Menopause Uprising with Catherine O'Keeffe

Beyond the Surface: Vulva Health & Awareness


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Welcome back to season four of Menopause Uprising Podcast. Today our first guest is Clare Baumhauer.


In 2016, Clare was diagnosed with Lichen Sclerosus and stage 3 Vulval Cancer after being misdiagnosed for 38 years. With no prior knowledge of either condition, she became determined to raise awareness and advocate for better healthcare responses. Following 6 years of remission, their cancer returned in April 2023, along with dVIN (pre-cancer). After surgery, clear margins were obtained for the cancer, but not for the dVIN, leading to close monitoring.


As an advocate, she represents patients with Lichen Sclerosus and vulval cancer, serving on the UK Dermatology Clinical Trials Network and PAVE group. Clare co-founded Lichen Sclerosus & Vulval Cancer UK Awareness and runs the largest support group for these conditions with over 10,000 members. She also raises awareness through social media and contributes to online learning for healthcare professionals.


To learn more about Clare see HERE


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