BARE IT ALL

Jen and Jordan talk with Lorraine Stiehl, CEO of the American Liver Foundation.

If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA.  The COTA crew is looking forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant and support is provided at absolutely no cost. Please call COTA today at 1-800-366-2682 or go to www.cota.org/getstarted to learn more about how they can help.

Resources from This Episode:

Jen and Jordan discuss friendships before, during, and after their child's transplant.

In the fifth episode of our Story Series, we focus on two people: Ezra's journey from diagnosis to Kasai and Jennafer, Ezra's mom, who while treating Ezra was diagnosed with stage 4 metastatic breast cancer. Jannafer talks about her journey with Ezra as being the caregiver and how it shifted when she learned she was sick. this episode also provides an honest prospective about life from the eyes of a mom who is staying strong for her family.

The fourth episode of the Story Series provides a perspective not always seen in BA - Will not requiring a liver transplant until he was 12. We talk with Amanda and Dan, Will's parents, about their experience with Will's diagnosis and the social and emotional aspects of raising a child and pre-teen who eventually required a transplant. Dan, Will's father, talk about his experience as Will's living donor and Amanda gives the caretaker perspective.

In our third episode of The Story Series, we speak with Natalie, the mom of Connor. Natalie talks about Connor's diagnosis, balancing major life choices at the same time as Connor's diagnosis and what life looks like as a mom to a kasai-only BA child. Natalie provides an optimistic and real perspective to the milestones in her and her family's life.

In the second episode of BARE's Story Series, we meet Briggs' mom, Brittany. Brittany talks about her experience with Briggs' BA diagnosis as well as his first, second and THIRD liver transplant. We explore the long-term impact organ donation has had on their family's life. In honor of Donate Life Month, BARE explores different organ donation journeys.

In honor of Donate Life Month, BARE explores different organ donation journeys. In our first episode of the Story Series, Jen talks to Stephanie and Arvid Skrede about the BA journey with their youngest daughter, Sophia. Music this episode courtesy of Michael Kobrin - The Introvert.

A discussion about mental health in the BA community with BARE's partner Liver Mommas!

Music clips

- I'm Fine by Ashe

- All I Really Want by Alanis Morissette

Book reference:

The Body Keeps the Score: Brain, Mind, and Body in the Healing of Trauma by Bessel van der Kolk M.D. - https://www.amazon.com/Body-Keeps-Score-Healing-Trauma/dp/0143127748

Jordan and Jen talk with Jenny Tice about her journey with BA and transplant as an adult.