When Brianne Grebil’s mother was diagnosed with Alzheimer’s at the age of 62, Brianne packed up and moved from LA back to northern Idaho to help care for her. Over the course of her mother’s illness, many of the moments Brianne dreaded the most ended up being the ones that shifted her understanding of love and what remains when we lose everything we knew to be true about the people in our lives. We talk about Brianne’s book, Love Doesn’t Care if You Forget: Lessons of Love From Alzheimer’s and Dementia, and the complexities of planning a memorial during the COVID-19 pandemic.    You can purchase Brianne’s book through Amazon, or get a signed copy from the Brianne’s Love and Dementia website. You can also connect with Brianne on Facebook or Instagram       

Ep. 163: Capital L Love - Caring For A Parent With Alzheimer's (Brianne Grebil)

Remember the last time you tried to talk about grief and suddenly everyone left the room? Grief Out Loud is opening up this often avoided conversation because grief is hard enough without having to go through it alone. We bring you a mix of personal stories, tips for supporting children, teens, and yourself, and interviews with bereavement professionals.  Platitude and cliché-free, we promise! Grief Out Loud is hosted by Jana DeCristofaro and produced by The Dougy Center for Grieving Children & Families in Portland, Oregon.

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Lisa Keefauver is a lot of things - she's a writer, speaker, educator, social worker, podcast host, mother, widow, and grief activist. She came to the last two titles when her personal experience of grieving for her husband Eric, who died of a brain tumor in 2011, intersected with her professional life as a clinician. At this intersection, Lisa realized just how grief illiterate the world is and how that illiteracy creates unnecessary suffering for those who are grieving. Lisa hosts the acclaimed podcast, Grief is a Sneaky Bitch and recently published her book, Grief is a Sneaky Bitch: An Uncensored Guide to Navigating Loss.    We discuss:  The gift of love from her husband Eric Living in the both/and of grief and life Being a mental health professional while grieving Navigating a breast cancer diagnosis in a medical system that failed her husband How we bring our full history into each new loss The "shoulds" that hassled Lisa The grief time warp Grief thieves - including the one in the mirror Lisa's go-to skill in her own grief The power of observation & being with grief as it is  Lisa Keefauver is a grief activist, speaker and author. She began her career as a social worker and narrative therapist in 2004. She expanded her activism in a variety of roles: clinical director, non-profit co-founder, clinical supervisor, facilitator of personal and professional growth and healing, and mentor. Lisa's wisdom and insights on grief are also embodied from her personal losses, including the death of her husband Eric in 2011.

How To Stop Shoulding Yourself - Lisa Keefauver & Grief Is A Sneaky Bitch

The Autism & Grief Project is a new online platform designed to help adults with autism navigate and cope with the complexities of grief arising from both death and non-death losses. Alex LaMorie, A.A.S is a member of the project's Advisory Board and brings his lived experience with both autism and grief to this work. Dr. Kenneth J. Doka, PhD, MDiv, brings years of both professional and personal grief knowledge to his role on the project's Development Team. The Autism & Grief Project is unique - just as grief and autism are unique - and the site provides information not only for adults with autism who are grieving, but also the people who are supporting them.  We discuss:  Parallels between the uniqueness of grief and the individual experience of autism What Alex found to be helpul and unhelpful in his grief Being open to different forms of communication and emotional expression Learning to ask for help The goals for the Autism & Grief Project What Alex and Dr. Doka learned from being part of the project  Alex D. LaMorie, A.A.S is an undergraduate student at the University of Maryland Global Campus and autism advocate. Alex's expressive grief artwork was recently featured in the textbook Superhero Grief: The Transformative Power of Loss (2021, Routledge). He serves as an advisor on the Hospice Foundation of America's Autism & Grief Project. In his spare time, he loves movies and TV shows as well as traveling to Comic Con and Anime conventions with his older sister. Alex also loves creative writing and spending time with his New York family so he can eat the world's best pizza and bagels! Kenneth J. Doka, PhD, MDiv, is Senior Vice President of Grief Programs at Hospice Foundation of America (HFA) and recipient of the 2019 Lifetime Achievement Award from the Association for Death Education and Counseling. He serves as editor of HFA’s Living with Grief® book series and its Journeys bereavement newsletter. He is a prolific author, editor, and lecturer; past president of the Association for Death Education and Counseling (ADEC); and a member and past chair of the International Work Group on Death, Dying, and Bereavement (IWG). In 2018, the IWG presented Doka with the Herman Feifel Award for outstanding achievement in thanatology. He received an award for Outstanding Contributions in the Field of Death Education from ADEC in 1998. Doka is an ordained Lutheran minister and a licensed mental health counselor in the state of New York. This episode is the second in our 2024 three-part series highlighting the voices of communities who have historically been underrepresented in the grief world. The series is part of an ongoing collaboration between Dougy Center and The New York Life Foundation. We are deeply grateful for New York Life Foundation's tireless support and advocacy for children and teens who are grieving.

Autism & Grief

Have you ever heard someone’s voice in your head and suddenly you're transported to a time and place when you were with them? This phenomenon is what Lissa Soep explores in Other People’s Words: Friendship, Loss, and the Conversations That Never End, her book about the intimacy of friendship and how words and language keep people with us, even after they die. After the deaths of her friends, Jonnie and Christine, Lissa found comfort in this idea of them living on through their words.   We discuss:  Lissa's friendships with Jonnie & Christine Grieving a sudden death vs one from a long-term illness The unique nature of friendships formed in our 20's How Jonnie & Christine's come back to Lissa through their words The Russian critic Mikhail Bahktain's concept of double voicing What Lissa's learned about how to support others who are grieving  Lissa Soep is a senior editor for audio at Vox Media and special projects producer and senior scholar-in-residence at YR Media. She has a PhD from Stanford, where she first started writing about Bakhtin.

The Intimacy Of Friendship - Lissa Soep & Other People's Words

Cristina Chipriano, LCSW, Dougy Center's Director of Equity & Community Outreach and Melinda Avila, MSW, CEO of OYEN Emotional Wellness Center, are committed to changing the landscape of grief support for Latino families. They bring personal and professional grief experiences to the work of ensuring that every Latino family has access to dual language grief support that honors their cultural values.    We discuss:  Cristina & Melinda's personal connection to this work Why it's important now, in 2024, to have this conversation What is unique about grief & grief support in the Latino community The concept of family in the Latino community  How grief challenges our sense of self and identity The ways people have been taught to suffer in silence How culture informs grief and grief informs culture Why it's critical for services to be truly bilingual The barriers to accessing services The first thing service providers should be thinking about when meeting with a Latino family Cristina & Melinda's hopes for the future of grief support for Latino families  This episode is the first in our 2024 three-part series highlighting the voices of communities who have historically been underrepresented in the grief world. The series is part of an ongoing collaboration between Dougy Center and The New York Life Foundation. We are deeply grateful for New York Life Foundation's tireless support and advocacy for children and teens who are grieving. 

Changing The Landscape Of Grief Support For Latino Families

We cannot separate grief from the context in which it occurs. This is true for Nicole Chung whose adopted parents died just two years apart in 2018 and 2020. The world of 2018 was very different than that of 2020. In 2018, Nicole and her mother could grieve for her father, together and in person. In 2020, Nicole was on the other side of the country, grieving for her mother in isolation during the early days of the pandemic. The other context that played a role in her parents' lives and their deaths is the structural inequality that exists in the U.S. economy and end of life care. Nicole chronicles all of this in her new memoir, A Living Remedy.  We discuss:  How hard it is to describe people and what they mean to us What it was like to be cut off from more traditional grief rituals during the pandemic Grieving an unexpected vs (more) expected death Learning to distinguish between guilt and regret How grounding her parents' deaths in a larger context helped alleviate some of her guilt The pressures Nicole felt to care for her parents as an only child in a working class family What it costs to die and grieve in the U.S. The unacknowledged grief of being a transracial adoptee Approaching the 4-year anniversary of her mother's death   Nicole Chung’s A Living Remedy was named a Notable Book of 2023 by The New York Times and a Best Book of the Year by over a dozen outlets, including Time, USA Today, Harper's Bazaar, Esquire, Electric Literature, and TODAY. Her 2018 debut, the national bestseller All You Can Ever Know, was a finalist for the National Book Critics Circle Award, a semifinalist for the PEN Open Book Award, a Barnes & Noble Discover Great New Writers selection, and an Indies Choice Honor Book. Chung’s writing has appeared in The New York Times Magazine, The Atlantic, Time, The Guardian, GQ, Slate, Vulture, and many other publications. Previously, she was digital editorial director at the independent publisher Catapult, where she helped lead its magazine to two National Magazine Awards; before that, she was the managing editor of The Toast and an editor at Hyphen magazine. In 2021, she was named to the Good Morning America AAPI Inspiration List honoring those “making Asian American history right now.” Born and raised in the Pacific Northwest, she now lives in the Washington, DC area.  

Ep. 163: Capital L Love - Caring For A Parent With Alzheimer's (Brianne Grebil)

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