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'Patients in my position finish the main hospital treatments then you are left with very little support and many patients feel uncomfortable and not certain how to pick their lives up...'
It's a feeling many cancer patients experience. They know the NHS is extraordinary. The skill, compassion, and relentless work have transformed their lives and restored hope. But...it's when that life-saving treatment has ended that they can feel lost. Now what do I do, who do I talk to, what is my life now...who can help me?
A charity in Lincolnshire, Every-One, has a huge portfolio of help across all kinds of health issues, and for cancer, it runs a Cancer Co-production Group. The quote you read at the start is from one group member. Those who had cancer in the recent past share their highly personal experiences with health professionals. They tell the story from the receiving end and give their perspective.
And it works. They're shaping future cancer care policy. The Chief Executive of Every-One is Vicky Thomson...
CLICK to find out more about the work of Every-One
#cancercandoone #CancerResearchUK #cancerfundraiser #cancerrun #cancerawareness #louthrunforlife
Music: #Uppbeat : License code: OV4JXO0USXKVGKIK
(Tulips Charity)
#cancercandoone #CancerResearchUK #cancerfundraiser #cancerrun #cancerawareness #louthrunforlife
Music: #Uppbeat : License code: OV4JXO0USXKVGKIK
1,000 + runners, huge crowds and another record-breaker from this national flagship fundraising group in a tiny town. 18 years ago £3,000 was raised - this time around £30,000 plus gift aid. It's June 30, 2024, 7 am and the team has been there for quite a while already...
Music: #Uppbeat : License code: OV4JXO0USXKVGKIK
If you're showing signs of prostate cancer, it's probably too late. That's a stark fact.
The current test for men isn't 100% accurate as it is but it's by far the best option.
I had mine a couple of months ago which is ridiculous. Stupid. Because men over 50 in the UK are entitled to the test and I'm a long way the other side of that.
I just kept forgetting to go to my GP. NO excuses. So I was lucky. The snag is even some doctors are unsure about all this subject.
And, of course, if you are positive but caught in time, the lifelong effects shape your every day, as you'll hear now ...
#prostatecancer #prostatetest #louthrunforlife #cancercandoone
Music: #Uppbeat : License code: OV4JXO0USXKVGKIK
Louise wasn't prepared to sit back and do nothing. After her double mastectomy, she became a well-known campaigner fighting the stigma faced by women in a similar situation.
Music: #Uppbeat : License code: OV4JXO0USXKVGKIK
Nipples and areolas. For some women who lost nipples and the areola during reconstruction following breast cancer, it can be devastating. In some cases, they no longer feel like a woman.
You can also hear an episode on this podcast from Louise Butcher, The Topless Runner, who opted not to have reconstruction and she strongly supports that choice. But if you do, then what?
Katie Harrington has been a successful tattooist for many years. She knew of nipple and areola tattoos but knew there was probably more to this than she imagined. And she was right. She's back from an intensive course, had her first client and in some ways, it was almost starting out all over again. The stakes are high...
Music: #Uppbeat : License code: OV4JXO0USXKVGKIK
We spoke to NHS Patient Advocate Anna Mamwell before about long-term patient health during and after treatment. It's something she knows all about. Anna also had leukaemia. In hospital for 6 months. And she was terrified.
Music: #Uppbeat : License code: OV4JXO0USXKVGKIK
It will take laws and social change combined to save lives. That's the view of Gower Tan, a Fundraiser and volunteer Campaigns Ambassador with Cancer Research UK, and more recently employee in the Campaigns team.
He was a long-term smoker and it took many years of trying to finally quit.
He says smokers can't necessarily be solely blamed for smoking. They're stuck with little or no choice and a highly addictive substance while an industry generates huge profits.
Music: #Uppbeat : License code: OV4JXO0USXKVGKIK
Are we doing enough for long-term patient health during and after treatment? And for carers..? NHS Patient Advocate Anna Mamwell, in remission herself, isn't so sure...
Music: #Uppbeat : License code: OV4JXO0USXKVGKIK
Evenings and weekends. We join the volunteers collecting £3,500 of household items in a couple of hours. And the long haul of encouraging locals to sign up for their flagship charity summer run, on windy days in April. If they didn't do it, no funds for cancer research.
Music: #Uppbeat : License code: OV4JXO0USXKVGKIK
From the publisher's feed
Treatment ends. The appointments stop. Then what? Conversations about the part of cancer nobody plans for: going back to work, the money, the friends who drift off, the 3am fear that it's back. Former BBC producer Mike Kinnaird talks to clinicians, researchers and people who've lived it, from the UK to Finland to Switzerland, about where the support runs out once treatment ends, and who's answerable for that.
#CancerCanDoOne Podcast #AfterTheBell