Beyond the Bleeds

Today on Beyond the Bleeds, John and Heather welcome Jamison Buxton, CEO of the Hemophilia Outreach Center in Green Bay, Wisconsin, to discuss his journey from a parent of a child with hemophilia to leading an organization dedicated to supporting those with bleeding disorders. Jamison shares his personal experiences, the center's growth, and the importance of community and comprehensive care for individuals and families managing hemophilia.

Jamison Buxton became deeply involved in the hemophilia community after his son was diagnosed with hemophilia B in 2003. His commitment led him to join the board of directors in 2012, and by 2016, he assumed the CEO role. Under his leadership, the center has expanded significantly, serving an even larger patient population and providing crucial support and resources to those affected by bleeding disorders.

"I wanted to ensure that patients and families had the same care and services that I was offered in raising my son." ~ Jamison Buxton

Today on Beyond the Bleeds:

·     Early involvement with a hemophilia treatment center can provide essential information and support for navigating the challenges of a bleeding disorder.

·     It is important for parents to document everything to explain their child's condition and any bruises or injuries that may appear.

·     Opening a new clinic in Wausau provides patients with local access to care, reducing the need for long-distance travel.

·     The expansion of the Green Bay clinic was driven by a need to accommodate a growing patient population.

·     Strategic planning with the board of directors ensures that the center meets future demands and continues providing high-quality care.

·     Experiencing the challenges of having a child with a bleeding disorder gives Jameson a personal perspective that influences how he leads the organization.

·     Having a mix of employees with and without personal connections to bleeding disorders enriches the team and enhances patient care.

·     Finding a hemophilia treatment center near you is crucial for accessing specialized care and support.

Guest Contact Information:

Jamison Buxton: https://hemophiliaoutreach.org/contact-us

Resources Mentioned:

Hemophilia Outreach Center: https://hemophiliaoutreach.org

CDC Hemophilia Treatment Center Directory: https://www.cdc.gov/ncbddd/hemophilia/HTC.html

Looking for practical tips, expert advice, and a sense of community while living with or supporting someone with a bleeding disorder?

Subscribe to Beyond the Bleeds, the podcast that explores life with hemophilia, von Willebrand disease, and other rare conditions. Hosted by Heather Hansen and John Mazzariello, we bring you real stories, expert insights, and heartfelt conversations designed to help you navigate life Beyond the Bleeds.

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Don’t miss out on the Hemophilia Outreach Center’s Winter Education Program on December 7th, 2024, at the Oneida Hotel in Green Bay!

With inspiring presentations, fun activities for kids, and a special visit from Santa, it’s an event you won’t want to miss!

Visit:

 https://www.hemophiliaoutreach.org/events 

to register today.

Today on Beyond the Bleeds, we welcome the Myrie family—Alyssa, Elias, and Eliot—to discuss their experiences at Camp Klotty Pine. Set in Wisconsin, this unique summer camp caters to children with bleeding disorders. It offers them a safe space to enjoy traditional camp activities like swimming, archery, and fishing while providing essential education on managing their conditions. Alyssa, Elias, and Eliot share their heartwarming stories, from overcoming homesickness to forming lifelong friendships with others with similar bleeding disorders.

Alyssa Myrie is a devoted mother whose two sons, Elias and Eliot, attend Camp Klotty Pine. With years of experience managing her children’s bleeding disorders, Alyssa brings a rich perspective on the challenges and triumphs of parenting in such unique circumstances. Her insights are invaluable for other parents contemplating sending their children to bleeding disorder-specific camps.

“Don’t let your fear hold your kids back fromexperiencing something amazing.” – Alyssa Myrie

Today on Beyond the Bleeds:

Resources Mentioned:

Camp Klotty Pine

Looking for practical tips, expert advice, and a sense of community while living with or supporting someone with a bleeding disorder?

Subscribe to Beyond the Bleeds, the podcast that explores life with hemophilia, von Willebrand disease, and other rare conditions. Hosted by Heather Hansen and John Mazzariello, we bring you real stories, expert insights, and heartfelt conversations designed to help you navigate life Beyond the Bleeds.

Apple | Spotify | iHeart | Amazon Music | Stitcher | Pandora | Deezer

Join the Celebration!

The Hemophilia Outreach Center invites you to a special Open House event!

When: March 26th, 5:00 – 7:00 PM

Where: Expanded Green Bay Clinic, 2060 Bellevue Street

What’s in store?

                  •               Hear from our CEO at 6:00 PM about our exciting strides forward.

                  •               Tour our new, state-of-the-art facilities.

                  •               Enjoy delicious hors d’oeuvres and a captivating historical slideshow.

This event is open to everyone—we can’t wait to celebrate with you!

Don’t forget to RSVP at hemophiliaoutreach.org to claim your exclusive HOC gift.

Let’s grow together—see you there!

The post Facing Fears and Finding Friendship at Camp Klotty Pine with Alyssa, Eliot, and Elias Myrie appeared first on Hemophilia Outreach Center.

Today on Beyond the Bleeds, John and I welcome Peggy Maier, an extraordinary nurse and co-founder of the Hemophilia Outreach Center (HOC) in Green Bay, Wisconsin. We delve into Peggy’s inspirational journey, the founding of HOC, and her undying commitment to helping those with bleeding disorders. Peggy shares incredible anecdotes from her decades-long career and discusses the evolution of hemophilia care, from grassroots efforts to pioneering advancements like gene therapy.

Peggy Maier, R.N., is a trailblazer in hemophilia care. With an impressive career spanning multiple decades, Peggy co-founded the Hemophilia Outreach Center, transforming it from a small, volunteer-driven initiative into a comprehensive care facility. Peggy’s dedication has positively impacted countless lives, making her an enduring figure in the hemophilia community.

“It’s been a patient-driven clinic from the very beginning, and it still is.” ~ Peggy Maier

Today on Beyond the Bleeds:

Resources Mentioned:

Great Lakes Hemophilia Foundationhttps://www.glhf.org

Bellin Health:https://www.bellin.org

Hemophilia Outreach Center:https://www.hocgb.org

Looking for practical tips, expert advice, and a sense of community while living with or supporting someone with a bleeding disorder?

Subscribe to Beyond the Bleeds, the podcast that explores life with hemophilia, von Willebrand disease, and other rare conditions. Hosted by Heather Hansen and John Mazzariello, we bring you real stories, expert insights, and heartfelt conversations designed to help you navigate life Beyond the Bleeds.

Apple | Spotify | iHeart | Amazon Music | Stitcher | Pandora | Deezer

Join the Celebration!

The Hemophilia Outreach Center invites you to a special Open House event!

When: March 26th, 5:00 – 7:00 PM

Where: Expanded Green Bay Clinic, 2060 Bellevue Street

What’s in store?

                  •               Hear from our CEO at 6:00 PM about our exciting strides forward.

                  •               Tour our new, state-of-the-art facilities.

                  •               Enjoy delicious hors d’oeuvres and a captivating historical slideshow.

This event is open to everyone—we can’t wait to celebrate with you!

Don’t forget to RSVP at hemophiliaoutreach.org to claim your exclusive HOC gift.

Let’s grow together—see you there!

The post Building the Foundation of Hemophilia Care in Green Bay with Co-Founder Peggy Maier appeared first on Hemophilia Outreach Center.

Today on Beyond the Bleeds, John and Heather welcome Jamison Buxton, CEO of the Hemophilia Outreach Center in Green Bay, Wisconsin, to discuss his journey from a parent of a child with hemophilia to leading an organization dedicated to supporting those with bleeding disorders. Jamison shares his personal experiences, the center’s growth, and the importance of community and comprehensive care for individuals and families managing hemophilia.

Jamison Buxton became deeply involved in the hemophilia community after his son was diagnosed with hemophilia B in 2003. His commitment led him to join the board of directors in 2012, and by 2016, he assumed the CEO role. Under his leadership, the center has expanded significantly, serving an even larger patient population and providing crucial support and resources to those affected by bleeding disorders.

“I wanted to ensure that patients and families had the same care and services that I was offered in raising my son.” ~ Jamison Buxton

Today on Beyond the Bleeds:

Guest Contact Information:

Jamison Buxton: https://hemophiliaoutreach.org/contact-us

Resources Mentioned:

Hemophilia Outreach Center: https://hemophiliaoutreach.org

CDC Hemophilia Treatment Center Directory: https://www.cdc.gov/ncbddd/hemophilia/HTC.html

Looking for practical tips, expert advice, and a sense of community while living with or supporting someone with a bleeding disorder?

Subscribe to Beyond the Bleeds, the podcast that explores life with hemophilia, von Willebrand disease, and other rare conditions. Hosted by Heather Hansen and John Mazzariello, we bring you real stories, expert insights, and heartfelt conversations designed to help you navigate life Beyond the Bleeds.

Apple | Spotify | iHeart | Amazon Music | Stitcher | Pandora | Deezer

Join the Celebration!

The Hemophilia Outreach Center invites you to a special Open House event!

When: March 26th, 5:00 – 7:00 PM

Where: Expanded Green Bay Clinic, 2060 Bellevue Street

What’s in store?

                  •               Hear from our CEO at 6:00 PM about our exciting strides forward.

                  •               Tour our new, state-of-the-art facilities.

                  •               Enjoy delicious hors d’oeuvres and a captivating historical slideshow.

This event is open to everyone—we can’t wait to celebrate with you!

Don’t forget to RSVP at hemophiliaoutreach.org to claim your exclusive HOC gift.

Let’s grow together—see you there!

The post From Parent to CEO: Jamison Buxton’s Hemophilia Journey and Leadership appeared first on Hemophilia Outreach Center.

Welcome to Beyond the Bleeds! In this very first episode, John and I are excited to introduce ourselves and lay the foundation for a community centered around life with bleeding disorders. Whether you're managing hemophilia, von Willebrand disease, or any rare bleeding condition, this space is for you. We'll dive into personal stories, medical insights, and the latest in treatment advancements, fostering an environment where you feel heard and supported. Join us as we walk you through our mission to make life with bleeding disorders not just manageable, but powerful.

"Inspired Stories of resilience and hope can make a world of difference when living with a bleeding disorder." ~John Mazzariello

“A community where you feel heard, understood, and empowered is a crucial part of managing bleeding disorders.” ~Heather Hansen

Today on Beyond the Bleeds:

·     Understanding that living with a bleeding disorder often means overcoming unique physical and emotional challenges.

·     Connecting with others who share similar experiences can provide crucial support.

·     Ongoing advancements in medical research are continually improving the quality of life for those with bleeding disorders.

·     Access to updated treatment options and professional advice is key to effective management.

·     Stories of resilience inspire hope and remind us that we can lead powerful lives.

·     Managing a bleeding disorder involves navigating healthcare systems, which can be complex and daunting.

·     Practical tips and resources can significantly aid in day-to-day management.

·     Our primary goal is to cultivate a sense of community and empowerment for all listeners.

About your hosts of Beyond the Bleeds:

Heather Hansen

Program/Communications Coordinator

Heather joined HOC as the Program/Communications Coordinator in July 2023. With a bachelor’s degree in social work from UW-Green Bay, she brings over 20 years of experience in social work, particularly in the HIV/AIDS community and foster care/adoption. Heather has extensive experience in program development and communications, including social media and newsletters.

Heather lives near Lake Michigan with her children and two Boxer dogs, Gypsy and Boston. In her free time, Heather enjoys reading, traveling, and kayaking. As a cohost of "Beyond the Bleeds," she’s excited to bring new education and fun to the HOC community.

John B. Mazzariello LPN

Research Coordinator

A former International Certified Arborist, John moved to Wisconsin in 2005 from the Pacific Northwest and began his nursing career shortly thereafter. He has been a lab technician and Research Coordinator with The Hemophilia Outreach Center since 2016. Outside of the clinic, John plays guitar with several local music groups and hosts a YouTube channel focused on sports card and memorabilia collecting.

Resources Mentioned:

Hemophilia Outreach: https://hemophiliaoutreach.org

Stay tuned, subscribe, and join us as we explore the many facets of life with bleeding disorders, making sure that life beyond the bleeds is brighter and more empowered for all.