The FND Podcast

Chucky Chat| Work Study and life with FND


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Chucky continues to answer questions from people who has asked questions from Instagram. Today we get asked the question "Growth through the struggle to get back to work or studying or general life and general advice" . FND Merchandise to support FND Australia Support services by Chucky from @friendswithfnd

Helpful information things to look up:

Managing Chronic:

We talked to Sara earlier on who does Managimg Chtonic and helps women get back to work with Chronic illness and disability here is her website to check out that is incredibly informative and so helpful :

https://managingchronic.com/

again @managingchronic on Instagram 

She is just amazing also

Chroniclly capable is an organisation which is bridging the gap between organisations and those with chronic illness & / disability and placing people with work removing the stigma and fear. To find out more :

https://www.wearecapable.org/about

her MY FND Reality can be found here :https://thefndpodcast.simplecast.com/episodes/my-fnd-reality-talking-to-sara


Disability and FND in the Workplace by FND Australia Support services:

https://youtu.be/9hcBxyrqu7s

Disability and studying :

https://www.studying-in-australia.org/studying-in-australia-as-a-disabled-student/

Disability rights:

https://www.humanrights.vic.gov.au/for-individuals/disability-and-the-workplace/

https://imprintmerch.com.au/collections/lets-have-the-chat

from masks to bags hoodies and tshirts check them out!

HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

https://www.neurosymptoms.org/

Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there. 

https://www.neurokid.co.uk/

A website for young people and families living with NEAD and neurological symptom

https://fndportal.org/

Amazing website with information and links to fnd 

Information on Non Epileptic Seizures or NEAD

https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf


FND ORGANISATIONS:

https://www.fndaus.org.au/

FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is 

https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services

FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.
https://www.fndaction.org.uk/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

http://fnddimensions.org/

A really helpful article and explanation of what FND is: '

https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ

Other podcasts/ blogs / vlogs to follow:

itsmeitsmeitsfnd

https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1

Bed Life and Beyond by Rach also a lovely FNDer 

https://pandoralocksmith.wordpress.com/about/

John McLeans Fnd Journey

https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0

Lmtd Life with FND

https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos

FNDer amplified: Meg Jacks

follow on Instagram @ Meg.jacks_

TicTok: @megjacks

Instagram follow Emma’s journey :@emmas_fnd_fun

The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND

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The FND PodcastBy Odettecreates