Brain Inflamed

What's a family contract?

Do we really need one? 

The what's and hows... in this episode. 

BEFORE you listen go to www.braininflamedpodcast.com

SUBSCRIBE- we'll send you the template described in this episode as a big thank you! 

In this episode I share our story, "our" as in my personal story and journey with my daughter through AE. The interview was conducted by WCNC's Savannah Levins and originally published on her podcast "Unbroken" - you can find her podcast anywhere you listen to podcasts. I highly recommend it... many inspiring stories! 

The term Integrative medicine gets used a lot these days, but what is it?

In this episode I interview Dr. Ana-Maria Temple- traditional pediatrician turned Integrative...why? You'll have to listen. 

She shares top ways we can help ALL children live their most healthy lives, even if we don't have access to an Integrative Pediatrician. 

Dr. Temple's Practice: https://www.integrativehealthcarolinas.com/

More information on EMF's https://ultimatehealthpodcast.com/nicolas-pineault-emfs/

I highly recommend this book: https://www.amazon.com/Non-Tinfoil-Guide-EMFs-Stupid-Technology-ebook/dp/B078KKQW6D

"Boundaries and Caregiving" 

The two can co-exist- in this episode I discuss why boundaries are important, dispel a few myths, and talk specifically about how "boundaries" can look a little different when your child is struggling. 

In this episode I quote from the book "Boundaries" by Dr. Henry Cloud & Dr. John Townsend 

In this episode: practical advice for parents and caregivers who want to help their kids talk to peers about their "Difference."

This applies to really... any difference. 

A link to the conference mentioned it the episode 

http://encephalitisconference.pandasnetwork.org/?fbclid=IwAR0KmUmmzHaO2WOEl8CA1XXh2r0Hn0pkNhDKR-MRg5kuxOs5tB4eMhKKPR8

In this episode I discuss the when's who's and how's around discussing your child in the educational setting. 

Mentioned in this episode:

The Holiday Docket- by The Lazy Genius www.store.thelazygeniuscollective.com 

$22 until September 5th. 

"Everything You Need to Know about IEP's"

https://braininflamed.podbean.com/e/everything-you-need-to-know-about-ieps/

PANDAS and PANS in the School Settings- A Handbook for Educators

available on Amazon 

"School Refusal" the misnomer assigned to the manifestation of post infections brain inflammation (PANDAS, PANS, AE). 

What it is, and is not. 

When do you push a for school attendance and when do you put healing first. 

MENTIONED in this episode:

Rogers Behavioral Health:

https://rogersbh.org/locations/oconomowoc?utm_source=local&utm_medium=organic&utm_campaign=gmb

SUWS of the Carolinas:

https://www.suwscarolinas.com/

TRAILS:

https://trailscarolina.com/

In this episode I discuss how to make the holidays a little happier:

I break the holidays down into three areas that cover:

Developing a mindset 

Setting boundaries

managing social media 

Establishing priorities

Creating a plan with your family 

Reflecting an evaluating 

Resources I reference in this episode:

Boundaries- by. Henry Could and John Townsend 

The Lazy Genius Podcast: The Lazy Genius Podcast

.

In this episode I interview the film makers who created "Stolen Childhood"- a documentary on PANDAS. 

What happens when familiar signs of mental illness - rapid-onset OCD, tics, hyperactivity - are misdiagnosed?

This is the unfortunate reality for children living with the auto-immune disease known as PANDAS. Many families who turn to medical professionals for answers are often forced into a long journey filled with misdiagnoses and a lack of awareness. "Stolen Childhood" takes an in-depth look at​ the lives of these families, the impact of PANDAS, and the consequences of medical misdiagnosis.

Attend the premiere or attend via web-streaming: 

https://www.stolenchildhood.ca/tickets?fbclid=IwAR3SszBs9unq_-7yEQ6bbU2bIS9AnsplApx-2ctkB7L48I3_D5D-eyIgS7U

Learn more about the film HERE

Thank you to Erin Kenney for providing the excellent information below:

And to our "Brain Inflamed Podcast Chat" Facebook Group for providing the "additional resources"

You can also find us:

on Instgram Brain_inflamed_podcast

on Pinterest Brain inflamed podcast 

on iTunes: Brain inflamed podcast 

You might need and IEP for your child if….

IEP eligibility: if the condition adversely affects the student’s ability to progress in the general education curriculum without special education support and services in the areas of (e.g. processing time to organize information, social emotional, self-regulation, coping strategies, self-advocacy, and (academic areas – math, reading, writing that might be adversely affected during a flare.)

Example Accommodations for an PANDAS/PANS/AE Student:

Reduce shorten assignments (content mastery is shown)

Break down/chunk assignments into smaller parts

Preferential seating (where depends on the student’s individual needs)

Clear concise directions

Check for understanding

Allow extra processing time for responses

Extra time on assignments/assessments

Separate setting for assignments

Regular check in with case manager/psychologist

Access to safe person/place

Calming breaks as needed

Student is not penalized with respect to grades when school is missed due to illness/flare

Ability to leave classroom temporarily for self-regulation of tics/anxiety

No penalty for non-participation in classroom due to tics/anxiety

Allow for stress relieving/tic controlling items in class (e.g. stress ball, gum)

Option to move to another seat in the room if a peer nearby is sick

Use of personal computer

Consultation by case manager/counselor/psychologist to general education teacher

Use of pre-arranged signal to teacher when student needs to leave class due to anxiety/tic

Example IEP goal areas (note goals must be written in a specific way to be measurable, these are not goals per se, just goal areas/examples):

Communicate needs to teacher when there is an anxiety causing situation

Develop strategies to use/practice strategies in mock scenario/be able to utilize strategies to calm (e.g. need a break, deep breath, replace negative thought with positive thought)

After an episode, return to regulated state by using regulation strategies

Regulation – identify negative to positive word choices when dealing with a difficult situation, determine what alternative word choices are available, utilize positive word choices in practice

Reframe a negative or fixed mindset to growth mindset in a mock scenario when reflecting on real life situations

Work towards utilizing a growth mindset in real life situations at school (generalization)

Solve grade level math word problems by determining the function needed to solve and the steps needed to solve the problem correctly

Demonstrate appropriate self-advocacy by utilizing check-in appointments with counselor/case manager

Other Resources

PANDAS and PANS In The School Setting

https://www.amazon.com/PANDAS-PANS-School-Settings-Educators/dp/1849057443/ref=sr_1_1?ie=UTF8&qid=1539449649&sr=8-1&keywords=pandas+and+pans+in+school+settings

PANS CANS and Automobiles- Comprehensive Reference

https://www.amazon.com/PANS-CANS-Automobiles-Comprehensive-Reference/dp/1506901875/ref=sr_1_1?ie=UTF8&qid=1539449722&sr=8-1&keywords=pans+cans+and+automobiles

Educational-Advocacy-Consulting:

https://www.facebook.com/Educational-Advocacy-Consulting-456788274435531/?fref=gc&dti=286945812079505&hc_location=ufi

http://www.peatc.org/

Difference between IEP’s and 504’s

https://www.understood.org/en/school-learning/special-services/504-plan/the-difference-between-ieps-and-504-plans