In this episode, Mike Carr discusses how the right technology—paired with strong support—can transform life for families of children with special needs. He highlights tools like the Kindle Scribe for caregiver productivity, and AI home assistants like Alexa Plus and Google Gemini, which offer safety through smart cameras and real-time alerts. Amazon’s upcoming “Search Party” feature may even help locate missing individuals. Mike also introduces OpenAI’s Sora 2, a text-to-video tool that creates realistic therapy aids by showing children performing skills they’re still learning. Together, these innovations promise more independence, safety, and peace of mind.

Autism is a lifelong neurodevelopmental condition that ranges from full independence to requiring 24/7 care, as with Mike and Kay’s son Michael. Research has disproven the myth that vaccines cause autism; while acetaminophen use in pregnancy has shown weak associations, experts point to underlying illness as the real risk, and it remains medically recommended. Treatments like leucovorin help only a small subset, though folic acid sometimes calms Michael. After 35 years, Mike stresses that progress comes not from chasing “cures” but through steady, practical strategies—early intervention, managing seizures and sleep, building structure and communication supports, respite care, and a reliable professional team. For families, hope lives in small victories, meaningful connections, and the resilience fueled by love.

Adding structure to daily routines helps reduce stress, build independence, and prepare individuals with autism for respite or residential care. Unstructured time can lead to boredom and problem behaviors, but visual supports like Picto Selector, TouchChat, and apps such as ChoiceWorks, First Then Visual Schedule HD, Visual Schedule Planner by Good Karma or Lil Planner: Visual Schedule create predictability and choice. These tools turn downtime into skill-building, support decision-making, and provide consistency for families and caregivers. Starting with one simple routine builds early wins, which grow into confidence, self-advocacy, and smoother transitions over time.

Mike Carr shares his family’s experience raising their 35-year-old son, Michael, who is profoundly autistic, mostly nonverbal, and lives with seizures and pica. He asks the urgent question of who will care for children like Michael when parents can’t, and outlines essentials for a true residential “forever home”: near one-to-one staffing, awake overnight staff, communication-first over restraint, medical readiness, transparent data, community and work opportunities, and a culture of dignity and stability. After reviewing programs nationwide, he highlights five promising models—the Center for Discovery, Bittersweet Farms, Grafton, Woods Services, and the May Institute—stressing the need to look beyond polished websites to real practices and visits. He closes with J13’s vision to grow from respite care to full residential homes in Austin, prioritizing compassion, low staff ratios, and meaningful lives where adults with profound autism can thrive.

Respite care often fails adults with profound autism or multiple IDDs, who need 1:1 support, medical readiness, and structure. At J13 Community in Austin, respite looks different: no one is expelled for behavior, belonging is guaranteed, and programs build on each person’s strengths with dignity and safety. Starting with day programs—climbing gyms, parks, equine therapy—participants gradually transition to overnight stays. Success relies on skilled staff, safe homes, reliable transportation, and parent partnership. The result: adults who are engaged and thriving, and parents who can finally breathe with peace of mind.

This episode examines housing options for adults with autism and IDD, noting that 86% still live at home or in group settings, raising concerns about long-term care. Drawing on his family’s experience with a profoundly autistic 35-year-old son, the host reviews five East Coast facilities—Thrive Red Bank (NJ), Melmark Community (MA), Oak Tree Farms (SC), Haven Jakes Place (FL), and Patuxent Commons (MD). Features include sensory-friendly design, private bathrooms, vocational training, intergenerational living, and “aging in place” models, though costs and staffing vary. Families are encouraged to look for purpose-built, community-integrated facilities, consider university partnerships, and explore intergenerational or campus-style models that adapt to changing needs.

- Thrive Red Bank (NJ): https://www.autismhousingnetwork.org/community/thrive-red-bank/
- Melmark Community (MA): https://www.melmark.org/planned-tewksbury-adult-community/
- Oak Tree Farms (SC): https://www.autismhousingnetwork.org/community/oak-tree-farm/
- Haven Jakes Place (FL): https://baynews9.com/fl/tampa/news/2025/03/26/increased-need-for-housing-for-those-with-disabilities-in-manatee---sarasota-
- Patuxent Commons (MD): https://autismsocietymd.org/resources/housing-initiative/

Transitioning to adulthood for people with profound autism often feels like falling off a cliff once school services end. In this episode, Mike Carr shares his wake-up call and the need for early planning, especially with Texas’ 20-year Medicaid waiver waitlist. He stresses teaching daily living skills—like hygiene, dressing, and laundry—and calls for day programs that offer real community integration. Mike highlights Austin’s recreational and vocational options, from sensory-friendly parks to adaptive gyms and supported jobs, and explains why his family founded the J13 program: a mix of outings, skill-building, and work that helps severely autistic adults live purposeful, joyful lives.

This third episode in the series on transitioning to adulthood explores the role of a “fail safe” culture in autism transition programs—creating psychological safety by normalizing small, low-risk failures as learning opportunities. Mike recounts a bowling outing where a participant became aggressive, prompting a blame-free review that revealed environmental triggers and delayed return of the participant’s iPad. Instead of punishment, the program focused on transparency with parents, better training, and improved situational awareness. Drawing from Amy Edmondson’s The Right Kind of Wrong, Mike highlights that the best programs replace blame with curiosity, growth, and fun for both participants and staff.

When profoundly autistic individuals age out of the school system at 22, many families are left without support or options. In this episode of Autism Labs, Mike Carr shares how he and his wife faced this challenge with their nonverbal son, who has seizures and aggressive behaviors. After being told their son was "unemployable" and turned away by programs, they created J13—a program for adults with severe autism and complex needs. J13 offers structured outings, peer connections, and trained staff who manage behaviors without exclusion. The result: reduced aggression, increased social engagement, and even part-time jobs. For many families, J13 offers hope and a future once thought out of reach.

In this episode of Autism Labs, Mike Carr begins a series on transitioning to adulthood for those with profound autism, sharing research-based strategies and personal stories from raising his 35-year-old son, Michael. He stresses early planning—starting at age 14 with the IEP—and teaches independent living skills like hygiene, dressing, and communication using tools like visual aids, adaptive clothing, and the TouchChat app. Mike also tackles employment challenges, showing how combining work with activities like climbing brought joy and purpose to Michael’s life. His core message: with the right mindset and planning, even the most profound diagnoses can lead to fulfilling adulthood.