Erik Tambuyzer is one of the world’s thought leaders in orphan drugs and rare disease indications. While he was Genzyme’s EU and International Senior Vice-President for Corporate Affairs, he was also the industry’s negotiation lead with the European Commission and Parliament on the Orphan Medicinal Products Regulation, introduced in the year 2000, working together with patients’ organisations and academics. As an entrepreneur in 1985, he had co-founded and managed the biotech company Innogenetics, ultimately acquired by Fujirebio. He is the Executive Chairperson and co-founder of the BioPontis Alliance for Rare Diseases, an international philanthropic foundation turning science into medicines.

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