AXSChat Podcast

Oksana Chuchunkova is an advocate for employment for people with disabilities, accessibility and blindness awareness. She has served asthe had of the PR department of the business center for blind and visually impaired persons and an employment program coordinator at DPO Perspektiva in Moscow. She’s the accessibility expert at one of the largest Banks in the country. Together with a team, she helps to adapt online and offline banking services for visually impaired clients as well as for clients with different disabilities.

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Dr. Michael Lorz (43) is the founding managing director of EnableMe Foundation. The foundation empowers more than one million people with disabilities annually across the world by providing enabling information, self-help peer communities & digital services.

Michael is also the managing director of the Stiftung MyHandicap that focuses on digital inclusion services in Switzerland. He is passionate about societal impact in the domain of non-visible disabilities. Previously, he has inter alia been the founding managing director of the foundation at the University of St.Gallen (HSG Foundation).

He is a graduate of the Ashoka Visionary Programme and completed five academic degrees at renown universities.

Michael started his career in a leadership development program of an international FMCG company working in multiple locations worldwide. Today he also teaches regularly value-based fundraising at the University of St.Gallen and has a keen interest in alternative assets. He is also advisory board member of the Center for Disability Integration at the University of St.Gallen.

Michael lives with his family in the wonderful city of St.Gallen (CH).

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Charlie Triplett is an experienced accessibility coach and author of TheBookOnAccessibility. Based in the United States, Charlie has dedicated their career to helping individuals and organizations create more accessible digital experiences for people with disabilities.

With over a decade of experience in the tech industry, Charlie has become a leading voice in the accessibility community. Their expertise covers a wide range of areas, including web and mobile accessibility, assistive technology, and inclusive design.

Charlie's passion for accessibility began after experiencing firsthand the difficulties that people with disabilities face when accessing digital content. As a result, they decided to shift their focus to helping others create more inclusive and accessible digital experiences.

In addition to their work as an accessibility coach, Charlie is the author of TheBookOnAccessibility, a comprehensive guide to creating accessible digital content. The book covers everything from the basics of accessibility to advanced techniques for ensuring that digital content is accessible to people with a wide range of disabilities.

Charlie's work has been recognized by leading organizations in the tech industry, and they have been invited to speak at conferences and events around the world. Through their coaching, writing, and speaking engagements, Charlie has become a prominent figure in the accessibility community and a valuable resource for anyone looking to create more inclusive digital experiences.

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My name is Bright M Bwalya, a 30-year, Software Engineer, Mental Health and Epilepsy Advocate. I have a strong passion for Epilepsy & Mental Health Advocacy, with a strong desire to use technology to address common issues in many chronic conditions noticed here in Zambia.

I am the 3rd born in a family of 7 and growing up, I didn’t know about Epilepsy, I only got to hear of it after meeting one person who had it, later in grade 8. Fast-forward 2011 I was enrolled at the Copperbelt University to pursue a Degree in Information technology and as my studies went on, my love for technology grew. When I was researching on what project to work on for my 5th Year dissertation in 2016, I started experiencing seizures and I was later diagnosed with Epilepsy in March of 2016. Struggles arose brought by the condition ranging from the stigma name calling and mocking to people not knowing what to do when I suffer a seizure, a significant incident is when I suffered a seizure and I woke up to an exorcism. That opened my eyes to the fact that people di not know what this condition which was affecting many, actually was.

My struggles with Epilepsy inspired me to switch my final year project to one which could help me help those around me know what to do when I suffer a seizure. I call it “Seizure Assistant”, a mobile phone application built to be a health management and experience sharing platform which also allows patients to get help before or during a seizure. This help can be requested for either by a button push or auto seizure detection through a synchronized smart wrist band. The application then does three things; Send a preset SOS Message to a Set Emergency Contact alerting them of the seizure, with the patient’s location included for easier tracking. The patient’s phone will then play an SOS Sound to gain the attention of the people around. In response to the noisy phone, someone will pick it up and what they will find is a series of instructions on how to provide First Aid care to the patient experiencing a seizure with their Name, Condition Type and Emergency Contact Details included. This and many other features help Epileptics better manage their condition while teaching the masses about the condition thereby reducing the stigma surrounding it. The application houses a feature called “Community Feeds”, a feature that allow users to communicate and share the issues they are struggling with and get expert help right on the application, as well as response of encouragement and advise from fellow patients. The Feature works different from other platforms in that a user is free to share their complaints or queries in anonymity, if need be, however the help to them is still provided. This is useful for those not ready to open up about the conditions they are struggling with. This would help address the high rates of suicides which have rocked the country recently.

Due to a misunderstanding of my condition and effects of medicine, I was fired from a job and out of desperation, I took on another which had me working for 6 months with no pay and in that light, it has been a struggle to finish this project from the little I make in freelance work. The non-working time was however a needed low for it helped me research and find out what the people living with Epilepsy needed and hence create a solution tailored to their needs and when I presented the concept to Ministry of Science and Technology, they gave me a grant through the NSTC (Only a pat has been given after a long wait).

My works thus far have received a 34th International Golden Light Award in 2021, and The Country Champion Award in 2022 from the world’s largest Epilepsy Institutions, International Bureau for Epilepsy (IBE) and International League Against Epilepsy (ILAE), addi

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Alexa Child, co-founder of Dateability, graduated from Georgetown Law in 2015 and currently works as a public interest attorney. Through witnessing her sister’s experience with disability, Alexa has become an advocate and ally for the disability community. She is passionate about social justice, enjoys TV and film, and loves all things Halloween.  

Jacqueline Child, co-founder of Dateability, has turned her experience with disability and chronic illness into a new venture. She created Dateability with her sister after years of discouraging ableist experiences on the mainstream dating apps. When she isn’t managing her health, Jacqueline enjoys playing the guitar, reading, and volunteering at the local animal shelter. 

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 Dr. Tomczak is an Assistant Professor at the Faculty of Management and Economics, Gdańsk University of Technology in Poland, and a visiting scholar at the University of North Texas, College of Health and Public Service.

As the first Polish researcher in the field of management to conduct research on neurodiversity and work, Dr. Tomczak is a leading expert in Human Resources Management. He has authored and co-authored over 50 publications in the field, focusing on technology-based and non-technological solutions for the inclusion and well-being of employees with autism and the assessment of employee competencies.

As a Principal Investigator and co-investigator of several projects funded by the National Science Center (NCN) and the National Centre for Research and Development (NCBiR), Dr. Tomczak has developed a set of innovative solutions for employers, aimed at improving Human Resources Management processes and optimizing the work environment in terms of the needs of people with autism.

Join us on the podcast to hear Dr. Tomczak's valuable insights on neurodiversity and work, and how businesses can create a more inclusive and supportive work environment for all employees.

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Hunny Bhagchandani is a social innovator and entrepreneur who is passionate about empowering people with disabilities (PwD) with the power of independence. He is the founder of Torchit Electronics Pvt. Ltd., a company that develops affordable and innovative assistive devices for PwD, such as Saarthi, a mobility device for blind people. He is also a director of Dot Inc., a company that produces braille smartwatches.

Hunny Bhagchandani has a bachelor’s degree in industrial engineering from Pandit Deendayal Petroleum University (PDPU), India. He has also been a fellow at the Royal Academy of Engineering, UK and the MIT Media Lab, US. He has received multiple accolades for his work, including the National Award from the President of India and being featured on Shark Tank India.

Hunny Bhagchandani

Hunny Bhagchandani was inspired to create assistive devices for PwD after witnessing a terrible accident involving a visually impaired person during his internship at the Blind People’s Association (Gujarat) in 2013-14. He realized that existing devices were inaccurate and unreliable, and decided to use his technical skills to make a difference. He came up with a prototype that later became Saarthi, which uses ultrasonic sensors to detect obstacles and provide haptic feedback to users. Hunny Bhagchandani is also a member of Meaningful Business, a global community of leaders who are combining profit and purpose to help achieve the United Nations Sustainable Development Goals by 2030. He is also an ambassador of One Young World, a global forum for young leaders. He is also a business mentor at Founder Institute, an accelerator program for aspiring entrepreneurs.

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Lainey is a disability rights lawyer who has worked to make the digital world more accessible since 1995. She helped negotiate the first web accessibility agreement in the United States in 2000. Since then, she has brought together people with disabilities and public and private sector organizations across the United States to improve digital accessibility. Her negotiating partners have included Bank of America, Major League Baseball, the City and County of San Francisco, and CVS.

Lainey developed and practices Structured Negotiation, a dispute resolution and collaboration strategy that avoids lawsuits and focuses on lasting change and relationship-building. Structured Negotiation has been used to advance accessibility for more than a quarter-century. Lainey is also the author of Structured Negotiation: A Winning Alternative to Lawsuits (2d edition 2021). Her book shares stories and strategies for using Structured Negotiation both to avoid lawsuits and to make filed lawsuits less contentious. It also explores examples of advocates using Structured Negotiation tools outside of a legal context. 

Lainey is also a consultant and an international speaker and trainer on topics including collaborative problem-solving, the digital accessibility legal space, accessibility ethics, accessible procurement, and best practices for baking digital accessibility into policies and practices of organizations large and small. In 2017 Lainey was selected as an American Bar Association Legal Rebel – a group of “innovators who are remaking the legal profession.” She has twice been named a California Lawyer Magazine Attorney of the Year, and in 2022 received the Jim Thatcher Lifetime Achievement award during the Axe-Con conference. More information on Lainey’s website.

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David Pérez is a distinguished organizational leader with an MBA and a deep commitment to promoting diversity and inclusion. He possesses extensive expertise in digital transformation, team leadership, and communication, which he has honed over the course of his career. David has a proven track record of developing effective communication strategies and organizing events that promote cultural diversity, and he is dedicated to creating inclusive environments that drive positive change.

Key to his mission to promote disability inclusion in the Latin American Region is his passion for advancing disability inclusion has earned him a reputation as a leader in his field, and he continues to work tirelessly to create a more equitable society for all.

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Rocío Bernabé Caro holds a professorship in barrier-free communication at the International University of Applied Science of the SDI München. She has a MA in Translation (UGR) and a MA in Accessible Documents, Technologies and Applications (UNIR). The topic of her PhD was easy audiovisual media services for all (UAB). She is Deputy Head of the Professional College of Translation and Interpreting of the SDI in Munich (Germany). She was the project leader of the EU co-funded project Live Text Access, which aimed to create certified learning materials for real-time intralingual subtitlers by respeaking and velotyping. She was project partner, accessibility manager, and leader of the Intellectual Output (IO) 2 of the EU co-funded project EASIT, Easy Access for Social Inclusion Training. She is a partner and IO leader of the EU co-funded project Train2validate. Her newest research focuses on easy Internet and end-user-centered validation processes. She is also involved in the ISO standard for Plain Language and the German DIN standard for Easy-to-Read

Óscar García is project manager at Plena Inclusión Madrid and leader, a third-sector organisation that supports and defends the rights of people with intellectual disabilities. Óscar García has a degree in Journalism and a postgraduate in Universal Accessibility. He has been translating contents into easy-to-read for 12 years. In this time, he has published handbooks in Spanish such as “Lectura fácil: métodos de redacción y evaluación” (Easy-to-read: writing and assessment methods) and “Guía práctica de orientaciones para la inclusión educativa: lectura fácil” (Handbook on guidelines for educational inclusion: easy-to-read). He translated into Spanish the IFLA publication “Guidelines for easy-to-read materials”. Among the contents that he has translated into easy-to-read, he produced the Spanish Constitution, several acts, museum publications (Museo del Prado, among others), medical leaflets and vocational training handbooks. He is also member of the Spanish standardisation group that published the standard UNE 153101 EX about easy-to-read contents production.

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