Being Patient

Being Patient

By Being PatientHealth & Fitness
Download on the App Store

Being Patient episodes

  • New Eye Test Could Detect Early Signs Of Alzheimer's
    Being Patient speaks to Professor Peter van Wijngaarden, the deputy director of the Centre for Eye Research in Australia (CERA), who is developing a “revolutionary” Alzheimer’s eye test that is entering a trial phase. The test has been funded by philanthropists like Bill Gates and applies imaging technology that is similar to what is used in used in NASA satellites.
    24 min
  • How Families Can Help Their Loved Ones After An Early - Onset Alzheimer's Diagnosis
    People don’t expect that they’ll have to deal with Alzheimer’s in their 50s, but that is the reality for many families with loved ones who received an early-onset Alzheimer’s diagnosis. We speak to Judy Johanson, a clinical research ambassador for Massachusetts Alzheimer’s Disease Research Center at Massachusetts General Hospital. She cared for her late husband Steve after he was diagnosed with early-onset Alzheimer’s at 59 years old. She provides advice for families caring for loved ones with early-onset Alzheimer’s.
    31 min
  • Is Big Pharma Obligated To Make Data Findings Available To The Public
    The Washington Post recently reported that Pfizer buried data that one of their drugs, Enbrel (etanercept), might prevent Alzheimer’s disease. While some researchers expressed outrage over this decision, others argued Pfizer's findings were barely worth talking about. We speak to Hank Greely, a Stanford law professor about whether pharma has a moral obligation to share research findings with the public, plus what you should know when sharing your genetic data with testing companies.
    28 min
  • A Rare Dementia Diagnosis At 29 Years Old
    Katie Brandt, MM, the Director of Caregiver Support Services and Public Relations for the Massachusetts General Hospital Frontotemporal Disorders Unit, discusses how her late husband was diagnosed with Frontotemporal Degeneration (FTD) at the age of 29. Two weeks later, her father was diagnosed with Alzheimer’s at the age of 59. She covers the differences between FTD and Alzheimer's, dealing with misdiagnoses, behavioral approaches to Alzheimer’s care, caregiver support and the impact of dementia on young families.
    32 min
  • Toxic Algae Causing Dolphins to Develop Alzheimer’s
    Scientists have found something troubling off the coasts of Florida and Massachusetts: The brains of beached dolphins are showing signs of beta-amyloid, the protein that accumulates in toxic levels in the brains of Alzheimer’s patients and is thought to trigger nerve death. Dr. Deborah Mash discusses what her team’s findings could mean for humans.
    26 min

About Being Patient

From the publisher's feed

Being Patient's founder Deborah Kan resigned from her job as Executive Producer at the Wall Street Journal to redesign reporting on health, after her mother was diagnosed with Alzheimer’s disease. In the Being Patient Podcast, we examine the latest research on the prevention, treatment and care of the disease from the patient’s point of view. We give patients and carers the tools to map the landscape of the disease and go straight to the expert community to get the answers they want to know. We aim to elevate the patient’s voice in important conversations and help researchers understand their patient communities.