Join us as we start a brand new series, Patient-Doctor Perspectives, where we explore a diagnosis from the view of a patient and doctor. In this episode, we speak to Ashley Cámara, a Myelodysplastic Syndromes (MDS) survivor and advocate and Dr. Lucy Godley from The University of Chicago Medicine. Ashley shares her story of having two MDS diagnoses in her family – first her brother and then herself. Dr. Godley then delves deeper into inherited myeloid malignancies and how genetic links may lead to preventative treatment options. 

Mentioned

• Myelodysplastic Sydromes (MDS)
• Stem Cell Transplantation
• Hereditary Myeloid Malignancies – University of Chicago Medicine
• Dr. Lucy Godly Contact
• Young Adult Resources

Additional LLS Support Resources:

• Information Specialists
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection ProgramFree Nutrition Consultations

Support for this episode provided by Taiho Oncology.

The post Patient-Doctor Perspectives: Hereditary Myelodysplastic Syndromes (MDS) first appeared on The Bloodline With Blood Cancer United Podcast.

Join us as we report from the 2020 Virtual CancerCon and speak to Kyle Benner, a young adult survivor of Acute Lymphoblastic Leukemia (ALL), and Nikki Yuill, a social worker with the LLS Information Resource Center. In this episode, we discuss young adult cancer (15-39 yrs) and what happens from diagnosis through survivorship. Learn about the unique issues that young adults face and how LLS is here to help them through.

Mentioned on this episode:

• Acute Lymphomblastic Leukemia (ALL)
• Communicating with your Healthcare Team
• CancerCon
• Stupid Cancer
• Young Adult Chat
• More Young Adult Specific Resources
• Bone Marrow Transplant

Additional LLS Support Resources:

• Information Specialists
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection ProgramFree Nutrition Consultations

The post I Am a Young Adult With Cancer…Now What? first appeared on The Bloodline With Blood Cancer United Podcast.

Join us as we speak to Ola Ojewumi, a patient and health advocate with Post-Transplant Lymphoproliferative Disorder (PTLD), a type of Non-Hodgkin Lymphoma. In this episode, Ola tells us about the difficulties she has faced as a Black disabled woman with chronic pain. She shares her experiences with racism and inequities in healthcare and how she has learned to advocate for herself and others.

Mentioned on this episode:

• Post-Transplant Lymphoproliferative Disorder (PTLD)
• LLS Health Manager App
• Racial Bias in Chronic Pain Study
• Ola Speaking to Congress
• Project ASCEND
• #PatientsAreNotFaking

Additional LLS Support Resources:

• Information Specialists
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection ProgramFree Nutrition Consultations

The post Facing Racial Disparities as a Black Disabled Patient first appeared on The Bloodline With Blood Cancer United Podcast.

Join us for Part Two of a special two-part series as we speak to Dr. Christabel Cheung, a two-time Hodgkin Lymphoma Survivor. In this episode, Christabel talks about her extraordinary struggles as a young adult with cancer, such as living alone without family support and having high healthcare costs. She also delves into the health disparities, racism and racial insensitivity that BIPOC (Black, Indigenous, People of Color) patients experience. Be sure to listen to Part One first to hear more about Christabel’s journey with Hodgkin Lymphoma as a Young Adult.

Mentioned on this episode:

• Dr. Brad J. Zebrack
• Elephants and Tea Magazine
• Jade Gangster
• Stupid Cancer
• Hodgkin Lymphoma (HL)

Additional LLS Support Resources:

• Information Specialists
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection Program
• Free Nutrition Consultations

Support for this episode provided by Seagen, Inc.

The post Hodgkin Lymphoma Part 2: Struggles of a Young Adult with Cancer first appeared on The Bloodline With Blood Cancer United Podcast.

Join us for a special two-part episode as we speak to Dr. Christabel Cheung, a two-time Hodgkin Lymphoma Survivor. In Part One, Christabel tells us about her longtime journey with lymphoma, including a relapse and going through the second diagnosis during a global pandemic. She shares her struggles of not only a diagnosis, where she is in the small percentage that didn’t respond to first-line treatment, but also going through cancer as a racial minority and young adult. Be sure to tune into Part Two as she delves more into health disparities for young adults and BIPOC (Black, Indigenous, People of Color) communities.

Mentioned on this episode:

• Dr. Brad J. Zebrack
• The Impact of Cancer on Young Adults Video Clip featuring Dr. Brad Zebrak
• Dr. Ibram X. Kendi
• Brian Goldman
• Jade Gangster
• CancerCon
• Hodgkin Lymphoma (HL)

Additional LLS Support Resources:

• Information Specialists
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection Program
• Free Nutrition Consultations

Support for this episode provided by Seagen, Inc.

The post Hodgkin Lymphoma Part 1: Struggles of a Young Adult with Cancer first appeared on The Bloodline With Blood Cancer United Podcast.

Join this conversation as Alicia, Edith and Lizette sit down to chat with Brett Hagler.  Brett is an author, cancer survivor, and CEO of New Story, an organization that pioneers solutions to end global homelessness by working to create the world’s first 3D-printed community. On this episode, Brett explains how his chondrosarcoma diagnosis helped to refine his focus and future goals, putting him on the path of creating something bigger than himself. Despite diagnosis, Brett challenges patients to reflect on the question, “How do I want to remember this moment 10 years from now?”, to help gather strength and purpose to push forward. He also describes the crucial role of caregivers and the importance of having a supportive community rallying around each person facing a serious illness. Listen in and be sure to tell us how you liked the episode, by commenting below!

Mentioned on this episode:

• New Story
• Chondrosarcoma

Additional LLS support resources:

• Information Specialists
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection Program
• Free Nutrition Consultations

Become a First Connection volunteer! Learn more by calling an LLS Information Specialist at (800) 955-4572, Monday to Friday, 9 a.m. to 9 p.m. ET or visiting www.LLS.org/InformationSpecialists.

The post Creating Something Bigger Than Myself Despite Cancer: Brett Hagler’s Story first appeared on The Bloodline With Blood Cancer United Podcast.

Listen in as Alicia and Lizette from The Leukemia & Lymphoma Society speak with Bishoy Tadros.  Bishoy was diagnosed with acute lymphoblastic leukemia (ALL) at three years old. As an Egyptian immigrant with many things for his family to consider such as, where the best treatment would be and how to go about relocating, Bishoy describes his journey as a cancer survivor. He explains the challenges he faced both individually and as a family, his turning point which occurred in 2017 at Mile 40 of an IronMan, and what his diagnosis has taught him about overcoming life’s obstacles.

Mentioned on this episode:

• Acute Lymphoblastic Leukemia
• Leukemia
• Bishoy Tadros
• Venous

Additional LLS support

• Information

Support for this episode provided by Amgen and Takeda Oncology.

Become a First Connection volunteer! Learn more by calling an LLS Information Specialist at (800) 955-4572, Monday to Friday, 9 a.m. to 9 p.m. ET or visiting www.LLS.org/InformationSpecialists.

The post Survivor, Author, Athlete & Overcomer: Bishoy’s Story first appeared on The Bloodline With Blood Cancer United Podcast.

When you think about a pediatric patient, they are not a child living in a vacuum. They are part of a very complex system that is suddenly impacted by a cancer diagnosis. Psychosocial care helps to address every piece of that complicated system to successfully get patients the treatment that they need. Join Alicia and Lizette from The Leukemia & Lymphoma Society (LLS), as they speak with pediatric oncology social worker, Chelsea Keeler, from the Children’s Hospital of Philadelphia. Chelsea provides services to patients and families to help optimize functioning, such as psychosocial assessments, supportive counseling around disease diagnosis, coping, decision-making, and connection to community resources as needed. On this episode, they’ll discuss the growing field of psychosocial care for pediatric patients, how psychosocial care differs between children and young adult populations, advancements in technology that have improved how support is provided around the world and the role of a psychosocial team and their relationship with patients and families.

Mentioned

• Childhood Blood Cancer
• Young Adults
• Long-Term And Late Effects Of Treatment For Childhood Cancer Survivors
• Follow-Up Care For Childhood Cancer Survivors
• Childhood Blood Cancer Facts and Statistics

Additional

• Understanding the Emotional Effects of Cancer
• Psycho-Oncology: Caring for Body & Mind
• Information Specialists
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups

Become a First Connection volunteer! Learn more by calling an LLS Information Specialist at (800) 955-4572, Monday to Friday, 9 a.m. to 9 p.m. ET or visiting www.LLS.org/InformationSpecialists.

The post How Will My Child’s Cancer Diagnosis Impact Their Emotions? first appeared on The Bloodline With Blood Cancer United Podcast.

Join in as Shona sits down with Elissa Baldwin onsite at CancerCon 2019. CancerCon is an annual conference held every year by Stupid Cancer, an organization that provides support to young adult cancer survivors. Elissa is a young adult acute myeloid leukemia (AML) survivor. After a bone marrow biopsy two weeks earlier, she went on a solo trip to Europe and was diagnosed by email while staying in a hostel in Lisbon, Portugal. She was able to book an emergency flight back home to Portland, OR to begin chemotherapy within a week. On this episode, Elissa shares how and when she was diagnosed, the emotional and physical challenges she experienced and how her diagnosis served as inspiration for a career change. She emphasizes the importance of therapy during a cancer diagnosis and continues to serve as a source of encouragement for other young adult survivors.

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Mentioned on this episode:

• CancerCon
• Acute myeloid leukemia (AML)
• Treatment for AML
• Beat AML Master Trial
• Light The Night
• Volunteering at LLS

Additional LLS Support Resources:

• Young adult videos
• Information Specialists
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups

Support for this episode provided by Jazz Pharmaceuticals.

Become a First Connection volunteer! Learn more by calling an LLS Information Specialist at (800) 955-4572, Monday to Friday, 9 a.m. to 9 p.m. ET or visiting www.LLS.org/InformationSpecialists.

The post My AML Diagnosis: Elissa’s Story first appeared on The Bloodline With Blood Cancer United Podcast.

Join in as Shona sits down with Ellen Polamero onsite at CancerCon 2019. Ellen is a clinical social worker at City of Hope in Duarte, California. CancerCon is an annual conference held year by Stupid Cancer, an organization that provides support to young adult cancer survivors. This is the fourth year that Ellen has hosted a ‘Couples Coping with Cancer’ session at CancerCon and shares why it is important to her to provide this offering. On this episode, Ellen speaks about the impact of cancer, not only on the specific person that is diagnosed, but on the family unit as a whole and on intimate partners specifically. She describes the challenges a couple may experience, expectations that couples may place on themselves, the importance of communication and various resources available to couples. Ellen shares key takeaways to help couples navigate their cancer journey.

DOWNLOAD TRANSCRIPT

Mentioned on this episode:

• CancerCon
• ‘Couples Coping with Cancer Together Program’ at City of Hope
• The Dear Jack Foundation
• The American Cancer Society 
• Young adult information
• Relationships

Additional LLS support resources:

• Young adult videos
• Information Specialists
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups

Become a First Connection volunteer! Learn more by calling an LLS Information Specialist at (800) 955-4572, Monday to Friday, 9 a.m. to 9 p.m. ET or visiting www.LLS.org/InformationSpecialists.

The post Coping with Cancer as a Couple first appeared on The Bloodline With Blood Cancer United Podcast.