⚠️ trigger warning ⚠️ on todays show we speak to Emma please_not_ another _illness about UTIs who has EDS (urinary tract infections) catheters, catheter experience heavy periods/menstruation, long toes talk about her EDS journey hospital experiences, being put on elderly wards, clinical trials , gp issues and losing friends please note our podcast is for information only please see the correct advice from a registered medical professional )

(Please note our podcast is for information only please seek the correct medical advice from a registered medical professional ) ⚠️trigger warning ⚠️ on this podcast Fiona and Dani talk about the below topics due to popularity asking the right questions in clinic appointments for both the Doctor and patients from a patient perspective body maps questionnaires time restraints in clinic looking for prey cause basic welcomes being forgotten in clinics (not all clinicians) due to time constraints in healthcare system such as are you ok how can I help you? Cost of living effecting nutrition and we also review season 1 and talk about season 2 and a thank you to Those listening

⚠️trigger warning ⚠️ Fiona talks to charlotte dazzling_zebra on instagram who has EDS who is studying in the science field we talk about mental health PTSD, counselors, near death, palliative care, lack of access of care, MCAS, gaslighting, loss, grief and acceptance of our conditions and humour that help us through . And the impact of the Eds community (Please note our podcast is for information only please see the correct medical advice from a registered medical professional)

⚠️⚠️Trigger warning explicit episode.⚠️On this podcast we talk to Maureen about her EDS journey gaslighting and coping with family member addictions please note our podcast are for information only please seek the correct advice from a medical professional.

In this episode Fiona talks to Chloe Thompson clinical Pilates instructor, GP referral exercise specialist, nutrition advisor talks with Chloe about nutrition, hydration and how important they are Pilates, accessibility cost in healthcare rising , pathways, beighton score exercise and accessibility to information and re-education needed and how Chloe had tried her make her plans affordable too for patient Chloe has given a promo code to her plans to Coupon: Apply 20% off to all plans with the promo code “Podcast20”.

https://www.cbfitnessandpilates.co.uk/ please note this podcast is for info only please seek medical from a registered medical professional Instagram https://instagram.com/cbfitnessandpilates?igshid=YmMyMTA2M2Y=

Fiona and Danni talk today to actor and producer Sharon Spink Northern Spotlight registered, actor & voiceover, living with hEDS. In this episode we talk about how the acting world is becoming more accessible to those with disabilities autism neurodiversity schools and children with disability meals and Sharon talks us through how she lives and copes with Heds and her hopes for EDS patients in the future links below to Sharon pages and link to (TripleC UK

A Collective of inclusive artists Creating Confidence through the Arts! (please note this podcast is for information only and not medical advice please see your registered medical professional if you have any medical questions )https://instagram.com/sharonspinkact?igshid=YmMyMTA2M2Y= https://linktr.ee/sharonspinkact?fbclid=PAAaaU-WXIeNd76Dq2UTNEK3H7suZYCe-x2rXAw-CXhuRXcqFBrM7vshmHtqc https://linktr.ee/triplecuk

Trigger warning please Read before listening to podcast ⚠️ in this podcast we talk with Laura who’s an ex midwife with heds, about accessibility to Heds diagnosis, Laura’s chronic illness journey, wait in treatment times and pathways accessibility for people with chronic illness, mobility aids we talk about (Fiona talks about mobility aids from previous events as she no longer uses them ) power chairs Suicide, mental health adapting life and enjoying life with a chronic illness gaslighting paternalistic method , (please note our podcast is for information only please see the correct medical advice from a registered medical professional Laura’s instagram page https://instagram.com/powerchairqueen?igshid=YmMyMTA2M2Y=

We talk to Michelle irving about emotional empowerment and how she has helped people with chronic diseases including long covid too and has an amazing explanation of acceptance grief etc https://www.michelleirving.com.au/emotionalempowermentcourse when it comes to chronic disease Michelle also has her own podcast called the Pyjama interviews https://open.spotify.com/show/18RzpObb6ESo9fl0i2pNQi (please note this podcast is for information only please seek medical advice from a registered professional )

(Please note our podcast is for information only please see the correct medical advice from a registered medical professional warning on some topics we discuss ) in our podcast we talk to doctor Perretto about physical therapy, nutrition, epigenetics environment factors and her experiences having EDS as a clinician and her experiences as a clinician treating those with EDS. see links and bio for Dr Marica Perretto below Dr. Perretto is an active researcher in hypermobile Ehlers Danlos Syndrome and hypermobility disorders in partnership with several medical professionals in the areas of movement science and hypermobility syndromes. She has served as a clinical instructor for Nova Southeastern University and Florida International University for the Entry Level Doctor of Physical Therapy Program. She is an educator and recognized speaker both nationally and internationally in the areas of orthopedics, neurosciences, genetic collagen disorders and hypermobility spectrum disorders. ​

After receiving her Bachelor’s degree in Physical Therapy at a recognized catholic university in south Brazil, Dr. Perretto completed her transition to Doctor of Physical Therapy degree at Nova Southeastern University. Later she completed her Manual Therapy Certification at the Ola Grimsby Institute in California and a Health Coach Training program with the Institute for Integrative Nutrition in New York, where she learned more than 100 dietary theories and a holistic approach to wellness. Dr. Perretto is certified on Lymphedema treatment (LTC), holds a yoga therapy instructor certification (YTT200), and has extensive training in Neurac Redcord®️ and Redcord®️ Active.

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She is a member of the American Physical Therapy Association (APTA), National Strength and Conditioning Association, Hypermobility Syndromes Association and the World Confederation for Physical Therapy.

www.actifypt.com. And @the_eds_pt on instagram

An introduction to hosts Fiona and Danni and what is to come on our podcasts please note our podcast is information only please seek the correct medical advice from a registered medical professional 😊 warning ⚠️