It was just a day. And a darn good day at that. I think things are changing. Kind of freaking me out a bit.

It’s time to work on things I never thought I would. I don’t think I worked hard to learn them the first time.

Will I ever be finished? Will there be fewer modalities? Will they forever be changing?

Lost my ability to talk. It’s like 2021 all over. I can’t go down like this.

Jon Rodis, the President, of the Connective Tissue Coalition. Joins me to discuss the CTC and why it’s the key that will open a lot of doors to answers and a better quality of life. We must advocate for ourselves.

I saw this post by Lynne Geis. She was kind enough to tell me she didn’t have the energy to do it herself. But she gave me permission to read her words. Thank you Lynne.💙 This is also a “verbal transcript” for listeners that couldn’t read the post.

It’s amazing how much I can feel so lost one minute then feel like I’ve got this. Recordings 7 hours apart.

Is it time to quit? Have I achieved all there is? It’s okay to mourn. Now let’s fight!

I appreciate everyone that takes the time to listen and follow. Friends IRL and from the EDS community. Thank you.

Learning new ways to work on fascia everyday. Unfortunately, my case is too complex for these modalities. Maybe not you. Don’t end up like me.