It isn't just about being grateful for "surviving" cancer. We deserve more than this. It's about living quality lives. This includes thriving in our intimate relationships and sex lives, whether 25 or 70 years old.

Shifts in feelings, attitudes and abilities in sexuality and intimacy can be challenging. For some, sex lives can change dramatically after cancer.

When it comes to going there, there are few and far between who does it like Dr. Anne Katz. We are thrilled to introduce you to the award-winning author, registered nurse and counsellor.

Things get a bit spicy on this episode. So, if talking about sex, emotional connection, and masturbation makes you uncomfortable...listen in :). Let's get comfortable. Expect real stories, medical insights, and practical advice for navigating intimacy and sexuality after cancer.

Whether you're a researcher, practitioner, patient or survivor - we're excited for you to get to know the human behind her decades worth of internationally renowned works and wisdom on sexuality x cancer. We discuss vital intersections of healthcare, sexuality and communication, clinician-patient dialogue, and addressing intimacy issues in medical practice. We explore the complex emotional and physical aspects of intimacy, fertility, and relationships for young adult cancer survivors.

There are many things we can do to have healthy sex lives after cancer. So, let's get our groove back, shall we? And by back, this might mean - different. Not worse - but different. And in some cases, even better than it ever was.

Hit that play button. Meet Dr. Anne Katz!

(00:35)-An introduction

(04:20)-Why direct-to-patient matters

(06:20)-Practitioners must reflect

(07:11)-It all started with....drawing penises?

(09:35)-"It didn't feel like I was making a difference"

(12:36)-"Some clinicians are afraid to say 'sex life' "

(14:45)-What patients need to know about sexuality and cancer

(16:56)-Sex Therapists VS. Sexual Medicine

(19:26)-Do nurses just do it better?

(20:42)-Who & When of bringing up the sexual side effects

(28:22)-"I've never told him that when he touches me there, it feels awful"

(30:42)-"The only thing that gets me through....is when he can't see the tears coming down my face"

(32:42)-Reaching a point of desperation?

(33:15)-"Just be glad you're alive"

(33:46)-He ran out of the room!

(36:46)-Moments that stay with Dr. Katz

(38:15)-The reality of Fertility Costs

(40:44)-I can't have children. Who is going to want me?

(41:17)-Q: Post-treatment libido & numbness

(48:22)-Spontaneous Desire, Accelerators & Breaks

(53:20)-Q: It's painful to watch her go through metastatic breast cancer. How could I bring sex up?

(54:17)-The Bell Ringing thing

(54:56)-Partners that leave

(56:08)-Q: My wig and makeup through physical intimacy

(1:02:34)-Q: When and how do I tell my dates?

--

Learn more about Dr. Anne Katz ⁠⁠here⁠⁠ and her new book here.

What did you resonate with? Leave us a comment or give us a rating!

Share this episode and subscribe to CANDIDLY WITH CAROLYN everywhere podcasts are found.

Have a question for an episode? Email us ⁠⁠⁠⁠⁠⁠⁠⁠⁠[email protected]⁠⁠⁠⁠⁠⁠⁠

Follow @candidlythepod ⁠⁠⁠⁠⁠⁠⁠⁠on Instagram⁠⁠⁠⁠ ⁠⁠⁠⁠

⁠⁠⁠⁠⁠⁠⁠www.candidlythepod.com⁠⁠⁠⁠⁠⁠⁠⁠

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The views and opinions expressed do not represent the opinions of any podcast partners - but rather solely of the podcast author, or individuals participating in the podcast at the very moment of recording. We are all human and are constantly learning and evolving.  What is shared in these conversations is for consideration only. This podcast must not be in place of official professional research, medical advice, mental health advice, mental health counselling or therapy, or as imparting any health care recommendations at all. While those on the podcast might have lived and professional experiences with cancer, it is important to seek support from health professionals who can take the time to assess and analyze your specific circumstance.

You asked. She answers.

Carolyn is happily passing the mic to others with CANDIDLY - guiding you through a variety of very human cancer-related experiences, and tackling your questions with guests. But some of you sneakily found a way to send in questions for her. She - finally - got around to answering them. Enjoy this personal reflection guided by what you wanted to know.

For Carolyn, March 19th carries some weight. It's the day she was awoken in her hospital bed at Toronto General Hospital by a gentle nudge and the sight of the attending doctor and his posse of bright eyed bushy tailed residents staring down at her.

Before she could rub her eyes and sit upright, she heard was "Blah bleh bleh bleh. Lymphoma Cancer". She was 28 years old, in her prime, and it was this very moment when her very active life was abruptly halted. * Cue tire screeching sound effect *

12 years and a great deal of intentional efforts to process and reflect - she likes to take a moment every year on the day to acknowledge the event that ended up changing everything for her. This year, she added answering your Ask Me Anything (AMA) questions to her 03/19 rituals. Well....that was the plan, at least. Ooops!

(00:00)-An intro to this episode.

(00:36)-Things didn't go according to plan. March was...a month.

(01:39)-It's a remarkable thing.

(02:19)-The complex relationship with hospitals (and University Health Network - UHN).

(04:29)-Q: Have you processed everything?

(06:17)-Q: What's the craziest thing someone said?

(10:20)-Q: What did cancer change for you?

(15:37)-Q: What's your favourite CwC interview?

(19:15)-Q: What was the toughest part about being diagnosed with cancer?

(24:42)-Q: Is there anything you would you have done differently?

(29:22)-Q: How did you move on?

(32:30)-Q: How would you have liked to be supported by those closest to you other than the platitude of "Get well soon" and "You got this!"?

(36:45)-Q: How did sex and intimacy change for you?

(39:10)-Thank you & Wrap up.

--

What did you resonate with? We'd love to know! Leave us a comment or give us a rating! Share this with someone in your life who might also appreciate this episode.

Subscribe to CANDIDLY WITH CAROLYN on Apple, Spotify, everywhere podcasts are found.

Have a question for a future episode? Email us at ⁠⁠⁠⁠⁠⁠⁠[email protected]⁠⁠⁠⁠⁠

Follow @candidlythepod ⁠⁠⁠⁠⁠⁠on Instagram⁠⁠⁠⁠ ⁠⁠

⁠⁠⁠⁠⁠www.candidlythepod.com⁠⁠⁠⁠⁠⁠

__

The views and opinions expressed do not represent the opinions of any podcast partners - but rather solely of the podcast author, or individuals participating in the podcast at the very moment of recording. We are all human and are constantly learning and evolving.  What is shared in these conversations is for consideration only. This podcast must not be in place of official professional research, medical advice, mental health advice, mental health counselling or therapy, or as imparting any health care recommendations at all. While those on the podcast might have lived and professional experiences with cancer, it is important to seek support from health professionals who can take the time to assess and analyze your specific circumstance.

It was 2013 and Chris Ho was in his early-30s living a normal young professional life. It was an exciting time! And then….he was hit with testicular cancer. A profound story that includes some loss - including that of both of his testicles. It turns out, Chris gained far more and it's been life changing.

Chris and Carolyn share parallels in their lives - and beyond being disrupted by The Big C while building out their lives in their young adulthood. From how this life event changed their inner wirings, a comfort with the topic of mortality, being a child of Vietnamese refugees who fled from their war-torn motherland with parents who survived what most of our worst nightmares are made of, and how cultural differences, influences and evolving generational values play a role in how they move through life today.

You’ll get to learn about the moments leading up to Chris’ testicular diagnosis and surgeries, how being faced with what's often regarded as a 'gendered' cancer changed his relationship with masculinity, how this carries through in raising two boys, and how all of this might have contributed to some generational healing. We also address your submitted questions!

We're happy to introduce you to Chris through this candid conversation! Go ahead and hit that play button. 

(00:43)-Welcome to this convo & an intro to Chris.

(04:10)-The beginning. "I had no health issues. Life was good"

(05:00)-"I felt a little lump"

(07:50)-"I actually didn't tell my fiance"

(09:40)-"I didn't want to worry my parents"

(10:30)-"If you keep this in there, you're going to die"

(13:40)-Cancer shows up again. This time, in another way.

(14:15)-Chris sees dad cry for the first time - ever.

(17:00)-"We don't talk about death enough"

(18:30)-Chris' wife has some big news to share.

(20:20)-"It still gets me...all the time". Chris' sees dad cry for the second time.

(21:10)-What's shared in final days. The courage it takes.

(27:57)-Generational & cultural differences about manhood.

(30:18)-Chris and his wife want to try for another kid but....

(32:25)-Mental Health as the biggest struggle. Without testicles what does manhood even look like?

(36:10)-What we could do a better job with when it comes to Testicular Cancer.

(42:15)-Fatherhood through their boyhood.

(46:20)-Immigrant Parents vs. First Generation.

(49:10)-How much do Chris' kids know about cancer and death?

(52:05)-Question from Lillian.

(59:10)-Question from Niraj.

(1:05:35)-Question from Christoff.

(1:09:50)-Question from Alexander.

(1:15:40)-What about caregivers?

--

Learn more about Chris Ho ⁠here⁠. We're thrilled to know that he is offering guidance to future leaders - or those who might want to level up their leadership skills - through his conscious leadership practice.

What did you resonate with? We'd love to know! Leave us a comment or give us a rating! Share this with someone in your life who might also appreciate this episode.

Subscribe to CANDIDLY WITH CAROLYN on Apple, Spotify, everywhere podcasts are found.

Have a question for a future episode? Email us at ⁠⁠⁠⁠⁠⁠⁠⁠[email protected]⁠⁠⁠⁠⁠⁠

Follow @candidlythepod ⁠⁠⁠⁠⁠⁠⁠on Instagram⁠⁠⁠⁠ ⁠⁠⁠

⁠⁠⁠⁠⁠⁠www.candidlythepod.com⁠⁠⁠⁠⁠⁠⁠

__

The views and opinions expressed do not represent the opinions of any podcast partners - but rather solely of the podcast author, or individuals participating in the podcast at the very moment of recording. We are all human and are constantly learning and evolving.  What is shared in these conversations is for consideration only. This podcast must not be in place of official professional research, medical advice, mental health advice, mental health counselling or therapy, or as imparting any health care recommendations at all. While those on the podcast might have lived and professional experiences with cancer, it is important to seek support from health professionals who can take the time to assess and analyze your specific circumstance.

A live on-location recording from Calgary, we welcome Dr. Cedric Tremblay on to the pod!

Freshly after sharing the stage at a researcher's conference, Carolyn and Cedric plop down on a set of comfortable armchairs to chat about people with lived cancer experiences, the burden of childhood cancers, lessons learned as a once upon a time young-er researcher, leveraging cross-border 🇦🇺 citizenship and experience to fuel momentum in 🇨🇦 Canada, and what might be missing in evidence-based investigatory cancer research efforts.

Aside from playing lead roles at ⁠CancerCare Manitoba⁠, ⁠Children’s Hospital Research Institute of Manitoba (CHRIM)⁠, and ⁠Pediatric Research in Oncology in Manitoba: Innovation, Science, Excellence (PROMISE)⁠, Dr. Cedric Tremblay is fostering the next generation of immunology researchers through the ⁠University of Manitoba⁠ and is committed to incorporating PWLLE's (People With Lived and Living Experience) in his pediatric leukemia research.

For those with lived experiences of childhood cancers, Dr. Tremblay's unwavering commitment might leave you feeling hopeful. For emerging scientists, Dr. Tremblay offers up some life advice that you'll want to consider. For his mentors, students and mentees - this might feel like a love letter to you.

Enjoy this candid conversation with Dr. Cedric Tremblay!

(01:20)-Welcome to our hangout!

(07:19)-"There's no way we can do pediatric research centered in Canada"

(09:09)-The burden of pediatric leukemia.

(10:12)-Engaging PWLLE (People With Lived and Living Experience).

(11:18)-Cedric's journey that led him to do what he does today.

(15:20)-The importance of collaboration and cross-border experience and insight.

(17:45)-Manitoba's superpower for longitudinal studies.

(22:00)-Our Indigenous population is important and the data is missing.

(23:25)-Some populations might be traumatized.

(24:55)-It's a long-game. How Cedric keeps going on challenging days.

(27:58)-Cedric reflects on his ECR experiences and lessons learned.

(33:50)-ECR workshop sessions that stood out for Cedric.

(35:57)-Indigenization in cancer research.

(36:25)-What Cedric hopes to see more of in cancer research.

(39:00)-Knocking down silos.

(42:31)-Oysters & Farewells

What did you resonate with? We'd love to know! Leave us a comment or give us a rating! Share this with someone in your life who might also appreciate this episode.

Subscribe to CANDIDLY WITH CAROLYN on Apple, Spotify, everywhere podcasts are found.

Have a question for a future episode? Email us at ⁠⁠⁠⁠⁠⁠⁠⁠[email protected]⁠⁠⁠⁠⁠⁠

Follow @candidlythepod ⁠⁠⁠⁠⁠⁠⁠on Instagram⁠⁠⁠⁠ ⁠⁠⁠

⁠⁠⁠⁠⁠⁠www.candidlythepod.com⁠⁠⁠⁠⁠⁠⁠

__

The views and opinions expressed do not represent the opinions of any podcast partners - but rather solely of the podcast author, or individuals participating in the podcast at the very moment of recording. We are all human and are constantly learning and evolving.  What is shared in these conversations is for consideration only. This podcast must not be in place of official professional research, medical advice, mental health advice, mental health counselling or therapy, or as imparting any health care recommendations at all. While those on the podcast might have lived and professional experiences with cancer, it is important to seek support from health professionals who can take the time to assess and analyze your specific circumstance.

In 2019, Sam Megarry went to the hospital thinking that she had appendicitis. She had no idea what she was about to encounter around the bend - a Stage 3 colorectal cancer and Lynch syndrome diagnosis. Her life was suddenly flipped upside down at 28 years old.

Carolyn and Sam met in group therapy at Gilda's Club Toronto where a small crew of young adults in their 20s and 30s at different stages and phases of their cancer experiences met on a regular basis. Even through some seriously frigid icy snow storms, they still met week-to-week. To some, it was the only time they felt truly heard, seen and understood in their every day lives.

As Carolyn and Sam continued through their 30s - they went on to experience more life changes. A few years later, Carolyn reaches out to Sam to invite her on to the pod. They catch up and candidly chat about going from therapy icks to making it a career, how cancer might have impacted their relationship with change itself, questionable wellness narratives, cancer as depicted and perceived in Hollywood, and of course - they answer your questions!

We're so pumped to hang out with you. Go ahead and hit that play button. 

(01:23)- Welcome to this conversation & an intro to Sam Megarry

(05:30)-Sam's first experience with going to therapy

(07:10)-Wellness, working in it, and the industry

(10:40)-Sam's relationship with therapy now

(14:30)-Our relationship with change itself

(17:00)-So...about that pandemic. How it was like from our seat in the house

(22:40)-The challenges of finding the right therapist as a persons experiencing cancer

(26:20)-When Sam encountered a therapist that was not the right fit

(27:50)-A therapists' lived experiences with cancer

(38:10)-Beyond the body. What about the rest of us?

(41:47)-Question From Pareetah

(45:41)-When they think you're being an alarmist

(47:40)-Question From Madison

(51:30)-Parenthood & genetic considerations

(57:10)-Question from Gideon

(59:35)-"But...you look and seem so healthy!"

(1:00:45)-When Chadwick Boseman passed

(1:07:57)-Question from Kim

(1:08:51)-When they go in for a hug

(1:11:27)-Question from Bree

(1:11:47)-Cancer plots in film and tv

(1:15:00)-Parting words from Sam

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Learn more about Sam Megarry ⁠here⁠. We’re thrilled to know that she's making her way through the professional psychotherapy world.

What did you resonate with? We'd love to know! Leave us a comment or give us a rating! Share this with someone in your life who might also appreciate this episode.

Subscribe to CANDIDLY WITH CAROLYN on Apple, Spotify, everywhere podcasts are found.

Have a question for a future episode? Email us at ⁠⁠⁠⁠⁠⁠⁠⁠[email protected]⁠⁠⁠⁠⁠⁠

Follow @candidlythepod ⁠⁠⁠⁠⁠⁠⁠on Instagram⁠⁠⁠⁠ ⁠⁠⁠

⁠⁠⁠⁠⁠⁠www.candidlythepod.com⁠⁠⁠⁠⁠⁠⁠

__

The views and opinions expressed do not represent the opinions of any podcast partners - but rather solely of the podcast author, or individuals participating in the podcast at the very moment of recording. We are all human and are constantly learning and evolving.  What is shared in these conversations is for consideration only. This podcast must not be in place of official professional research, medical advice, mental health advice, mental health counselling or therapy, or as imparting any health care recommendations at all. While those on the podcast might have lived and professional experiences with cancer, it is important to seek support from health professionals who can take the time to assess and analyze your specific circumstance.

We are back to our regular programming answering your questions survivor-on-survivor style - this time with Aisha McClellan! Aisha was diagnosed with cervical cancer just as she was about to turn 32 years old. Shortly after, she was told that she could have 3 months to live. Spoiler alert: years later, she joins us on the pod - and we'd love for you to meet her!

Carolyn and Aisha met and hit it off while travelling for work. Months later, while back in Toronto - Carolyn had a touching and tearful encounter with a stranger. It inspired her to appreciate the lived experiences of parenthood through cancer and reach out to Aisha via voicenote to go there with all of you.

Carolyn and Aisha catch up and get in to it. From how getting cancer as a young mother changed her approach and outlook on parenting, shifts in identity, what's missing from the conversation, and of course they answer your - super thoughtful, might we add - questions! Parent-to-Parent, Friend-to-Friend, Survivor-to-Survivor. Hypewoman-to-you!

Hit that play button while you're whipping up some magic in the kitchen, doing a deep clean, on a drive or stroll, or during your night time wind down routine. Either way, come get cozy with us and hang out with Carolyn and Aisha. Enjoy!

(01:55)- Welcome To This Conversation

(02:35)-About Aisha McClellan and Her Diagnosis

(05:55)-A New Normal For Aisha?

(10:20)-How Cancer Might Have Shifted Aisha's Approach To Parenting

(12:40)-"Are My Kids - Too - Dependant On Me?" I Want To Be There For Them While I'm Here

(13:35)-Processing The Diagnosis While Offering Life Teachings To Her Kids

(15:25)-That Profound Moment With Her Daughter That Catalyzed Some Shifts

(17:30)-Kids Have Sophisticated Wiring

(18:45)-What Might Have Better Prepared Aisha For This

(21:50)-Why Aisha Took A Beat Before Doing Advocacy Work

(23:50)-What's Missing From The Conversation

(27:40)-Surprising & Standout Lessons Learned

(31:10)-Question From Kent

(42:00)-Question From Huma

(54:40)-Question From Janelle

(1:05:15)-Parting Message From Aisha

--

Follow Aisha on TikTok at https://www.tiktok.com/@aishatheadvocate

What did you resonate with? We'd love to know! Leave us a comment or give us a rating! Share this with someone in your life who might also appreciate this episode.

Subscribe to CANDIDLY WITH CAROLYN on Apple, Spotify, everywhere podcasts are found.

Have a question for a future episode? Email us at ⁠⁠⁠⁠⁠⁠⁠⁠[email protected]⁠⁠⁠⁠⁠⁠

Follow @candidlythepod ⁠⁠⁠⁠⁠⁠⁠on Instagram⁠⁠⁠⁠ ⁠⁠⁠

⁠⁠⁠⁠⁠⁠www.candidlythepod.com⁠⁠⁠⁠⁠⁠⁠

__

The views and opinions expressed do not represent the opinions of any podcast partners - but rather solely of the podcast author, or individuals participating in the podcast at the very moment of recording. We are all human and are constantly learning and evolving.  What is shared in these conversations is for consideration only. This podcast must not be in place of official professional research, medical advice, mental health advice, mental health counselling or therapy, or as imparting any health care recommendations at all. While those on the podcast might have lived and professional experiences with cancer, it is important to seek support from health professionals who can take the time to assess and analyze your specific circumstance.

Welcome to another special edition Live from AACR 2025 Chicago episode of Candidly with Carolyn! This time with Katie Coleman, software engineer, author of Too Young For Cancer and Rare Cancer Patient Advocate. Facing a cancer diagnosis especially as a young adult can be very lonely and isolating as it is. What happens when we are diagnosed with 1 of only 10 known stage 4 cases in the entire world - where information and resources are so limited?

Carolyn and Katie find a nook at the conference convention centre to chit chat, try to ignore hearing nearby event staff getting sassy with one another, discuss how their cancer experiences and facing mortality might have inspired how they move through life today, advocacy post-the Apple Cider Vinegar Netflix series, building systems that empower patients and clinicians alike, and of course - share laughs along the way. Come hang out with us. Enjoy!

Learn more about Katie Coleman's advocacy works at https://www.katiekickscancer.com/ and Contexlia at https://www.contexlia.com/

(01:08)-Welcome to this conversation! Come hang out with us.

(04:04)-Advocates tend to have this fierceness - an observation from Dr. Emil Lou

(07:00)-When advocate fierceness is nurtured by community

(09:13)-What inspired Katie to build Contexlia?

(11:50)-Advocates have a vested interest

(12:20)-When Katie and others showed up for another patient

(14:30)-Relentlessly moving the ball forward as advocates

(15:26)-Advocates with lived cancer experiences make great builders of things

(18:11)-You have stage 4, is there....a succession plan?

(21:50)-The biggest post-cancer challenge for Katie

(23:17)-The Apple Cider Vinegar Netflix series

(24:50)-What can sometimes feel icky

(27:17)-We're not - that - special.

(27:42)-The approach to data information management for Contexlia

(29:40)-The power of context and sentiment

(31:35)-Creating solutions that stick

(33:00)-A case for demonstrating what advocates know

(33:40)-Challenges with keeping track of medical records

(34:49)-"The Medical Assistant went from stressed to so excited"

(37:40)-"I got dismissed a lot in the medical system"

(38:50)-We have front and centre seats to breaks in the system

(40:30)-When we can see the passion re-emerge from clinicians

__

What did you resonate with? We'd love to know! Leave us a comment or give us a rating! Share this with someone in your life who might also appreciate this episode.

Subscribe to CANDIDLY WITH CAROLYN on Apple, Spotify, everywhere podcasts are found.

Have a question for a future episode? Email us at ⁠⁠⁠⁠⁠⁠⁠⁠[email protected]⁠⁠⁠⁠⁠⁠

Follow @candidlythepod ⁠⁠⁠⁠⁠⁠⁠on Instagram⁠⁠⁠⁠ ⁠⁠⁠

⁠⁠⁠⁠⁠⁠www.candidlythepod.com⁠⁠⁠⁠⁠⁠⁠

__

The views and opinions expressed do not represent the opinions of any podcast partners - but rather solely of the podcast author, or individuals participating in the podcast at the very moment of recording. We are all human and are constantly learning and evolving.  What is shared in these conversations is for consideration only. This podcast must not be in place of official professional research, medical advice, mental health advice, mental health counselling or therapy, or as imparting any health care recommendations at all. While those on the podcast might have lived and professional experiences with cancer, it is important to seek support from health professionals who can take the time to assess and analyze your specific circumstance.

Live from Chicago, we've got another special edition instalment for you! This time, we welcome Dr. Fei-Fei Liu on to the pod. Aside from treating breast cancer patients at Princess Margaret Hospital and fostering the next generation of scientists and clinicians through the University of Toronto - she is setting the sails for Canada's investigative priorities as Scientific Director of Institute of Cancer Research (ICR).

While tens of thousands of American Association for Cancer Research Annual Meeting #AACR25 conference delegates excitedly move to and from meeting rooms, Carolyn and Dr. Liu find a place to sit down, take a breather and chat about both professional and personal life topics - and share some high-fives.

Hit that play button and hang out with us as Carolyn and Dr. Liu delve into pressing issues surrounding cancer research, the increasing incidence of cancer - particularly among younger populations, and the importance of data. They go on to discuss collaborative efforts to acheive positive impact on public health, investing in mobilizing data intelligence, and how a framework for Canada might serve as a practical tool to support unified forward movement.

For emerging clinicans and scientists listening, Dr. Liu leaves you with some solid life advice that you'll want to consider!

(00:45)-Welcome To Our Hangout!

(03:35)-From Fei-Fei to Dr. Liu

(07:34)-Setting The Strategic Priorities For Canada

(08:30)-Early Detection & Risk Reduction

(10:04)-Improving Survivorship

(11:26)-Data Strategy & Advanced Analytics

(11:58)-A Unifying Framework For Canada

(12:43)-Longitudinal Cohorts

(13:20)-Environmental Data - And Stitching Together Data Sets

(14:10)-Who Might Be In The Best Position to Lead This Framework?

(14:50)-Health Data As A National Asset

(15:18)-Who's At The Table From The Start?

(16:31)-What Dr. Liu Is Looking To Learn More About

(18:15)-But It's Not Just Cancer...

(20:07)-Through The Rollercoasters, What keeps Dr. Liu Motivated?

(21:05)-Reflecting On The Smoking Cessation Campaign

(22:47)-The Perception Of Canadians

(24:10)-The Advice Dr. Liu Would Offer Up To The Young(er) Fei-Fei

(26:30)-High Fives!

______________________

Learn more about how progress in cancer control has led to a substantial number of cancer deaths avoided in Canada here

Follow ICR on LinkedIn

Find Dr. Liu on BlueSky

What did you resonate with? We'd love to know! Leave us a comment or give us a rating! Share this with someone in your life who might also appreciate this episode.

Subscribe to CANDIDLY WITH CAROLYN on Apple, Spotify, everywhere podcasts are found.

Have a question for a future episode? Email us at ⁠⁠⁠⁠⁠⁠⁠⁠[email protected]⁠⁠⁠⁠⁠⁠

Follow @candidlythepod ⁠⁠⁠⁠⁠⁠⁠on Instagram⁠⁠⁠⁠ ⁠⁠⁠

⁠⁠⁠⁠⁠⁠www.candidlythepod.com⁠⁠⁠⁠⁠⁠⁠

__

The views and opinions expressed do not represent the opinions of any podcast partners - but rather solely of the podcast author, or individuals participating in the podcast at the very moment of recording. We are all human and are constantly learning and evolving.  What is shared in these conversations is for consideration only. This podcast must not be in place of official professional research, medical advice, mental health advice, mental health counselling or therapy, or as imparting any health care recommendations at all. While those on the podcast might have lived and professional experiences with cancer, it is important to seek support from health professionals who can take the time to assess and analyze your specific circumstance.

Live from Chicago, join us for this special edition instalment of Candidly With Carolyn where we welcome Carmen Monge - Author, Researcher & Globe Trotting Cancer Patient Advocate on to the pod to hangout. They meet in the lobby of their hotel in Chicago and catch their breath after hurriedly getting ready from one conference event to another.

Pour yourself a cup of your favourite coffee, hit that play button and hang out with Carolyn and Carmen as they walk-and-talk about accessibility in cancer care, biases and blindspots in research design, delivery and communication, ethnicity, reclaiming and authoring our identities and patient-informed language around cancer.

(00:35)-Welcome To This Hangout!

(05:00)-Accessibility of New Treatments.

(06:34)-Collaboration. Let's Not Start From Scratch.

(07:48)-Cultural Considerations. The Seemingly Little Things Make A Difference.

(09:40)-Neurodiversity Is Often Overlooked.

(11:40)-The Less Visible Human-Factors.

(12:50)-Asia, Beyond India.

(14:20)-Biases In Research Leadership And Design.

(14:50)-I Grew Up Thinking I Was White. How Racism and Imperialism Can Impact Identity.

(16:35)-Admiring the LGBTQIA Community.

(21:10)-Who Authored? Who Got To Author? And Who Gets To, Moving Forward?

(23:33)-Patients Informing & Authoring Cancer Communications.

(25:10)-Are We Headed In The Right Direction?

(26:45)-"They Lost The Battle To Cancer" is....ick.

(29:40)-Can-Can And The Adventure of Ming Island.

(30:50)-Lets Get Better At Facing And Talking About Cancer.

______________________

Learn more about Carmen's children's book Can-Can and The Adventure of Ming Island ⁠here⁠.

What did you resonate with? We'd love to know! Leave us a comment or give us a rating! Share this with someone in your life who might also appreciate this episode.

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Have a question for a future episode? Email us at ⁠⁠⁠⁠⁠⁠⁠⁠[email protected]⁠⁠⁠⁠⁠⁠

Follow @candidlythepod ⁠⁠⁠⁠⁠⁠⁠on Instagram⁠⁠⁠⁠ ⁠⁠⁠

⁠⁠⁠⁠⁠⁠www.candidlythepod.com⁠⁠⁠⁠⁠⁠⁠

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The views and opinions expressed do not represent the opinions of any podcast partners - but rather solely of the podcast author, or individuals participating in the podcast at the very moment of recording. We are all human and are constantly learning and evolving.  What is shared in these conversations is for consideration only. This podcast must not be in place of official professional research, medical advice, mental health advice, mental health counselling or therapy, or as imparting any health care recommendations at all. While those on the podcast might have lived and professional experiences with cancer, it is important to seek support from health professionals who can take the time to assess and analyze your specific circumstance.

Carolyn welcomes Brooks Nelson and Yee Won Chong, filmmakers of Trans Dudes With Lady Cancer on to the pod. Join us for this survivors hangout as we talk about scenarios and circumstances that trans-masc and trans-femme individuals can face within the healthcare system with examples from Yee Won and Brooks' first-hand breast and ovarian cancer diagnosis experience, their 'whys' and goals behind the documentary, and answer your questions!

From knowledge gaps that exist in the public discord and in the healthcare system, identity disruption, examination room jitters, and complicated family dynamics - Carolyn, Brooks and Yee Won highlight themes of human-centred care, preventing past traumas from disrupting care and causing future harm, the power we have as patients and practitioners, and what advocating for ourselves and loved ones can look like.

Enjoy our conversation. As always, happy to have you with us!

(00:25)-Welcome To Our Hang Out!

(03:02)-Chosen Family

(04:44)-Creating the Film: 4 Goals and Motivations

(13:40)-Strains on Culturally Competent Practitioners, an example from Yee Won's experience

(17:20)-How Personal Biases From Practitioners Get In The Way, an example from Brooks' experience. "Can you just examine me?"

(19:30)-The Importance of Trust Healthcare Relationships

(20:44)-When Practitioners Advocate For Us

(22:00)-Not Everyone Has The Same Access

(22:40)-How Do We Become Better at Advocating for Ourselves?

(24:50)-"Stop Taking Testosterone (Hormone Replacement Therapy)"

(31:25)-What Yee Won and Brooks Learned From Their Unique Seat In The House Observing One Another Through Their Respective Experiences

(36:21)-A Confession from Brooks' Gynaecological Oncologist

(38:21)-When Clinicians Go To Bat For You

(40:25)-Knowledge Gaps, Myths, and Opportunities

(41:25)-When The "Early Detection" Messaging Is Not Enough

(42:10)-Getting Patients to "Yes"

(43:58)-Question from Sameer

(46:22)-The Issue With Gendered Messaging

(46:57)-That - IS - some BS

(47:40)-Question from Edith

(50:20)-Question from Evan

(53:55)-A Cheers To Life!

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Learn more about Trans Dudes With Lady Cancer at ⁠https://www.transdudeswithladycancer.org/

What did you resonate with? We'd love to know! Leave us a comment or give us a rating! Share this with someone in your life who might also appreciate this episode.

Subscribe to CANDIDLY WITH CAROLYN on Apple, Spotify, everywhere podcasts are found.

Have a question for a future episode? Email us at ⁠⁠⁠⁠⁠⁠⁠⁠[email protected]⁠⁠⁠⁠⁠⁠

Follow @candidlythepod ⁠⁠⁠⁠⁠⁠⁠on Instagram⁠⁠⁠⁠ ⁠⁠⁠

⁠⁠⁠⁠⁠⁠www.candidlythepod.com⁠⁠⁠⁠⁠⁠⁠

__

The views and opinions expressed do not represent the opinions of any podcast partners - but rather solely of the podcast author, or individuals participating in the podcast at the very moment of recording. We are all human and are constantly learning and evolving.  What is shared in these conversations is for consideration only. This podcast must not be in place of official professional research, medical advice, mental health advice, mental health counselling or therapy, or as imparting any health care recommendations at all. While those on the podcast might have lived and professional experiences with cancer, it is important to seek support from health professionals who can take the time to assess and analyze your specific circumstance.