CFStrong: Inform. Educate. Empower.

CFStrong: Inform. Educate. Empower.

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CFStrong: Inform. Educate. Empower. episodes

  • TRANSITION | Philosophy for Life and CF
    Tony on clinical trials. Curious about clinical trials? Interested to learn more about how to take part? Keen to hear from someone who has been there and done that? In this episode of the CFStrong podcast we chat with Tony about his experience getting involved in clinical trials. Tony shares his experience and his advice for anyone interested in putting their hand up for a clinical trial.
    20 min
  • TRANSITION | How to navigate jobs and CF
    Tony on clinical trials. Curious about clinical trials? Interested to learn more about how to take part? Keen to hear from someone who has been there and done that? In this episode of the CFStrong podcast we chat with Tony about his experience getting involved in clinical trials. Tony shares his experience and his advice for anyone interested in putting their hand up for a clinical trial.
    16 min
  • TRANSITION | How to navigate romantic relationships and CF
    Tony on clinical trials. Curious about clinical trials? Interested to learn more about how to take part? Keen to hear from someone who has been there and done that? In this episode of the CFStrong podcast we chat with Tony about his experience getting involved in clinical trials. Tony shares his experience and his advice for anyone interested in putting their hand up for a clinical trial.
    12 min
  • TRANSITION | How to navigate romantic relationships and CF
    Tony on clinical trials. Curious about clinical trials? Interested to learn more about how to take part? Keen to hear from someone who has been there and done that? In this episode of the CFStrong podcast we chat with Tony about his experience getting involved in clinical trials. Tony shares his experience and his advice for anyone interested in putting their hand up for a clinical trial.
    14 min
  • TRANSITION | Fitness and wellness routines and CF
    Tony on clinical trials. Curious about clinical trials? Interested to learn more about how to take part? Keen to hear from someone who has been there and done that? In this episode of the CFStrong podcast we chat with Tony about his experience getting involved in clinical trials. Tony shares his experience and his advice for anyone interested in putting their hand up for a clinical trial.
    19 min
  • TRANSITION | How to manage mental health and CF
    In this engaging episode of the CFStrong podcast, co-host Brad Dryburgh explores the intricate relationship between cystic fibrosis (CF) and mental health.
    The third episode of the series features candid insights from six guests – all in their 20s - as they share their personal journeys and strategies in navigating the complex intersection of CF and mental well-being.
    From the challenges of social anxiety and the pressure to explain their disease to others, to the impact of CF on life choices and the importance of seeking mental health support, the guests delve into the highs and lows of their mental health experiences.
    This episode sheds light on the often-overlooked aspect of mental well-being within the CF community, offering a refreshing and informative perspective on the unique challenges faced by individuals living with cystic fibrosis.
    Tune in to the Podcast to hear first-person stories, gain insights and discover coping strategies.
    Transcript
    Voiceover: Welcome to the CF Strong Podcast. CF Strong covers the successes and challenges faced by those living with cystic fibrosis. You'll hear first-person stories, conversations with health professionals, friends and partners. Just a heads up, guests may share their personal views about treatments and health management, but please remember, this is not medical advice, and you should always follow the advice of your clinic team regarding your health.
    Brad: G'day everyone and welcome to this incredibly exciting new season of the CF Strong Podcast. I'm your host and fellow CF patient Bradley Dryburgh. And as a 20-something-year-old living with cystic fibrosis, I know that this decade of our life is not only challenging, but rather it comes with some big questions we ask of ourselves. I've taken the time to sit down with six guests who like me, are all in their twenties living with cystic fibrosis as they share their honest and unique perspectives on 10 big questions across 10 separate episodes. I'll ask one question of all six of our guests in this particular order. You can expect to hear answers from Adam, Blake, Caitlin, Ellie, Sam, and Tayla. In this third episode of our series, we'll hear from each of our six guests as they answer whether their mental health has ever been affected by cystic fibrosis and if they have any strategies to help improve their mental health.
    Adam: It's a really tricky question, and it's really loaded because CF affects everything that I do, whether I've realized it or not, like in a, in a way, the reason I'm a musician and the, the reason I love art is because I never saw the purpose in, you know, developing a career in something that will only give me money, that doesn't actually give me anything of value. What I value is experience and, and relationships and things that bring me joy or, or passion, you know, things that are like lively and, and really human, you know, rather than money and statistics and, and houses and, and material things. I'm not really into that. That's just not what I'm into. So CF has affected the way I drive my life, and in essence, essentially how my mind works. Like why, why I prefer going for walks, um, why I prefer contemplating things, why I would prefer playing the drums like this is all because I don't see a value in the thing that everyone around me seems to, seems to push towards. Um, but if we get, if we go a little bit deeper, and I think about how CF has affected me mentally, um, there has been a lot of complex trauma and a lot of, a lot of anxiety around things which I'm starting to realize is, uh, is a byproduct of living with cf. Um, you know, things like being underweight, things like coughing in public and being scared that people think that I have COVID, you know, uh, social anxiety. These things have all occurred from having CF and, you know, some days I really don't feel like explaining my disease to people.
    13 min
  • TRANSITION | How to navigate vaping and CF

    In this engaging episode of the CF Strong podcast, co-host Brad Dryburgh delves into the unique perspectives of six guests, as they discuss vaping and how it intersects with the challenges of cystic fibrosis. The candid conversations reveal a spectrum of attitudes towards vaping, from relaxed approaches to strict stances against it. The guests share personal struggles, experiences with peer pressure, and the complexities of dealing with vaping in social settings. As Brad aptly guides the discussion, the episode sheds light on the invisible struggles faced by those with cystic fibrosis and the delicate balance required to navigate decisions around vaping. Tune in to the Podcast to hear first-person stories, gain insights and discover coping strategies. For more info on vaping and CF, you can also listen to this podcast episode featuring a health professional's insights and perspective. Transcript Voiceover: Welcome to the CFStrong Podcast. CFStrong covers the successes and challenges faced by those living with cystic fibrosis. You'll hear first-person stories, and conversations with health professionals, friends and partners. Just a heads up, guests may share their personal views about treatments and health management, but please remember, this is not medical advice and you should always follow the advice of your clinic team regarding your health. Brad: Gday everyone and welcome to this incredibly exciting new season of the CF Strong Podcast. I'm your host and fellow CF patient Bradley Drybar. And as a 20-something-year-old living with cystic fibrosis, I know that this decade of our life is not only challenging but rather it comes with some big questions we ask of ourselves. I've taken the time to sit down with six guests who like me, are all in their twenties living with cystic fibrosis as they share their honest and unique perspectives on 10 big questions across 10 separate episodes. I'll ask one question of all six of our guests in this particular order. You can expect to hear answers from Adam, Blake, Caitlin, Ellie, Sam, and Taylor. In this second episode of our series, we'll hear from each of our six guests as they answer their personal thoughts and take on vaping with cystic fibrosis and how they feel when those they know vape around them. Adam: So in a nutshell, um, I usually don't really care if people vape. I won't vape myself because I know how harmful it is, but for the most part, I'm not really bothered if other people do it. Um, and especially around me, maybe I should be a little bit more confronting, a little bit more, uh, upfront about it to people, but I, I honestly, it's not really something I can concern myself with. Blake: Yeah, well, um, yeah, well, I sort of, a lot of my mates do it and, you know, I'm not gonna be, I, I refuse to be one of those people that just like sits in a car and just go and just like sort of tell people what to do just because I've got cf. But, um, I guess in terms of people who do have CF and you know, obviously on a night out you get randoms offering you or vape or you know, whatever, if you're at a nightclub or a bar or anything like that, um, I'm a pretty hard no on it. I think, uh, you know, I, I equate it to, you know, if you had a really bad liver, why would you keep drinking? You know, just, just sort of stuff like that. I don't really see the point of chucking any more stuff in your lungs that doesn't need to be there. So I'm a pretty hard no, but, um, but yeah, I do know a couple of people who, who have CF who, uh, you know, maybe dabble, dabble here and there. Um, but yeah, I'm a very hard no on it, I think. Caitlin: I'll be honest, I do have friends and family members that vape, so it is around me. Um, I'm very lucky that the people who do it do it not near me. Um, I think peer pressure is a very real thing and unfortunately, some people succumb to it and, um,

    11 min
  • TRANSITION | How to juggle friends, a social life and CF
    Have you ever wondered how to balance a social life while living with cystic fibrosis?
    You are not alone.
    Hosted by Bradley Dryburgh, himself a young person living with cystic fibrosis (CF), this latest series of the CFStrong podcast delves deep into the perspectives of six young adults facing similar challenges.
    In this opening episode, Adam, Blake, Caitlin, Ellie, Sam, and Tayla share candid accounts of how they navigate a social life while managing their CF. From Adam's seamless integration of CF into friendships to Tayla's candid admission of hermit tendencies, each story offers a unique perspective into the delicate balance between health and social life.
    Tune in to the Podcast to hear first-person stories, gain insights and discover coping strategies.
    Transcript
    Voiceover: Welcome to the CFStrong Podcast. CFStrong covers the successes and challenges faced by those living with cystic fibrosis. You'll hear first-person stories, conversations with health professionals, friends and partners. Just a heads up, guests may share their personal views about treatments and health management, but please remember, this is not medical advice and you should always follow the advice of your clinic team regarding your health. 
    Brad: G'day everyone and welcome to this incredibly exciting new season of the CF Strong Podcast. I'm your host and fellow CF patient Bradley Dryburgh. And as a 20-something-year-old living with cystic fibrosis, I know that this decade of our life is not only challenging, but rather it comes with some big questions we ask of ourselves. I've taken the time to sit down with six guests who like me, are all in their twenties living with cystic fibrosis as they share their honest and unique perspectives on 10 big questions across 10 separate episodes. I'll ask one question of all six of our guests in this particular order. You can expect to hear answers from Adam, Blake, Caitlin, Ellie, Sam, and Tayla. In the first episode of our series, we'll hear from each of our six guests as they answer how they juggle friends and a social life alongside cystic fibrosis. 
    Adam: Yeah, well, for me it hasn't been overly difficult 'cause maybe I'm a little bit lucky where I've always had a few really close best friends. Um, you know, my best friends from when I was 12 are still my best friends now. So I'm lucky in the sense that they know me really well. Um, they know my cystic fibrosis. , I don't really have to go through the phase of meeting. I mean, I do, but I don't have to go through a huge phase of meeting new people and feeling anxious about that. 'cause I feel quite comfortable meeting people and making friends with people, CF or not. The thing I noticed, um, about meeting new friends with CF though, is that there is that hurdle, um, initially when they realize that you were, are sick and that you have a cough, or that, you know, I'm underweight or I take creon before I eat, or I take insulin before or after I eat, and I'm always checking my blood sugars. These are things that people aren't typically used to. So there is a, there is usually a conversational hurdle to jump over, um, to get to that next level of friendship. And I'm always aware that sometimes it could be, for me, it's quite, it could be quite, uh, what's the word? I think it's just, I can get quite anxious about it. Um, but in the most part, people have been really understanding, um, and very respectful and very compassionate whenever they hear about my cystic fibrosis. So if anything, it's just given me a lot of social com, uh, social comfortability, um, around making friends. So CF and friendships, it's, it's not a big thing. Uh, it's, it's just normal for me. It's like, it's fine, you know? 
    Blake: Yeah. Well, um, I mean, I, I guess I've been, I think that what's probably gonna be a common thread through most of my answers is that I've been very lucky compared to I thin...
    9 min
  • YOUTH | How to juggle friends, a social life and CF
    In this episode, CF Strong podcast co-host Brad Dryburgh chats with various members of the CF community about how to manage friends, a social life and CF.

































    The views, experiences or comments shared on this website are not medical advice and may not reflect opinions or beliefs of Cystic Fibrosis Community Care. Always seek the guidance of your doctor or other qualified health professional with any questions regarding your health.






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    9 min
  • Podcast: CF and Menopause
    In this podcast, Jen Hauser, CFPhysio.com founder and physiotherapist, caught up with Dr Sue Keating and Nicki to learn more about menopause in CF.
    This discussion shares some of Nicki’s journey navigating CF symptoms, post lung-transplant symptoms/medication side effects, and possible menopause.
    With the increasing age of survival in CF, menopause is becoming a health experience that women with CF are having to navigate, and the literature would suggest a 2-3 years earlier onset than those women without CF.
    This podcast discussion is only the tip of the iceberg. More resources are in the making to help women learn more about how they can be supported during menopause, how to be proactive and care for their bladder/bowel health, bone health, mental well-being and more.
    Please talk to your treating healthcare team if you have any concerns with your health, or if anything in this podcast seems relevant to you, before changing anything in your CF/health management.
    The websites mentioned in the podcast are:
    AMS_Diagnosing_Menopause_Symptom_Score.pdf
    Menopause | CFReSHC
    Additional edit: following this podcast Nicki was seen by a GP with a special interest in women’s health and has commenced on hormone replacement therapy after additional consultation with her treating doctors (transplant and CF specialist), and her pharmacist.
    Transcript
    Voice Over: Hello and welcome to the CFPhysio.com and CF Strong Collaboration podcast series. My name is Jen Hauser. I'm a physiotherapist with almost 20 years experience in cystic fibrosis care and the project lead for CFPhysio.com. Together with CF Strong we have joined forces to bring this to the CF community. Real life insights and personal experiences on all things. Physiotherapy and CF.
    CFPhysio.com is a not-for-profit organisation striving to deliver evidence based education in CF physiotherapy management to healthcare workers and individuals impacted by CF. CF Strong is a website designed to inform, educate and empower adults impacted by CF.
    We hope you find some value from listening to the podcast we bring to you in this series. Please remember the content is not intended to replace your usual healthcare. Please discuss any concerns or questions you may have with your healthcare team.
    Jen: Hello and welcome to another CF strong CF Physio podcast. Today I have two guests joining me in the studio, Nicki, who has a Bachelor of Education and Vocational Education qualifications and has been a teacher for over 20 years teaching preschool to grade 12. She's currently teaching senior secondary students, in Hobart she has two soccer mad sons and has been married for 24 years to a tragic Collingwood supporter, Nicki's words, not mine. When not involved in her children's sports, she likes to spend time in her garden or on other various projects that she would like to have a go at that never seems to have time. To finish, Nicki has CF. She is a bilateral lung transplant recipient and one of the most organised individuals I know in life and also in her own healthcare.
    I also have doctor Sue Keating, who is a fellow of the Royal Australian College of General Practitioners, a fellow of the Australian and New Zealand College of Obstetricians and Gynaecologists, has a Bachelor of Medicine, a Bachelor of Surgery and has a Masters in Bioethics. Sue began her career as a GP but wanted to learn more about Women's Health. She went to specialise in obstetrics and gynaecology and has worked in both the public and private sector. She also works for family Planning Tasmania and in Sues words she has had the privilege of being involved with women with cystic fibrosis as their treating doctor and has been involved in education events delivered by CF Tasmania to the community. She has participated in many fundraisers for raising awareness for CF and Sue’s very personal involvement is she has a much loved God daughter with CF. Full disclosure,
    1 hr

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CFStrong covers the successes and challenges faced by those living with Cystic Fibrosis.