ProAging Podcast

Building Dementia-Friendly Communities


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In a world where dementia affects millions, the narrative often leans toward loss and isolation. But what if communities could rewrite that story—one where people living with dementia not only survive but thrive, connected and included? That's the heart of the Dementia Friendly Nevada (DFNV) initiative, and few voices capture its urgency and hope like Casey Venturini, director of DFNV and a passionate advocate shaped by personal experience.In an interview with Steve Gurney of the Positive Aging Community, Venturini shared his journey from family care partner to national leader in dementia inclusion. His story isn't just inspirational; it's a call to action for communities everywhere. From Personal Loss to Professional PurposeVenturini's entry into this work was deeply personal. Growing up in a multigenerational household, he was as close to his grandparents as his parents. At age 11, his grandfather was diagnosed with Lewy body dementia, which significantly impacted his final years. The diagnosis felt like a door slamming shut. The community seemed to withdraw, leaving his grandfather isolated in a slow, tragic decline—mirroring the Hollywood tropes of inevitable goodbye. This revelation transformed his view. Today, his grandmother lives with dementia in New York, supported by a network that embraces possibility over pity. "She's not suffering with dementia. She is living her life with dementia," Venturini explained. It's a stark contrast to his grandfather's experience, underscoring how knowledge and community support can turn challenge into chapters of growth.This grassroots approach recognizes that dementia-friendly work isn't one-size-fits-all. Each community brings unique strengths and needs, making the movement a "collaborative learning effort" under the national umbrella of Dementia Friendly America, which has thrived for nearly a decade.The Core Values: An Ethical Roadmap for InclusionAt the soul of DFNV are eight shared values, collaboratively crafted with people living with dementia, care partners, and professionals. Presented to the Nevada Legislature in 2017 by someone living with dementia, these principles frame dementia-friendly efforts as "citizenship work"—calling for full societal engagement, not just dementia-related programming.People can live well with dementia. Hope is foundational; without it, opportunities for well-being vanish.Partnering with people living with dementia and honoring each individual's lived experience opens a world of possibilities. People with lived experience of dementia are the true experts, in this work, co-leading—not just participating in—dementia-friendly and inclusive initiatives.Recognizing, validating, and responding to all forms of expression as meaningful communication supports well-being. Communication evolves; assuming intent behind every word and action builds deeper connections.When supporting a person living with dementia, we should always strive to see the world from their perspective.People living with dementia have the right to freedom. Diagnosis doesn't strip away autonomy; communities must safeguard choice.People living with dementia can grow and thrive. A diagnosis marks a new chapter, a comma not a period, and a life with dementia can be a life of meaning, growth, and joy with the right support. Proactive supports and services reduce the need for reactive interventions. Upstream conversations across sectors prevent crises and cut costs.A dementia-inclusive community is a strong community; everyone needs community, and communities need everyone. Inclusion benefits all, fostering connected, resilient societies.Venturini's work emphasizes collaboration, echoing a key model from Dupuis, Gillies, Carson, et al. (2012): the "Authentic Partnerships" framework. For more information visit https://dfamerica.org/

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ProAging PodcastBy Positive Aging Community - Steve Gurney

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