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Ataxia, Did You Know?
Ataxia, Did You Know? episodes
- The Cerebellum neurologists call 'the little brain'.Hi #kNOwATAXIA Nation! Ever wonder what's impacting your ability to walk a straight line? Listen in to learn about the trouble maker most neurologists call 'the little brain'.2 min
- Exercising, What are you waiting forExercise can be effective in the treatment and management of a number of chronic health conditions.iTunes: podcast/k...https://itunes.apple.com/us/SoundCloud https://soundcloud.com/user-536040137...Facebook https://www.facebook.com/ataxihttp://Websitewww.rideforjohn.org/adidyou...Instagram https://www.instagram.com/ataxian_/Twitter https://twitter.com/AtaxiaFacts3 min
- National Ataxia Foundation established in 1957NAF is a membership supported nonprofit organization established in 1957 to help persons with Ataxia and their families.#kNOwATAXIA #IAAD2019 National Ataxia FoundationEmail your photo to [email protected]3 min
- Massachusetts General Hospital (MGH) Ataxia UnitThe Massachusetts General Hospital (MGH) Ataxia Unit was the first and is now the most active such clinic in the US, providing comprehensive care to patients across the age spectrum who have disorders of cerebellum and related conditions.3 min
- 3 Faces Of Ataxia3 Faces of #Ataxia #kNOwATAXIA Are you Ataxia aware?send in your photo to [email protected]3 min
- Cameryn Cobb An inspirational young advocate for AtaxiaI want to introduce you to Cameryn Cobb An inspirational young advocate for Ataxia. Listen in as Cameryn shares her story and what she is doing to make a difference.MINDlink Foundation Rhode Island Ataxia Support GroupNational Ataxia Foundation Biogen #kNOwATAXIA #Ataxia #2019AACiTunes https://itunes.apple.com/us/podcast/k...SoundCloud https://soundcloud.com/user-536040137...Facebook https://www.facebook.com/ataxiadidyou...Website http://www.rideforjohn.org/Instagram https://www.instagram.com/ataxian_/Twitter https://twitter.com/AtaxiaFacts9 min
- Lauren Sormani An inspirational young advocate for Ataxia a Rare DiseaseHi #kNOwATAXIA Nation. On this #thoughtfultuesday I want to introduce you to Lauren Sormani. An inspirational young advocate for Ataxia. Listen in as Lauren shares her story and what she is doing to make a difference.iTunes https://itunes.apple.com/us/podcast/k...SoundCloud https://soundcloud.com/user-536040137...Facebook https://www.facebook.com/ataxiadidyou...Website http://www.rideforjohn.org/Instagram https://www.instagram.com/ataxian_/Twitter https://twitter.com/AtaxiaFacts9 min
- Expanded analysis of their data from their first clinical trial of troriluzole in SCA patients.This Podcast from the annual NAF Meeting in Las Vegas, March, 2019 features Gil L’Italien, PhD, Head of GHEOR and Epidemiology and Melissa Wolfe Beiner, MD, Director of Research and Development and Ataxia Medical Lead, both from Biohaven Pharmaceuticals. They are with us to highlight some important and encouraging new data from an expanded analysis of their data from their first clinical trial of troriluzole in SCA patients. This clinical trial was the first registrational trial in SCA patients in the United States. In addition, they will discuss a new clinical trial, which is beginning this month at sites across the country, studying troriluzole in SCA patients with a new study design, optimized from data from their initial study, as well as data from the US Natural History Study. This work reflects a collaboration between Biohaven and numerous experts in the ataxia field across the country.24 min
- Andrew Rosen Announced as Executive Director For National Ataxia FoundationAndrew Rosen Announced as Executive Director #kNOwATAXIA"I am honored to be joining the strong team at NAF, and look forward to building on the work that has impacted so many people with Ataxia since the organization was founded in 1957. Research supported by NAF continues to make progress in the search for treatments and an eventual cure for #Ataxia. It is a pivotal time for the Ataxia community, and I will be focused on accelerating NAF's growth in the coming years." Andrew RosenNational Ataxia Foundation#2019AACiTunes https://itunes.apple.com/us/podcast/k...SoundCloud https://soundcloud.com/user-536040137...Facebook https://www.facebook.com/ataxiadidyou...Website http://www.rideforjohn.org/Instagram https://www.instagram.com/ataxian_/Twitter https://twitter.com/AtaxiaFacts9 min
- #26 Kyle Bryant: Shifting Into High Gear at #2019AACHi #kNOwATAXIA Nation! Happy #thoughtfultuesday. Today, I’m sharing a podcast I did with my good friend Kyle Bryant. I was able to get a few minutes with him in Las Vegas at the Annual Ataxia Conference.Listen in as we talk about Kyle’s new book, Shifting Into High Gear and learn about his motivation for writing it.I think you’ll really enjoy hearing Kyle’s story. We discuss the rollercoaster of emotions experienced with the diagnosis of a rare disease, the impact this diagnosis has on the family, the importance of becoming an expert in that disease, the road to acceptance (not always a straight line) and the realization that your involvement can make an impact.Please enjoy and let me know your thoughts in the comments below.iTunes https://itunes.apple.com/us/podcast/k...SoundCloud https://soundcloud.com/user-536040137...Facebook https://www.facebook.com/ataxiadidyou...Website http://www.rideforjohn.org/Instagram https://www.instagram.com/ataxian_/Twitter https://twitter.com/AtaxiaFacts25 min
About Ataxia, Did You Know?
From the publisher's feed
Curious, knowledgeable wife of an Ataxian. My mission is to share reputable Ataxia information in short, simple, digestible servings. I want the world to become acquainted with Ataxia and the way it…
robs someone of their balance, coordination, ability to walk, talk, swallow, and see.