If you're parenting a non-speaking autistic child and you've ever looked at someone else's life and thought — how are they okay when I'm barely holding it together — this episode is for you.
I recorded this one because of a conversation I had with one of my Autism Changemakers members. She's in a really hard season right now, and she asked me something that stopped me in my tracks: Sara, can you share the hardest things you've ever been through with Rocco? Because I just need to hear from someone who made it to the other side.
And I realized — she had no idea. Because from the outside, life looks pretty great right now. And it is. But it didn't start here.
A couple of summers ago, Rocco had a parasite that changed everything about him. His sleep, his moods, his anxiety, his behavior. It was like my child wasn't my child. I was soaking wet on the bathroom floor, dealing with a level of aggression I had never seen from him — terrified, exhausted, and spiraling into the thought of what if this is forever.
I didn't share it in real time. I needed to process it myself first. And I fiercely protected Rocco's dignity while we were in the thick of it.
But I'm sharing it now — because you deserve to know this isn't a highlight reel.
In this episode I talk about:
- What happened during Rocco's parasite episode and why it changed his behavior almost overnight
- Why "that's just autism" is one of the most dangerous things we say to parents of non-speaking kids
- How I cared for myself during one of the scariest seasons of our lives — and why that made all the difference
- Why hard moments don't pass by themselves, and what actually helps them shift
- The silver lining that came out of all of it: Rocco's very first open sentence on the letterboard
Hard seasons don't have to be forever. But they don't pass on their own either. They pass when you're willing to look deeper — at your child's body, their behavior, their communication. And you can only do that when you have energy to spare.
That energy comes from taking care of yourself. Not perfectly. Consistently.
If this resonated, come find me on Instagram @sara.intonato or learn more about Autism Changemakers at autismchangemakers.com.
Support the show