Childhood Cancer Talk Radio Podcasts

Featured today is our host's highly anticipated interview with Devan Tatlow, US Outreach Coordinator for Kids-of-Ukraine, the US Chapter of the Ukrainian charity Tabletochki. As our host was blessed with the opportunity to meet Devan amid the September childhood cancer community festivities in Washington DC, we are pleased to present this interview not only to underline the importance of our mission of greater public childhood cancer awareness, but the added importance of realizing just how much more difficult life is for children diagnosed with cancer and their families in Ukraine, and the importance of supporting the organization that helps them.

Scientific Director Dr. Charles Keller, and Andy Woods, Chief Mission Officer of Children's Cancer Therapy Development Institute in Beaverton, OR, discuss in depth their roles with the Institute and the experiences that motivate their commitment to make all childhood cancers survivable. In its first 7 years, cc-TDI has helped move 2 potential therapies into nationwide phase I trials; its works, discoveries and innovations have been published, notably in Nature, Scientific American, NPR, and the Portland Business Journal among others with over 58 scientific publications, and through unique innovation developed a process to expedite 5 drugs to clinical trials annually for children.

This episode of Childhood Cancer Talk Radio features the work of master interviewer Sandra Beck turning the tables on Janet Demeter, host of Childhood Cancer Talk Radio. Janet's personal account and story of her son Jack, and story of Jack's Angels Foundation are featured as well as the final push for the DIPG Awareness Resolution, H. RES. 404 in the 117th Congress House of Representatives.

Kylee McGrane is the Founder and Executive Director of A Moment of Magic Foundation and is our featured guest of today's episode. She is a President George H.W. Bush Daily Point of Light Honoree, a Sara Blakely and Spanx Red Backpack Fund Recipient, and a New York Yankees HOPE Week Honoree. To date, A Moment of Magic has engaged more than 1,300 college student volunteers from more than 30 colleges and universities to partner with 300+ hospitals and NPO's to provide creative programming to more than 100,000 children.

Dr. David J. Stewart's newly published book, "A Short Primer on Why Cancer Still Sucks," is an informative call-to-action for the newly diagnosed and for those who care for them, fortified with decades of experience with both the Canadian and US systems of cancer-care. With host Janet Demeter, Dr. Stewart shares his background of experience and real life anecdotes guiding the framework of this witty and essential resource for cancer patients and caregivers.

This episode features excerpts from the Moonshot4Kids Congressional/OSTP Briefing Beginning with an introduction from Congressman Michael McCaul, Founder and Chairman of the Childhood Cancer Caucus, who shares the pioneering spirit of the childhood cancer awareness movement. Keith Desserich, founder of the Cure Starts Now, shares the basic history of this trailblazing organization dedicated to the homerun cure for cancer. The Carson Leslie Foundation is represented by Gerald McDougall Board Chairman, Ripley Martin, Director, and Dr. Michelle LeBeau, CSO of CPRIT; Dr. Brigitte Widemann (NIH/NCI), Dr. Will Parsons, PI/Pediatric MATCH Trial, and Dr. Marcelo Ortigao, scientific researcher and DIPG dad, are among the presenters, brought to you by Bexion Pharmaceuticals.

This week's podcast features a recent, pre-recorded interview with the Scientific Director of the Children's Cancer Therapy Development Institute, with its mission to eradicate childhood cancer in all of its forms. Dr. Charles Keller shares with us the beginnings of the Institute, the challenges they have met over the last 7 years, and the influence of the late, great Megan Bugg and her powerful advocacy on the next steps for the Institute. Also included in this podcast is a sneak-peak into the Moonshot4Kids childhood brain cancer briefing that is being shared with the House Health Subcommittee of Energy and Commerce. Dr. Keller submitted, in 2020, a powerful testimony about the unmet medical needs of children with cancer which truly showcases his powerful advocacy for children, which is presented at the end of the podcast as a preview to a public premier on youtube of the briefing material on Saturday, Oct. 8 at 8pm ET.

The Team Jack Foundation grew out of the dedicated community of Atkinson, Nebraska rallying around Jack Hoffman, childhood brain cancer survivor.

Kylie Docter, CEO joins us to tell the story of how, with support from the University of Nebraska, Husker Athletics and people all across the country, the Foundation has expanded its reach and impact to push for a cure for childhood brain cancer, uniting and bringing hope to families everywhere fighting the #1 disease-related killer of American children.

John Beltzer, CEO and Founder of "Songs of Love" Foundation shares with Childhood Cancer Talk Radio the personal inspiration behind the Songs of Love Foundation, based in New York City. As a way of providing sick children with an ongoing source of comfort and joy, and a therapeutic tool for healing, he set out to create personalized, one-of-a-kind songs for them beginning in 1996.

The Songs of Love Foundation is a 501(c)(3) charitable organization which creates personalized songs for children and teens struggling with a life-threatening illness or lifetime disability, free of charge. Each song is professionally produced with lyrics containing the child's name, references to his or her favorite activities, things, people, and pets, and written and performed by a variety of talented professionals in the child's preferred musical style (pop, r&b, rap, rock, alternative, etc). The song is delivered to the child via custom USB drive with an accompanying lyric booklet.

Songs of Love is dedicated to the memory of John’s twin brother Julio who wrote and recorded the composition ‘Songs of Love’ just two months before he died on April 12, 1984.

To promote the first airing and subsequent youtube feature of DIPG Advocacy Group's Childhood Brain Cancer Briefings, Part I of this Childhood Cancer Talk Radio recap includes expert and patient testimony and the highly acclaimed natural killer cell cancer breakthrough science with NKORE Biotherapeutics Tracy Ryan, CCO and Dr. Anahid Jewett, Chief Science Officer. ADr. Adam Green of Children's Hospital CO, University of CO Denver, and DIPG survivor Nicole Puglisi from Clifton, NJ, are featured.