B's in a Pod

In this episode, Becky chats with HTC nurse practitioner and camp supervisor, Tracey Gaslin, about getting the most from an HTC visit, Tracey's experience as a health care provider in clinics and camps, and the impact that camp has on the hemophilia community.

Becky sits down with Dr Patrick Fogarty, a medical affairs colleague from Pfizer, to discuss advances in modern hemophilia treatment. Together, they talk about how far hemophilia treatment has come, the challenges in making advances in treatment, and what may be coming down the line as hemophilia management continues to evolve. The 2 also chat about the importance of involving the patient in a discussion about their treatment.

In this episode, hematologist Dr Robert Sidonio visits with Becky to talk about a topic of mutual interest: women with bleeding disorders. The pair discuss defining different kinds of testing, comprehensive care for women in particular, and much more.

Pat Torrey from GutMonkey chats with Becky about adventure education, the types of programs available, the lessons he has helped impart on attendees, and what the hemophilia community has taught him in this episode. Becky also contributes the changes that she has seen in the community from the adventure programs. Disclosure: Pfizer sponsors GutMonkey's Leading Edge program.

Pediatric hematologist Dr Stacy Croteau chats with Becky about hemophilia care in early childhood, helping caregivers and their children with hemophilia transition to independence, and how pediatric care for hemophilia has evolved and continues to do so.

Becky chats with former HTC social worker Ed Kuebler about the importance of mental and emotional health. The pair talk about how hemophilia has changed over the years that Ed has been in the community, how care changes as people with hemophilia move through life stages, and what it means to "share your burden."

Physical therapist, Bruno Steiner, is Becky's guest, and he shares his experience and expertise in this episode. Bruno chats about using musculoskeletal ultrasound (MSKUS) and other techniques as part of a physical therapy program for people with hemophilia, and Becky contributes with insights from her daughter's experience with MSKUS.

Social Worker Kathaleen Schnur visits with Becky to talk about the role she plays at her Hemophilia Treatment Center (HTC). Kathaleen describes the ways social workers can help families with hemophilia navigate many different aspects of life with a bleeding condition.

Pfizer employee Dr. Terry Anderson stops by to talk about her research in hemophilia around pain and depression, and shares some of the findings in the recent studies to which she contributed. Becky and Dr. Anderson discuss the perception and management of pain and the role of caregivers in supporting people with hemophilia.

Guest host Matt sits down with Jill, a caregiver, and Paul and Shelby, who have hemophilia B, to talk about events in the hemophilia community. Recorded on site at The Coalition for Hemophilia B Symposium, the group discusses how their involvement in the community has evolved over the years and what they would recommend for new families who are looking to get involved at local and national events.