In this episode we welcome three GBHI Fellows: guest host and filmmaker Michelle Memran, documentary photographer Alex Kornhuber, and social sciences academic Dr Sonata Mačiulskytė. Together they explore the ways in which caregiving, creativity, and change come together in the context of dementia.

Drawing on their experiences of supporting loved ones with dementia, they reflect on how these personal journeys have influenced their professional work and shaped their understanding of the disease. The discussion touches on the early signs of dementia, the transformation of relationships through caregiving, and the importance of early diagnosis.

The conversation also considers the significance of documenting caregiving experiences and the need to reshape the narrative around dementia. By sharing stories and creative perspectives, the guests highlight how shifting this narrative can foster greater awareness, empathy, and understanding.

In this episode:

• Caregiving is a deeply personal journey that shapes professional work.
• Recognising early signs of dementia can be challenging but crucial.
• Relationships with loved ones can transform through the caregiving experience.
• Early diagnosis can lead to better care and understanding.
• Documenting caregiving experiences can foster connection and awareness.
• Language and narrative around dementia need to change for better understanding.
• Sharing personal stories can help others feel less alone in their caregiving journey.
• The experience of dementia is unique to each individual and family.
• Advocacy for brain health should start early in life.

A transcript of this show, links and show notes and profile on all our guests are available on our website at https://www.dementiaresearcher.nihr.ac.uk.

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We gratefully acknowledge the support of our funders: Alzheimer’s Association, Race Against Dementia, Alzheimer’s Research UK, Alzheimer’s Society, and the National Institute for Health and Care Research.

The views and opinions expressed by guests in this podcast are their own and do not necessarily reflect those of the producers, funders, or sponsors.

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