Beyond Our Cells

Author and Editor in Chief of Bitch Magazine, Evette Dionne talks about how she’s learned to listen to her body and what it needs after being diagnosed with cardiomyopathy at 29. 

In this episode we talk about the importance of Black women speaking openly about their health conditions, how to make time for yourself above stretching yourself thin for work and being aware when you don’t feel like yourself.

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Read her Zora Article: What No One Tells Black Women About Heart Disease

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Brand Manager, Victoria Reese discusses life with Multiple Sclerosis (MS) and how she built community in a space where there once was none.

In this episode, we talk about the journey to diagnosis in a system where the pain black women endure is often overlooked. We also talk about how Victoria cultivated a community of black women who were not seeing themselves in the materials provided to people with MS; growing #weareillmatic from just a campaign to now a larger non profit, We Are Ill, with a mission to redefine what sick looks like.

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The current state of the world has disrupted a lot of our peace. At the end of each episode we asks our guests “what brings you peace?”. This episode is a pause in the regular programming but a focus on that question, bringing you one collected, yet varied peacescription. A necessary break to reflect on what’s keeping us rooted in peace.

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In part two of our conversation, La'Nita Johnson, an education foreign service officer, mental health advocate and antiterrorism educator builds upon her traumatic experience.

In this episode, she details how she's begun doing the work to create resources for civilians that experience similar events and how she’s learned to communicate her needs at work and in relationships.

Link to transcript here

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See more of La'Nitas story and resources at PTSD Out Loud Blog

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La'Nita Johnson, an education foreign service officer, mental health advocate and antiterrorism educator recounts how she narrowly survived a terrorist attack in Burkina Faso in 2016. After being diagnosed with PTSD La'Nita shares how she's learned to accept her diagnosis, live out loud with mental illness and provide other resources for civilians with a similar experience.

In this episode, we get the. whole picture. Who La'Nita was before the attacks, details of the horrific events that happened in January 2016 and the steps she took to get to a better understanding of herself and the road ahead.

Link to transcript here

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See more of La'Nitas story and resources at PTSD Out Loud Blog

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Priscilla Agyeman, a mental health educator and advocate has created a virtual safe space for young women of color to destigmatize mental health and initiate collective healing. From her personal experience with high functioning anxiety to her graduate studies in public health, Priscilla has been able to spark meaningful health conversations drawing inspiration from current events, friends and her own experience.

In this episode, we talk about ways to cope when access to a therapist may be unattainable, the importance of having an open dialogue about our mental well-being and why creating and sustaining a community for these conversations is necessary.

Link to transcript here

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Charis, a mom of three with many titles reflects on life, work and motherhood with Lupus. Lupus is an inflammatory disease which has been found to be three times more likely in African American women than our Caucasian counterparts. Having been diagnosed at such a young age with no prior trace of the disease in her family, Charis was unsure how it would impact her life or her ability to have children. Three pregnancies later, Charis has beaten the odds and learned more about how to treat her body and what it needs .

In this episode, we talk about Charis' journey navigating her invisible illness, motherhood and ways she has learned to communicate her needs in an effort to reduce her stress and maintain her health.

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Tyla Grant, a 22-year-old blogger and autism advocate based in the UK shares her perspective on adult life with autism. Having received her late diagnosis at age 17, Tyla has learned how to embrace her life with autism and create safe spaces for others living with autism.

In this episode, we talk about boundaries and how if we embraced and used the word disability properly it could actually provide a lot of help to those in need of access to resources.

Link to transcript here

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Listen to the Adulting Autistic Podcast linked here

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Librarian and autism advocate, Lauren Melissa, wasn’t diagnosed with autism until age 23. Because autism is so seldom detected in women and girls, Lauren had to do some digging on her own to finally reach her diagnosis.

In this episode, we discuss the intersectionality of race and disability, why women are so often left out of the autism conversation and how race, gender and subsequently access play a part in late diagnoses. 

 Link to transcript here

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