

National Ataxia Foundation believes that this type of request for study subjects will be made in the future for many, and hopefully, all forms of ataxia

what comes to mind when you think of the invisible aspects of Ataxia:

Fatigue

Guilt

Difficulty maintaining relationships

Difficulty multitasking and keeping track of things

Emotions

Overstimulation

Fatigue:

Exhausted – need to rest frequently during the day – feel guilty

Live by the clock – prioritize your energy

Speech not understood; exhausting to repeat myself

Eating is exhausting – takes a lot of energy not to choke

Use assistive devices to:

Did You Know ? Annual Ataxia Conference (005)

NAF coordinates the world’s largest annual Ataxia gathering – the Annual Ataxia Conference (AAC). For three days, conference attendees meet and learn from world-leading Ataxia researchers and clinicians, network, and reunite with old friends. Hundreds of people – from patients, to caregivers, to medical professionals – travel from all over the world to attend the conference

What is Ataxia? Did you know this? This is an Ataxia Awareness campaign. Please tune in daily for a new fact to share with friends and family.