By Claire Bullimore
5
22 ratings
The podcast currently has 87 episodes available.
In this episode of Aunty M Brain Tumours Talk Show, Johnathan shares his brain tumour story. Johnathan experienced a sudden and severe onset of symptoms the day before Thanksgiving, leading to an unexpected diagnosis of glioblastoma multiforme (GBM).
Johnathan recalls the ordinary start with what he assumed were hereditary migraines. Still, he details how things took a severe turn when he could no longer comprehend text and experienced severe dizziness and vertigo, prompting an emergency room visit. This visit quickly escalated as medical tests revealed a mass on his brain, leading to urgent referrals and treatments that upended his life.
Despite the shocking and rapid progression of his condition, Johnathan talks about the ongoing treatment, including surgery and the use of an Optune device, and how these have impacted his daily life. He also touches on the emotional and psychological effects of his diagnosis, both on himself and his family.
Throughout the conversation, Johnathan shares insights into his coping mechanisms, including starting a blog to share his experiences and connect with others in similar situations. He emphasizes the importance of community support, positive thinking, and adapting to a "new normal."
Visit Johnathan's blog and connect with him here www.johnvsgbm.com
Follow Aunty M Brain Tumours on:
Welcome to Day 29 of Brain Tumour Awareness Month on Aunty M Brain Tumours Talk Show. Today, Pamela shares her poignant journey from diagnosis to recovery and beyond. Pamela introduces us to Brain Tumour Ireland, the sole charity in Ireland dedicated to supporting individuals and families affected by brain tumours. Unfunded by the government, this small charity plays a big role in the community, from raising awareness to providing support and information. Pamela shares how the charity has been a pillar of support, offering resources, connections, and hope during her journey.
Find out more:
Brain Tumour Ireland
X
Find Pamela and Her Music on:
TikTok
Follow Aunty M Brain Tumours on:
Welcome to Day 28 of Brain Tumour Awareness Month on Aunty M Brain Tumours Talk Show. In today’s heartfelt episode, we are joined by Laura. Laura shares her intense and emotional journey with a brain tumour, from the first symptoms during pregnancy to her current battles with the disease. Her story is a tale of personal struggle, a beacon of hope, and the importance of awareness.
Find Laura:
TikTok
Follow Aunty M Brain Tumours on:
Hayley Conroy shares her granddaughter Lily's compelling story in this episode of Aunty M Brain Tumour's Talk Show. Lily's early life hinted at no challenges until her family started noticing unsettling signs a few weeks post-birth. Despite being a happy and active baby, Lily struggled with feeding issues and an unexplainable high-pitched scream, leading to a misdiagnosis of lactose intolerance. This episode delves into the trials and tribulations faced by Lily and her family, from initial feeding difficulties to a shocking diagnosis of an Optic Pathway Glioma, a type of Brain Tumour coupled with Diencephalic syndrome.
Contact Hayley HERE
Follow Aunty M Brain Tumours on:
In this episode of Aunty M Brain Tumour's Talk Show, Brenda shares her journey of being diagnosed with a brain tumour and undergoing surgery and radiation treatment. She talks about the strange symptoms leading up to the diagnosis, including memory lapses and severe headaches. Brenda's resilience shines as she discusses her recovery and a newfound appreciation for life. She also emphasizes the importance of seeking multiple medical opinions and cherishing the support of loved ones. Through her advocacy work with the National Brain Tumor Society, Brenda strives to raise awareness and provide hope for others facing similar challenges.
Find Brenda on her website: HERE
Follow Aunty M Brain Tumours on:
In this podcast episode of Aunty M Brain Tumours Talk Show, we speak to Matthew. Matthew recalls an ordinary Thursday in October 2023, playing football and feeling fit, only to experience what he describes as being struck by lightning 60 minutes into the game. This moment marked the beginning of a completely heart-wrenching journey for him, leading to the diagnosis of a brain tumour.
Follow Aunty M Brain Tumours on:
In this podcast episode of Aunty M Brain Tumours Talk Show, Mel Kelly shares her journey from the initial misdiagnoses of persistent headaches and vision loss to her brain tumour diagnosis on December 19, 2022. Despite the shock and challenges, including a crucial surgery just before Christmas and the struggle to regain her driving license, Mel's story is one of encouragement for awareness.
Post-recovery, Mel actively participates in fundraising and awareness campaigns, notably organizing a 12-mile walk and raising funds for The Brain Tumour Charities. She also supports "It's a No Brainer," advocating for a national brain tumour strategy. Mel's experience highlights the importance of support, awareness, and advocacy in battling brain tumours.
Follow Aunty M Brain Tumours on:
In this podcast episode of Aunty M Brain Tumours Talk Show, Kimberley talks about her Astrocytoma diagnosis and the support she has found in brain tumour charities. Especially in The Brain Tumour Charity and Brain Tumour Support.
Follow Aunty M Brain Tumours on:
In this podcast episode of Aunty M Brain Tumours Talk Show, Stefania shares her meningioma story from the first symptoms to the diagnosis, treatment, and ongoing challenges she faces. She highlights the crucial role of support systems like the charity Brain Tumor Support.
Follow Aunty M Brain Tumours on:
In this podcast episode of Aunty M Brain Tumours Talk Show, Yaron shares his extraordinary journey of facing a Glioblastoma Multiforme diagnosis at 29. Yaron's story is not just about survival; it's a testament to the power of medical intervention. Yaron recounts the subtle symptoms that initially appeared in 2003, including frequent headaches and a peculiar incident of temporary leg weakness. Despite these signs, Yaron was deeply engrossed in his work, notably contributing to the sequencing of the SARS genome. His life took a sharp turn when he experienced a grand mal seizure, leading to his diagnosis with a Glioblastoma Multiforme intertwined with oligodendroglioma elements.
Website:
Yaron's
Follow Aunty M Brain Tumours on:
The podcast currently has 87 episodes available.
906 Listeners