Caring for EoE (Eosinophilic Esophagitis)

Claire Johnson was diagnosed with EoE in college and shares her journey about how she navigated her new world away from home. Looking to inspire others who are facing similar challenges, she started EoE Digest to help herself and others embrace food restrictions with flare! Follow her on Instagram and Pinterest. Let's keep the conversation going at [email protected].  

Tara McCarthy is a pediatric dietician who specializes in working with patients and caregivers diagnosed with Eosinophilic Esophagitis (EoE) and celiac. She has a true passion for her work that helps people thrive in a food-focused world while contending with elimination diets. In this episode, she offers practical advice for daily living with food restrictions. It was such a pleasure talking with Tara - she's a true gift to our community! Let's keep the conversation going at [email protected].  

Lori's son was diagnosed with Eosinophilic Esophagitis (EoE) a year ago at the age of 13. Looking back, they contended with symptoms of it his entire life. Challenges with keeping food down as a baby, not wanting to eat as a toddler, and weight gain concerns were prevalent in his younger years. While the EoE diagnosis finally gave a name to their experiences, it was the beginning of their journey. Through a roller coaster of food eliminations, endoscopies, Neocate, and confusing allergy test results, they continue to navigate the world of EoE and the added complications it poses for a 14-year-old. Lori's devotion to her son and commitment to helping him find ways to take the lead in his care are inspiring! Hear more about their story in this episode and let's keep the conversation going at [email protected].

Adulting is hard enough. Add to it a mix of mysterious symptoms with little answers and the demands of work and life are amplified. Zach shares his story of finding his Eosinophilic Esophagitis and other diagnoses while serving in the military, the steps he's taken to deal with the disease, and the emotional struggles that came with it. Join me for this inspirational and informative episode - his mindset and outlook are truly impressive! Let's keep the conversation going at [email protected].  

In this episode, one of our community members shares her story about becoming an EoE family. Hannah is the mother of 3 1/2 year old twins and their journey started with a Celiac diagnosis. Join us as we explore topics from integrating elimination diets, navigating multiple diagnoses, and partnering with caretakers in supporting our children. As working moms, we also talk about the importance of support networks and getting the help needed for the entire family. Her optimism, mindfulness, and approach to empowering her children are inspiring! I was thrilled she reached out and hope you will, too! Contact [email protected] and let's share your story.

It's overwhelming. The moment you realize you or your child can no longer eat certain foods and it seems like they are in just about everything. It's especially difficult when patients with Eosinophilic Esophagitis need to eliminate multiple foods all at the same time. Corinna from Friendly Pantry joins me in this episode to inspire, empower, and motivate us to take charge in our own kitchens. With her experience as a food allergy mom and her dedication to taking the mystery out of meal planning, she gives us valuable tips and resources for living life to the fullest, even on an elimination diet. Follow her blog and find out more about her Inspired Kitchen membership community at www.friendlypantry.com. 

Let's keep the conversation going at [email protected]

Eosinophilic Esophagitis affects so many around the globe. In this episode, I am joined by Sarah Gray and her daughter Bella all the way from Australia. Together, they share their story of Bella's diagnosis as a toddler, their journey to her 16th birthday (today, in fact!), and what inspired Sarah to start ausEE, Inc., a charity dedicated to improving lives affected by eosinophilic disorders. https://www.ausee.org.

Let's keep the conversation going at [email protected].  

Danielle Travis is simply amazing. Diagnosed with EoE at 14 years old, she captured her experiences of navigating EoE during high school in an equally heart-wrenching and heart-warming book called, "My Real World Guide for Eosinophilic Esophagitis". In it, she tells her story and offers concrete tips and advice to both teens and caregivers with the disease. Join us for an incredible conversation about her recent experiences, what she's learned since writing the book, and her uplifting advice for all of us in the EoE Community. Let's keep the conversation going by reaching out to [email protected].

Ellyn Kodroff joins me from the CURED Foundation - a non-profit organization dedicated to raising vital funds and awareness for eosinophilic disease. Ellyn shares her story and what inspired her to start CURED over 15 years ago. She provides helpful resources and describes the exciting weekend of events at this year's Patient Education Research Conference in November. A jam packed and informative episode! Ellyn graciously offered her email address for anyone who would like more information or to volunteer: [email protected].   

What happens after getting a life altering diagnosis like Eosinophilic Esophagitis (or others)? You feel every emotion and then get clear on what it all means. Colleen Brunetti, author of "Defining The New Normal: A Guide to Becoming More Than Your Diagnosis" talks about her own journey and gives tools for getting clear and taking action. Her newest book, "Aidan the Wonderkid," empowers kids with food allergies and intolerances.