I never knew what to expect not in a constant flare. Living life under my terms and not. Compromise is a big learning experience.

I share my day, well 17 hours, of raw unbridled excitement!

Getting acclimated to a new daily lifestyle. My husband is noticing improvements. Is this the time?

Getting to understand how my body works.

Every day every move is PT for me.

I love it when Allie Gillies stops by. Join us as we discuss supplements and stuff.

Adapting to how to interact with others.

And restoring my fascia to health I hope.

It’s time to plan all of the things I now think I can do. Can I just keep moving forward? Only I can blow it now!🤪

My world is changing because I was listened to. My body is getting stronger because I have done dedicated bodywork. I lost my abilities and got them back my way. I will not be detoured from achieving my goals. Your support is greatly appreciated 💙

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I am attacking this illness one symptom at a time. I am standing up for myself. Taking control of hEDS on my terms.