By Cindy Lawson DeVore
5
77 ratings
The podcast currently has 15 episodes available.
Greetings, fellow patients & survivors!
In my last episode, I talked about my experience with reactive arthritis, a somewhat rare and unexpected side effect of BCG. With regained confidence in my stride, I discussed how I'm managing this debilitating problem with both diet and half dose treatments. I've had clear scopes, and things have been on the uptick!
But just as I was coming into the final stretch of BCG and thought I had everything in hand, a proverbial "wrench" was thrown at me 100 mph, only one week after my last recorded episode. It was a rare and unexpected turn of events that I did not see coming, and it nearly cost me my vision.
If you're just starting BCG, or you've already been on BCG for a while, you'll want to take a listen to this episode. It was several weeks after my 15th treatment that the rare and unexpected immuno-response set in. A shocker, for sure.
Grab a cup of coffee, and settle in to learn a piece of information not often discussed on this journey we all share.
Wishing you all peace, health and happiness in the days ahead.
- Cindy
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Links:
Bilateral Uveitis After Intravesical BCG Immunotherapy for Bladder Carcinoma - https://bjo.bmj.com/content/86/6/706
Complications of Intravesical BCG Immunotherapy for Bladder Cancer - https://pubs.rsna.org/doi/10.1148/rg.2019180014
Bilateral Panuveitis Following Intravesical BCG Immunotherapy for Bladder Carcinoma - https://pubmed.ncbi.nlm.nih.gov/20662661/
Managing Adverse Events of BCG Therapy - https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4630183/
Clinical Spectrum of Complications Induced by Intravesical Immunotherapy BCG for Bladder Cancer - https://pubmed.ncbi.nlm.nih.gov/30984262/
My web site - https://bladdercancertalk.com
Special thanks to ValleyGreenNaturals.com for sponsoring this podcast of Bladder Cancer Patient-to-Patient and for making their fantastic, clean-ingredient personal care products available at a discount to our listeners! Use Promo Code "Healthy" for 15% off your first order.
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Disclaimer: THIS PODCAST IS NOT INTENDED TO BE A MEDICAL ALTERNATIVE FOR PHYSICIAN CARE, NOR TO DIAGNOSE, TREAT, CURE OR PREVENT ANY ILLNESS OR DISEASE. ALWAYS CONSULT WITH A PHYSICIAN FOR PROFESSIONAL MEDICAL ADVICE.
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Search: bladder cancer, Complications from BCG Immunotherapy, plant-based diet, bladder cancer treatment, BCG, urology, bladder cancer support, bladder cancer in women, side effects of BCG, vegan diet and cancer, treatments for bladder cancer, bladder tumor recurrence, early diagnosis of bladder cancer, managing side effects of BCG, reactive arthritis, Uveitis, Scleritis
Hey Everyone! If you're starting BCG treatments, or you've already been on BCG for a while, you'll want to listen to this episode. I was cruising through my treatments until, shortly after treatment #9, I began to experience joint pain. After treatment #12, let's just say things got downright debilitating. In this episode, I discuss the BCG SWOG schedule, common side effects following treatments... and the not-so-common side effects that I experienced. The good news is, I've discovered a pretty effective way of managing these problems, which I share with you in this episode. As promised, the links I've mentioned in this episode are listed below.
Wishing you all peace, health and happiness in the days ahead!
- Cindy
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Links:
Documentary - "Eating You Alive" - https://www.youtube.com/watch?v=gMdSUB-Lbp8
Documentary - "What The Health" - https://www.youtube.com/watch?v=ZsFM6CfH0k0 - Also available on Netflix
Book - "How Not To Die" by Michael Greger - https://a.co/d/i6cHRYa
Book - "How Not To Die Cookbook" by Michael Greger - https://a.co/d/2ePl1H2
Helpful Website - NutritionFacts.org
Interesting Podcast - The Exam Room by The Physician's Committee for Responsible Medicine - https://www.youtube.com/c/PhysiciansCommittee
My web site - https://bladdercancertalk.com
Special thanks to ValleyGreenNaturals.com for sponsoring this podcast of Bladder Cancer Patient-to-Patient and for making their fantastic, clean-ingredient personal care products available at a discount to our listeners! Use Promo Code "Healthy" for 15% off your first order.
****************************************************************
Disclaimer: THIS PODCAST IS NOT INTENDED TO BE A MEDICAL ALTERNATIVE FOR PHYSICIAN CARE, NOR TO DIAGNOSE, TREAT, CURE OR PREVENT ANY ILLNESS OR DISEASE. ALWAYS CONSULT WITH A PHYSICIAN FOR PROFESSIONAL MEDICAL ADVICE.
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#bladdercancer #bcg #BCG #bladdercancerawareness #bladdercancertreatment #urology #bladdercancersymptoms #bladdercancersupport #bluelightcystoscopy #bladdercancersupport #cancerpatient #bcgsideeffects #cancerpodcast #kickcancer #cancersucks #patientadvocacy #cancerresearch #BCAN #plantbaseddiet #vegan #livelonger #healthydiet #wholefooddiet #plantbasedcancerdiet #survivorship #reactivearthritis
Search: bladder cancer, plant-based diet, bladder cancer treatment, BCG, urology, bladder cancer support, bladder cancer in women, side effects of BCG, vegan diet and cancer, treatments for bladder cancer, bladder tumor recurrence, early diagnosis of bladder cancer, managing side effects of BCG, reactive arthritis
Those of us with bladder cancer have all faced the dilemma of telling our friends and loved ones about our diagnosis. In my case, it took 3 1/2 years for me to venture out of my cancer closet. But when I did, I discovered something really great.
In this podcast episode, I'll talk about the difficulties I experienced in coming to terms with my own diagnosis and the challenges I faced in concealing my condition from others for quite some time. It wasn't until I realized that there's more uneasiness and anxiety in hiding my disease than there is in being open about it that my situation became less complicated, and in time... even rewarding.
As promised, the links I mentioned in this episode are listed below...
Wishing you peace, health and happiness!
Cindy
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Bladder Cancer Advocacy Network - BCAN.org
Inspire Bladder Cancer Support Group & Discussion Community
BCAN Survivor-to-Survivor Program
Bladder Cancer Summit for Patients & Families - Sep 30 to Oct 1, 2022
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Please join my "Sharing is Caring" campaign to share a story from your bladder cancer journey. You can leave me a voice mail by recording it on this link: https://anchor.fm/cindy-lawson8/message Or just send me an email at [email protected]. Be sure to include some contact information in your voice mail or email so that I can reach out to you. Sharing your story with other bladder cancer patients is a great way to support each other on this journey that we all travel together.
Special thanks to ValleyGreenNaturals.com for sponsoring this episode of Bladder Cancer Patient-to-Patient and for making their fantastic, clean-ingredient personal care products available at a discount to our listeners! Use Promo Code "Healthy" for 15% off your first order! Just visit ValleyGreenNaturals.com.
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Disclaimer: THIS PODCAST IS NOT INTENDED TO BE A MEDICAL ALTERNATIVE FOR PHYSICIAN CARE, NOR TO DIAGNOSE, TREAT, CURE OR PREVENT ANY ILLNESS OR DISEASE. ALWAYS CONSULT WITH A PHYSICIAN FOR PROFESSIONAL MEDICAL ADVICE.
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#bladdercancer #bladdercancerawareness #bladdercancertreatment #urology #bladdercancersymptoms #bladdercancersupport #cancerpatient #cancerpodcast #kickcancer #cancersucks #patientadvocacy #cancerresearch #survivorship #BCAN
Search: bladder cancer, bladder cancer symptoms, bladder cancer awareness, bladder cancer treatment, diagnosing bladder cancer, urology, bladder cancer support, cancer patient, cancer podcast, kick cancer, cancer sucks, cancer closet, patient advocacy, cancer research, survivorship, signs of bladder cancer, symptoms of bladder cancer, symptoms of bladder cancer in women, causes of bladder cancer in women, smoking and bladder cancer, treatment for bladder cancer, telling your loved ones you have cancer
Having symptoms that scream "Something is amiss down there?"
It's Bladder Cancer Awareness Month, and I'm here to ask you... no, beg you... no, plead with you to GO GET CHECKED!
Cancer is a scary word. And no one wants to be a member of its club. But this podcast is for those who may be experiencing "strange goings-on" in their nether regions, and they're worried it could be something serious.
In this podcast, I'll go over the typical symptoms of bladder cancer, as well as the tools used to determine a diagnosis and the path forward.
On a positive note, Bladder Cancer is not a death sentence. There are many excellent treatments available for all stages of this disease, and there are many real super-docs out there who are ready to help you as a warrior and survivor.
Please join my "Sharing is Caring" campaign to share a story from your bladder cancer journey. You can leave me a voice mail by recording it on this link: https://anchor.fm/cindy-lawson8/message Or just send me an email at [email protected]. Be sure to include some contact information in your voice mail or email so that I can reach out to you. Sharing your story with other bladder cancer patients is a great way to support each other on this journey that we all travel together.
Special thanks to ValleyGreenNaturals.com for sponsoring this episode of Bladder Cancer Patient-to-Patient and for making their fantastic, clean-ingredient personal care products available at a discount to our listeners! Use Promo Code "Healthy" for 15% off your first order! Just visit ValleyGreenNaturals.com.
Thanks so much for listening! Wishing you happiness and good health in the days ahead,
Cindy
BladderCancerTalk.com
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Disclaimer: THIS PODCAST IS NOT INTENDED TO BE A MEDICAL ALTERNATIVE FOR PHYSICIAN CARE, NOR TO DIAGNOSE, TREAT, CURE OR PREVENT ANY ILLNESS OR DISEASE. ALWAYS CONSULT WITH A PHYSICIAN FOR PROFESSIONAL MEDICAL ADVICE.
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#bladdercancer #bladdercancerawareness #bladdercancertreatment #urology #bladdercancersymptoms #bladdercancersupport #cancerpatient #cancerpodcast #kickcancer #cancersucks #patientadvocacy #cancerresearch #survivorship #BCAN
Search: bladder cancer, bladder cancer symptoms, bladder cancer awareness, bladder cancer treatment, diagnosing bladder cancer, urology, bladder cancer support, cancer patient, cancer podcast, kick cancer, cancer sucks, patient advocacy, cancer research, survivorship, signs of bladder cancer, symptoms of bladder cancer, symptoms of bladder cancer in women, causes of bladder cancer in women, smoking and bladder cancer, treatment for bladder cancer
Yikes, cancer is costly!
Not exactly one of my more upbeat podcasts, but financial toxicity is real, and cancer patients need solutions. In this podcast, I talk about the enormous costs involved in treating and managing bladder cancer; my own out-of-pocket expenses in just four years, and how dealing with the financial strains of ongoing care can take its toll on the mental and physical health and well-being of cancer patients.
On a positive note, there are tools available to help with navigating the complex and costly cancer-highway, as well as some very good folks who are working on ways to ease the burden of expense, while continuing to provide quality care at all socio-economic levels.
In this podcast, I mention TriageCancer.org, a site with a wealth of information and webinars on the financial and legal aspects of dealing with cancer, as well as the Bladder Cancer Advocacy Network, BCAN.org, whose tireless efforts in providing information to bladder cancer patients is unparalleled worldwide. Please be sure to register for BCAN's free "Ask the Experts" virtual event on May 25th at 7 pm. One of the featured physicians in this event is Dr. Sumeet Bhanvadia, Assistant Professor of Urology at the University of Southern California's Keck School of Medicine. Dr. Bhanvadia was a winner of BCAN's Young Investigators Award for her study focusing on assessing the extent of financial toxicity experienced by bladder cancer patients across a broad range of race, ethnicity, insurance type and socio-economic status. Register here for this free webinar!
Please join my "Sharing is Caring" campaign to share a story from your bladder cancer journey. You can leave me a voice mail by recording it on this link: https://anchor.fm/cindy-lawson8/message Or just send me an email at [email protected]. Be sure to include some contact information in your voice mail or email so that I can reach out to you. Sharing your story with other bladder cancer patients is a great way to support each other on this journey that we all travel together.
Special thanks to ValleyGreenNaturals.com for sponsoring this episode of Bladder Cancer Patient-to-Patient and for making their fantastic, clean-ingredient personal care products available at a discount to our listeners! Use Promo Code "Healthy" for 15% off your first order! Just visit ValleyGreenNaturals.com.
******************* Disclaimer: THIS PODCAST IS NOT INTENDED TO BE A MEDICAL ALTERNATIVE FOR PHYSICIAN CARE, NOR TO DIAGNOSE, TREAT, CURE OR PREVENT ANY ILLNESS OR DISEASE. ALWAYS CONSULT WITH A PHYSICIAN FOR PROFESSIONAL MEDICAL ADVICE.
Thanks so much for listening! Wishing you happiness and good health in the days ahead,
Cindy
******************* #financialtoxicity #bladdercancer #bladdercancerawareness #bladdercancertreatment #urology #bladdercancersupport #cancerpatient #cancerpodcast #kickcancer #cancersucks #patientadvocacy #cancerresearch #survivorship #BCAN #cancercost
Search: Financial Toxicity, bladder cancer, bladder cancer awareness, bladder cancer treatment, urology, bladder cancer support, cancer patient, cancer podcast, kick cancer, cancer sucks, patient advocacy, cancer research, survivorship, BCAN, cancer cost, medical bills,
Hey everyone. Welcome to Bladder Cancer Patient-to-Patient.
May I just mention that I am NOT a fan of diagnostics? Even with something as simple as blood work, I'm just a big chicken! Honestly, I think it's the fear of the "unknown" that gets to me. And when it's a test that has anything to do with "cancer," I'm sure you'll agree that can be upsetting enough.
So when I learned -- before even being officially diagnosed with bladder cancer -- that I had to get a CT scan with contrast... well, let's just say my anxiety really kicked in. In this episode, I'll share with you my experience in having a CT Urogram; the reason why your doctor orders it, and what to expect when you go to have it done.
If you'd like to read more about Urograms and radiological testing for urologic cancers, check out this page on BCAN.org. It's a terrific site that's full of valuable information for bladder cancer patients like us. https://bcan.org/facing-bladder-cancer/bladder-cancer-diagnosing-and-monitoring/
Please join my "Sharing is Caring" campaign to share a story from your bladder cancer journey! You can leave me a voice mail by recording it on this link: https://anchor.fm/cindy-lawson8/message
Or just send me an email at [email protected]. Be sure to include some contact information in your voice mail or email so that I can reach out to you. Sharing your story with other bladder cancer patients is a great way to support each other on this journey that we all travel together.
Thanks also to Valley Green Naturals for sponsoring this podcast and making their fantastic, clean-ingredient personal care products available at a discount to our listeners! Use Promo Code "Healthy" for 15% off your first order! Just visit ValleyGreenNaturals.com.
*******************
Disclaimer: THIS PODCAST IS NOT INTENDED TO BE A MEDICAL ALTERNATIVE FOR PHYSICIAN CARE, NOR TO DIAGNOSE, TREAT, CURE OR PREVENT ANY ILLNESS OR DISEASE. ALWAYS CONSULT WITH A PHYSICIAN FOR PROFESSIONAL MEDICAL ADVICE.
#bladdercancer #bladdercancerawareness #bladdercancertreatment #urology #urogram #CTscan #bladdercancersupport #cancerpatient #cancerpodcast #TURBT #BCG #kickcancer #cancersucks #patientadvocacy #cancerresearch #immunotherapy #survivorship #BCAN
Search: bladder cancer, bladder cancer symptoms, bladder cancer awareness, bladder cancer treatment, diagnosing bladder cancer, urology, bladder cancer support, cancer patient, cancer podcast, kick cancer, cancer sucks, patient advocacy, cancer research, survivorship, signs of bladder cancer, symptoms of bladder cancer, symptoms of bladder cancer in women, causes of bladder cancer in women, smoking and bladder cancer, treatment for bladder cancer
So your doctor saw a tumor in your bladder... What's next?
Hey everyone. In this episode, I talk about my very first cystoscopy when my doctor determined that I had a tumor growing in my bladder... and what happened from there.
Trans-Urethral Resection of Bladder Tumor (TURBT) surgery doesn't have to be scary if you know what to expect. This procedure is the first step in determining the path forward on your bladder cancer journey. I hope that by sharing my own experience with TURBT surgery, I can help to alleviate any fears or anxiety about this commonly performed procedure.
In this podcast, I also mention the Bladder Cancer Advocacy Network (www.BCAN.org). It's a fantastic site with a wealth of information, videos and podcasts about bladder cancer diagnoses, grades, stages, surgeries, treatments... the works! Check it out for more information on TURBTs.
If you'd like to share your story on my Bladder Cancer Patient-to-Patient podcast, I would love to hear from you! We all are on a very unique journey. Whether you are newly diagnosed, or you've been walking this path for a while, there are others who may benefit or find comfort in what you have to share. Please leave me a voice mail message (with your contact information) by clicking on my personal VM link:
https://anchor.fm/cindy-lawson8/message
Take care, and be well.
Cindy
This podcast is sponsored by ValleyGreenNaturals.com. Many cancer patients seek to eliminate harmful chemicals from their daily diet and personal care routine. From facial care, to deodorants, to soap, bug repellents and all types of body care, Valley Green Naturals' head-to-toe personal care products are handcrafted in small batches, with clean and natural ingredients. Check out their offerings at www.ValleyGreenNaturals.com.
Disclaimer: THIS PODCAST IS NOT INTENDED TO BE A MEDICAL ALTERNATIVE FOR PHYSICIAN CARE, NOR TO DIAGNOSE, TREAT, CURE OR PREVENT ANY ILLNESS OR DISEASE. ALWAYS CONSULT WITH A PHYSICIAN FOR PROFESSIONAL MEDICAL ADVICE.
#bladdercancer #bladdercancerawareness #bladdercancertreatment #urology #bladdercancersupport #cancerpatient #cancerpodcast #TURBT #BCG #kickcancer #cancersucks #patientadvocacy #cancerresearch #immunotherapy #survivorship
Search: bladder cancer, bladder cancer symptoms, bladder cancer awareness, bladder cancer treatment, diagnosing bladder cancer, urology, bladder cancer support, cancer patient, cancer podcast, kick cancer, cancer sucks, patient advocacy, cancer research, survivorship, signs of bladder cancer, symptoms of bladder cancer, symptoms of bladder cancer in women, causes of bladder cancer in women, smoking and bladder cancer, treatment for bladder cancer
Hey everyone,
I'm sharing some very positive news in this podcast! After 4 1/2 years with multiple recurrences and 9 TURBT surgeries, I finally started on BCG.
In this podcast, I'll explain why there was a delay with this important treatment and what my experience has been since starting it last fall.
If you're on the fence about beginning BCG treatments, you'll want to hear about my personal experience in this podcast. I also discuss blue light cystoscopy and how it's not only becoming a standard of care among many urologists, but an absolute necessity in my book for those with multiple tumor recurrence or carcinoma in situ.
So grab a cup of coffee and settle in as we learn from each other and travel this journey together!
Wishing wellness for us all,
Cindy
P.S. If you'd like to be my guest on Bladder Cancer Patient-to-Patient, please click the voice mail link under one of my podcasts. You can leave me a message about your experiences, diagnosis, emotions, treatments... whatever you'd like to share with others. Interviews are done by phone and the magic of technology! So please reach out and leave me your contact information. I'd love to chat and maybe include your experience in an upcoming episode.
Disclaimer: THIS PODCAST IS NOT INTENDED TO BE A MEDICAL ALTERNATIVE FOR PHYSICIAN CARE, NOR TO DIAGNOSE, TREAT, CURE OR PREVENT ANY ILLNESS OR DISEASE. ALWAYS CONSULT WITH A PHYSICIAN FOR PROFESSIONAL MEDICAL ADVICE.
#bladdercancer #bladdercancerawareness #bladdercancertreatment #urology #bladdercancersupport #cancerpatient #cancerpodcast #TURBT #BCG #kickcancer #cancersucks #patientadvocacy #cancerresearch #immunotherapy #survivorship
Search: BCG intravesical treatment for bladder cancer, bacillus Calmette-Guerin, SWOG schedule, BCG treatments, benefits of BCG for bladder cancer, what is BCG
The podcast currently has 15 episodes available.