The FND Podcast

Episode Title: Understanding FND | Featuring Professor Jon Stone

In this short episode of The FND Podcast, Detty shares an educational presentation from Professor Jon Stone, Consultant Neurologist at the University of Edinburgh and one of the leading researchers in Functional Neurological Disorder (FND).

Professor Stone has been at the forefront of improving understanding and awareness of FND around the world. In this presentation, he explains what FND is, how it affects the way the brain and body communicate, and why increasing knowledge and awareness of the condition is so important.

Functional Neurological Disorder is a common neurological condition that can cause a wide range of real and often disabling symptoms, yet it remains widely misunderstood.

This episode shares part of Professor Jon Stone’s presentation with permission from FND Australia Support Services, helping to bring accurate education and awareness about FND to a wider audience.

RESOURCES

Neurosymptoms (Educational Resource on FND)
https://neurosymptoms.org/en/

Professor Jon Stone Presentation
https://www.youtube.com/watch?v=IA3FryUr1UQ&t=154s

CREDITS

Special thanks to
FND Australia Support Services

Professor Jon Stone

Recording shared with permission from

Music:
Life is Tough But So Are You – Vanessa Campagna (Soundstripe)
Seedling – Midnight Daydream (Soundstripe)

Edited with Ferrite

Edited by
Maria Placido / Odettecreates

© Maria Placido / Odettecreates 2026

What happens when your body stops functioning? And the neurologist simply says " Deal with it".. Suggesting its all in your head?

In this powerful episode, Brad shares his personal journey from collapse and confusion to finding his voice in the FND community.  Diagnosed with functional Neurological disorder after a barrage of symptoms and no clear answers, Brad was left to navigate the system alone. But instead of staying silent he took action:

We talk about

*The moment it all started

* The trauma of misdiagnosis and dismissal

*Brads current petition to improve FND care

The emotional Toll of FND and how it reshapes identity

The importance of community support and speaking out

Follow Brad:

Youtube : @unshakenbrad

Instagram: @fndwarrior2024

Tiktok: @unshakenbrad

Click here for Brads current petition: 

https://petition.parliament.uk/petitions/727063?utm_medium=social&utm_source=heylink.me

Other current petitions that are on Change.org

ALSO if you are in NZ or just wanting to find out more about FND FND AWARE NZ

Music by soundstripe licensed to be used on this podcast: 

Nu Alkemist : At a glance

Alsever : Paper Treats

Matt Wigton: Thoughts are free

Map zoom in

Thankyou for listening to the FND PODCAST we are not sponsored by these organizations however they do tremendous work in the FND community.

FND AUSTRALIAN SUPPORT SERVICES 

A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

IF you would like to support FND Australia Services and would like to have a look at some merchandise click here

FND ACTION : https://www.fndaction.org.uk

FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.

FND GUIDE.

A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, ScotlandDr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation

FND DIMENSIONS

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another. They have an amazing FND Survival Kit  click here to have a look

The FND Society

The FND Society is a welcoming and informative space created by people with FND for people with FND. It offers a growing range of resources — including guides, videos, interviews, real-life stories, and practical support — to help you understand your condition, connect with others, and feel empowered in your journey.

It’s not just information — it’s community. It’s validation. And it’s a reminder that you’re not alone.

they are also a great resource into learning more about FND.https://www.neurokid.co.uk/\

A website for young people and families living with NEAD and neurological symptom

Information on Non Epileptic Seizures or NEAD

https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf

https://fndportal.org/

Health Professionals who want to learn about FND, and recommending to learn and follow or if you just want to learn more about FND:

Haseel Bhatt Neuro Physiotherapy 

Instagram: Functionalneurologicaldisorder 

Website: Neurology Rehab ( Click to go to website) 

For training about FND especially if you are a health professional or allied health please check this website out for courses available

Jason Kreuzman: Peadiatric Occupational Therapist FND

Instagram: FND_OT

Website: RewireOT (click here to go to website)

A great resource for carers, families and health professionals who want to learn about FND also register your interest in a course for FND

Nada! A MUST FOLLOW

Instagram: Fnd_revolution

Podcast: FEM AND STEM podcast (click here to listen)

Youtube: FND REVOLUTION TV

She is a brilliant FND advocate and warrior. I cannot recommend her enough please follow her, subscribe and watch.

The FND Podcast song of the week:

Fix you by Coldplay

https://open.spotify.com/track/7LVHVU3tWfcxj5aiPFEW4Q?si=c2eecb790ac24dfd

It's a song that has got me through a couple of times XO

Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.

The Cadenza for fractured consciousness   From Medium.com on the fnd portal

The Road to Functional Neurological Disorder by Gabriel Brownstein

FND is not fake or Malingering

Just a quick reminder that while we love sharing insights and stories here, this podcast is for informational and entertainment purposes only. It’s not meant to be medical advice tailored to your specific needs. We always encourage you to chat with your GP or a medical professional regarding any health concerns or questions you may have. This is a story of courage, advocacy and refusing to be invisible. If you live with FND or love someone who does this ones for you.

In this insightful and compassionate episode of The FND Podcast, Detty is joined by Jason Kreuzman, a pediatric occupational therapist based in St. Louis, Missouri, who specialises in treating children with Functional Neurological Disorder (FND).

Together, they explore what occupational therapy really is, how it differs from physiotherapy, and the powerful role it can play in helping children and teens with FND rebuild their lives — one meaningful activity at a time. Jason shares how he adapts therapy for young people, how to support kids returning to school, and why building confidence and safety is key to long-term recovery.

Whether you’re a parent of a newly diagnosed child, a healthcare professional wanting to understand FND better, or someone looking for practical tools and real hope, this episode is full of heart, helpful insights, and supportive guidance.

 Topics covered:
– What occupational therapy looks like for FND
– Explaining FND to children in age-appropriate ways
– Supporting school transitions and daily life
– Creating personalised care plans for families
– Raising awareness in the healthcare system
– Free resources now available for pediatric FND care

This one’s a must-listen for families, carers, educators, and therapists — and a powerful reminder that support for kids with FND does exist.

This Episodes notes:

Follow Jason Kruzeman on instagram @fnd_ot also click here to have a good look at this amazing new FND resource www.rewireot.com

All resources mentioned in the podcast can be accessed through this new website. Also check out www.fndsociety.org 

they are also a great resource into learning more about FND.

Music used in this Podcast is from Soundstripe : licensed for use

Spring Cleaning by Lunerah

Nobody by Ellisan

We know by Aaron Sprinkle

Just like me by Thruline

Light the way by Ian Kelosky

Map zoom out

Thankyou for listening to the FND PODCAST we are not sponsored by these organizations however they do tremendous work in the FND community.

FND AUSTRALIAN SUPPORT SERVICES  :https://fndaus.org.au/fnd-symptoms/

A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

IF you would like to support FND Australia Services and would like to have a look at some merchandise click here

FND ACTION : https://www.fndaction.org.uk

FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.

FND GUIDE. :https://neurosymptoms.org/en/

A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, ScotlandDr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation

FND DIMENSIONS: http://fnddimensions.org/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another. They have an amazing FND Survival Kit  click here to have a look

https://www.neurokid.co.uk/\

A website for young people and families living with NEAD and neurological symptom

https://fndportal.org/

Amazing website with information and links to fnd

Information on Non Epileptic Seizures or NEAD

https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf

The FND Podcast song of the week:

Stronger by Kelly Clarkson

Just a really uplifting song

Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.

The Cadenza for fractured consciousness   From Medium.com on the fnd portal

The Road to Functional Neurological Disorder by Gabriel Brownstein

The published research Paper on FND by Haseel Bhatt

FND is not fake or Malingering

Just a quick reminder that while we love sharing insights and stories here, this podcast is for informational and entertainment purposes only. It’s not meant to be medical advice tailored to your specific needs. We always encourage you to chat with your GP or a medical professional regarding any health concerns or questions you may have. 

🎙️ The JJ Segment: Catching Up with Jess – Working, Writing, and Living with FND

In this deeply honest and joyfully heartfelt episode of The FND Podcast, Detty sits down with the wonderful Jess for a long-overdue catch-up on the JJ Segment. From moving states, to getting married, to navigating life with FND while diving headfirst into a blue-collar job — Jess shares it all with her trademark humour, grit, and glowing resilience.

Together, we unpack what it’s really like returning to work with Functional Neurological Disorder, from workplace seizures and flare-ups to pacing, planning, and the importance of telling your employer. Jess opens up about her journey from overdoing it to finding a more manageable balance — and how she's learned to adapt rather than fight her FND.

But that’s not all — Jess is also a published author! We chat about her newest fantasy release "Woman of Wolves", her passion for storytelling, and how she balances creative life with chronic illness. You’ll laugh, nod, maybe even tear up — and definitely walk away feeling inspired.

✨ In this episode:

– Jess’s journey with FND & employment

– Coping with seizures at work

– The emotional evolution of living with FND

– Why communication with employers matters

– Writing through chronic illness

– Creating a fantasy world… and lifting 3 tonnes of flour a day?! 💪

– The gift of self-acceptance and finding your pace

📚 Want to support a fellow FND warrior? Check out Jess’s books on Amazon and follow her on TikTok @jessmcfarlane 

A massive thank you to Jess for being so open and shining your light. And to our listeners: you’re not alone. Your journey with FND is your own, but we’re right here beside you.

Stay safe, love hard, and peace — see you on the flip side 💛

To work or not to work with FND that is the real question. It's a hard one to gauge and safely decide and it's definitely not for everyone.  Here's a short conversation we have with Katherine Gill from Australia Support Services and also a sneak preview to the upcoming episodes.

This Episodes notes:

Job Access : the guide to disability employment : click here for more details

Disability support services Australia in Victoria click here for more details

Employment programs: disability *Aus government. 

Returning back to work presentation on FND Australia Support Services Channel : Click here for more details

Transitioning from school to work with a disability: click here for more details

If you feel like you would like to Volunteer in Australia : click here for more details

Caitlins story with FND and work :

If needing to more information and support on working with a disability here is the Fairwork Ombudsman information : click here for more details

Note: the links are related to those in Australia however it is a good idea to look up your disability supports in your country. Here are a few that  I've found so far however there is more out there :  

For USA from what I could see : Job Training and programs for people with a disability

Americans with Disability Act : protecting people with disabilities from discrimination

Office for disability employment policy click here

For Canada: Canadian Association for Supported Employment click here

Canada employment Strategy for Canadians with disabilities click here

For England: Employment disability rights click here: 

Careers and work for disabled people from Disability rights UK click here

Ability Net : Information about Disability and Employment 

Music used in this Podcast is from Soundstripe : licensed for use

Flowstate by Pala

This and That by Nu Alkemi$t

Life in Pastels by Matt Wigton

Map zoom out

Thankyou for listening to the FND PODCAST we are not sponsored by these organizations however they do tremendous work in the FND community.

FND AUSTRALIAN SUPPORT SERVICES  :https://fndaus.org.au/fnd-symptoms/

A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

IF you would like to support FND Australia Services and would like to have a look at some merchandise click here

FND ACTION : https://www.fndaction.org.uk

FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.

FND GUIDE. :https://neurosymptoms.org/en/

A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, ScotlandDr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation

FND DIMENSIONS: http://fnddimensions.org/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another. They have an amazing FND Survival Kit  click here to have a look 

https://www.neurokid.co.uk/\

A website for young people and families living with NEAD and neurological symptom

https://fndportal.org/

Amazing website with information and links to fnd

Information on Non Epileptic Seizures or NEAD

https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf

The FND Podcast song of the month:

Rise above by Alberto Giurioli and Geoff Lawson

Click here to listen

Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.

The Cadenza for fractured consciousness   From Medium.com on the fnd portal

The Road to Functional Neurological Disorder by Gabriel Brownstein

The published research Paper on FND by Haseel Bhatt

FND is not fake or Malingering

Just a quick reminder that while we love sharing insights and stories here, this podcast is for informational and entertainment purposes only. It’s not meant to be medical advice tailored to your specific needs. We always encourage you to chat with your GP or a medical professional regarding any health concerns or questions you may have. 

In this heartfelt episode of The FND Podcast, Detty welcomes back the inspiring Tiarne, who bravely shares her personal journey of returning to work while living with Functional Neurological Disorder (FND). From the early days of navigating symptoms and mobility aids to finding the balance between part-time work and self-care, Tiarne opens up about the realities, challenges, and victories of employment with a chronic condition.

Whether you’re considering re-entering the workforce, looking into volunteering, or simply curious about how others manage FND in the workplace — this conversation is filled with honesty, insight, and encouragement. Tiarne reminds us that pacing, self-awareness, and finding supportive environments can make all the difference.

We also talked about

– Flexible working arrangements

– Managing symptoms on the job

– Advocating for your needs

– What really matters when you’re living with FND

– The power of purpose and doing what you love

A huge thank you to Tiarne for being so open and sharing her lived experience working with FND

Don’t forget to check out the show notes for helpful resources and past episodes, including Tiarne’s My FND Reality and our insightful chat with Katherine Gill from FND Australia Support Services on returning to work.

As always — stay safe, love hard, and peace. See you on the flip side 

To work or not to work with FND that is the real question. It's a hard one to gauge and safely decide and it's definitely not for everyone.  Here's a short conversation we have with Katherine Gill from Australia Support Services and also a sneak preview to the upcoming episodes. click here to listen to this episode 

To listen to Tiarnes FND Journey and her FND REALITY episode CLICK HERE

This Episodes notes:

Job Access : the guide to disability employment : click here for more details

Disability support services Australia in Victoria click here for more details

Employment programs: disability *Aus government. 

Returning back to work presentation on FND Australia Support Services Channel : Click here for more details

Transitioning from school to work with a disability: click here for more details

If you feel like you would like to Volunteer in Australia : click here for more details

Caitlins story with FND and work :

If needing to more information and support on working with a disability here is the Fairwork Ombudsman information : click here for more details

Note: the links are related to those in Australia however it is a good idea to look up your disability supports in your country. Here are a few that  I've found so far however there is more out there :  

For USA from what I could see : Job Training and programs for people with a disability

Americans with Disability Act : protecting people with disabilities from discrimination

Office for disability employment policy click here

For Canada: Canadian Association for Supported Employment click here

Canada employment Strategy for Canadians with disabilities click here

For England: Employment disability rights click here: 

Careers and work for disabled people from Disability rights UK click here

Ability Net : Information about Disability and Employment 

Music used in this Podcast is from Soundstripe : licensed for use

Lets be three by Sam Marsh

Just like me by Thruline

Light the way by Ian Kelosky

Map zoom out

Thankyou for listening to the FND PODCAST we are not sponsored by these organizations however they do tremendous work in the FND community.

FND AUSTRALIAN SUPPORT SERVICES  :https://fndaus.org.au/fnd-symptoms/

A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

IF you would like to support FND Australia Services and would like to have a look at some merchandise click here

FND ACTION : https://www.fndaction.org.uk

FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.

FND GUIDE. :https://neurosymptoms.org/en/

A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, ScotlandDr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation

FND DIMENSIONS: http://fnddimensions.org/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another. They have an amazing FND Survival Kit  click here to have a look 

RewiredOT (click here to check it out)  is a compassionate, educational resource hub created by an Occupational Therapist Jason Kruzeman. It offers a unique blend of clinical knowledge and personal insight, focusing on nervous system regulation, sensory processing, and trauma-informed support for people living with FND and other complex conditions.

The website provides accessible guides, tools, and reflections that help people better understand their body’s responses, build safety into daily life, and work with—not against—their nervous system.

Rather than pushing through or "fixing" symptoms, RewiredOT encourages gentle curiosity, pacing, and self-kindness—a refreshing and validating approach for anyone navigating FND.

Whether you're newly diagnosed or looking to deepen your understanding, RewiredOT is a safe, thoughtful space that meets you where you are.https://www.neurokid.co.uk/\

A website for young people and families living with NEAD and neurological symptom

https://fndportal.org/

Amazing website with information and links to fnd

Information on Non Epileptic Seizures or NEAD

https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf

The FND Podcast song of the week:

U & I by Kolidescopes click to listen here

Just a really uplifting song

Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.

The Cadenza for fractured consciousness   From Medium.com on the fnd portal

The Road to Functional Neurological Disorder by Gabriel Brownstein

The published research Paper on FND by Haseel Bhatt

FND is not fake or Malingering

Just a quick reminder that while we love sharing insights and stories here, this podcast is for informational and entertainment purposes only. It’s not meant to be medical advice tailored to your specific needs. We always encourage you to chat with your GP or a medical professional regarding any health concerns or questions you may have. 

To work or not to work with FND that is the real question. It's a hard one to gauge and safely decide and it's definitely not for everyone.  Here's a short conversation we have with Katherine Gill from Australia Support Services and also a sneak preview to the upcoming episodes.

This Episodes notes:

Job Access : the guide to disability employment : click here for more details

Disability support services Australia in Victoria click here for more details

Employment programs: disability *Aus government. 

Returning back to work presentation on FND Australia Support Services Channel : Click here for more details

Transitioning from school to work with a disability: click here for more details

If you feel like you would like to Volunteer in Australia : click here for more details

Caitlins story with FND and work :

If needing to more information and support on working with a disability here is the Fairwork Ombudsman information : click here for more details

Note: the links are related to those in Australia however it is a good idea to look up your disability supports in your country. Here are a few that  I've found so far however there is more out there :  

For USA from what I could see : Job Training and programs for people with a disability

Americans with Disability Act : protecting people with disabilities from discrimination

Office for disability employment policy click here

For Canada: Canadian Association for Supported Employment click here

Canada employment Strategy for Canadians with disabilities click here

For England: Employment disability rights click here: 

Careers and work for disabled people from Disability rights UK click here

Ability Net : Information about Disability and Employment 

Music used in this Podcast is from Soundstripe : licensed for use

Daybreak by Ghostbeatz

Undeniable by Johanna Cranitch

New Start by Jenie Villa

Map zoom out

Thankyou for listening to the FND PODCAST we are not sponsored by these organizations however they do tremendous work in the FND community.

FND AUSTRALIAN SUPPORT SERVICES  :https://fndaus.org.au/fnd-symptoms/

A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

IF you would like to support FND Australia Services and would like to have a look at some merchandise click here

FND ACTION : https://www.fndaction.org.uk

FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.

FND GUIDE. :https://neurosymptoms.org/en/

A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, ScotlandDr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation

FND DIMENSIONS: http://fnddimensions.org/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another. They have an amazing FND Survival Kit  click here to have a look 

https://www.neurokid.co.uk/\

A website for young people and families living with NEAD and neurological symptom

https://fndportal.org/

Amazing website with information and links to fnd

Information on Non Epileptic Seizures or NEAD

https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf

The FND Podcast song of the month:

Rise above by Alberto Giurioli and Geoff Lawson

Click here to listen

Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.

The Cadenza for fractured consciousness   From Medium.com on the fnd portal

The Road to Functional Neurological Disorder by Gabriel Brownstein

The published research Paper on FND by Haseel Bhatt

FND is not fake or Malingering

Just a quick reminder that while we love sharing insights and stories here, this podcast is for informational and entertainment purposes only. It’s not meant to be medical advice tailored to your specific needs. We always encourage you to chat with your GP or a medical professional regarding any health concerns or questions you may have. 

On this episode we talk to Haseel Bhatt who is a specialist Neuro Physiotherapist specialising not only in FND but in other movement Disorders. Join us as we talk FND but also Neurophysiotherapy. Thankyou so very much for talk to us Haseel grateful and very much appreciated we hope you can join us again. Thankyou for all that you do .

This Episodes notes:

Haseel Bhatt is the founder of Neurology Rehab Clinic  

What he offers for treatment with FND click here: and also he has a blog click here to view

He has a research paper that has research paper that has been published click here to view

For Haseel Bhatts instagram follow him @functionalneurologicaldisorder or click here to go to his page

His FND Physiotherapy Course for health practitioners  will be held on 24th-25th May 2025 in Toronto Canada. For more information or to register go to the Neurology Rehab website or click here

Music used in this Podcast is from Soundstripe : licensed for use

Lucky by Lunareh

Just like me by Thruline

Just to breath by Novva

Thankyou for listening to the FND PODCAST we are not sponsored by these organizations however they do tremendous work in the FND community.

FND AUSTRALIAN SUPPORT SERVICES  :https://fndaus.org.au/fnd-symptoms/

A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

IF you would like to support FND Australia Services and would like to have a look at some merchandise click here

FND ACTION : https://www.fndaction.org.uk

FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.

FND GUIDE. :https://neurosymptoms.org/en/

A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, ScotlandDr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation

FND DIMENSIONS: http://fnddimensions.org/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

https://www.neurokid.co.uk/\

A website for young people and families living with NEAD and neurological symptom

https://fndportal.org/

Amazing website with information and links to fnd

Information on Non Epileptic Seizures or NEAD

https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf

The FND Podcast song of the month:

Rise above by Alberto Giurioli and Geoff Lawson

Click here to listen

Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.

The Cadenza for fractured consciousness   From Medium.com on the fnd portal

The Road to Functional Neurological Disorder by Gabriel Brownstein

The published research Paper on FND by Haseel Bhatt

FND is not fake or Malingering

Happy FND Awareness day. To celebrate, we are honored to be speaking to one of the biggest FND advocates in Australia. Dr. Katherine Gill has returned to speak about FND and FND Awareness. Thankyou for talking on the FND Podcast it’s always amazing to hear your perspective and insights about FND as well as what services FND Australia support services does.

This Episodes notes:

If you would like to know more or access the FND Australian Support Services App:
Click here to to find out more about the APP:

Advocacy:

What is patient advocacy?

At the present moment QLD and NSW are the only states that have these programs. Other states in Australia you would need to speak with a Patient Advocate in that hospital.

In Queensland there is Ryans Rule

In NSW there is Reach which is proposed to be renamed recently Joes Rule

Music used in this Podcast is from Soundstripe : licensed for use

Lightspeed by Pala

Leap of Faith by Pala

Thankyou for listening to the FND PODCAST we are not sponsored by these organizations however they do tremendous work in the FND community.

FND AUSTRALIAN SUPPORT SERVICES  :https://fndaus.org.au/fnd-symptoms/

A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

FND ACTION : https://www.fndaction.org.uk

FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.

FND GUIDE. :https://neurosymptoms.org/en/

A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, ScotlandDr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation

FND DIMENSIONS: http://fnddimensions.org/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

https://www.neurokid.co.uk/\

A website for young people and families living with NEAD and neurological symptom

https://fndportal.org/

Amazing website with information and links to fnd

Information on Non Epileptic Seizures or NEAD

https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf

The FND Podcast song of the month:

Never be alone by Shawn Mendes

https://youtu.be/N7VCLNBNJQs?si=0SEAetWzyoNAqylV

Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.

The Cadenza for fractured consciousness   From Medium.com on the fnd portal 

The Road to Functional Neurological Disorder by Gabriel Brownstein 

The FND podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.

Thankyou for listening to the FND PODCAST we are not sponsored by these organizations however they do tremendous work in the FND community.

FND AUSTRALIAN SUPPORT SERVICES  :https://fndaus.org.au/fnd-symptoms/

A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

FND ACTION : https://www.fndaction.org.uk

FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.

FND GUIDE. :https://neurosymptoms.org/en/

A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, ScotlandDr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation

FND DIMENSIONS: http://fnddimensions.org/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

https://www.neurokid.co.uk/\

A website for young people and families living with NEAD and neurological symptom

https://fndportal.org/

Amazing website with information and links to fnd

Information on Non Epileptic Seizures or NEAD

https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf

The FND Podcast song of the month:

Never be alone by Shawn Mendes

https://youtu.be/N7VCLNBNJQs?si=0SEAetWzyoNAqylV

Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.

The Cadenza for fractured consciousness   From Medium.com on the fnd portal 

The Road to Functional Neurological Disorder by Gabriel Brownstein 

MUSIC from Sounstripe: licensed and approved to use on this podcast.

Warning: this episode contains sensitive topics which can be triggering to some listeners. Please be advised.

On this episode of the JJsegment Jess talks about how life has been this past year and about Mental Health. We are grateful that she has shared how she has been. Thankyou Jess for sharing. In the meantime she is an incredible author and you can support Jess also by reading her wonderful book!  Follow Jess on Instagram @functionallyjessWIDOWS FLAME: Jess is an author and she has received glowing reviews on her book. She is an amazing writer and you can purchase and read her book at most book stores.

https://www.shawlinepublishing.com.au/our-titles/display/252-widowand%2339%3Bs-flame

Goodreads:

https://www.goodreads.com/en/book/show/63062237

Booktopia:

https://www.booktopia.com.au/widow-s-flame-jess-mcfarlane/ebook/9781922850126.html

Foreign Accent syndrome

https://pubmed.ncbi.nlm.nih.gov/27234850/#:~:text=Foreign%20accent%20syndrome%20(FAS)%20is,a%20video%20of%20her%20speech.

https://youtu.be/x18AQT6yKGg

NDIS:(available in Australia) https://www.ndis.gov.au/understanding/what-ndis

The NDIS Provides funding to eligible people with disability to gain more time with family and friends, greater independence, access to new skills, jobs , or volunteering in their community and an improved quality of life. The NDIS connects anyone with disability to services in their community. 

Is it still relevant the BMI index: it's questionable

https://www.medicalnewstoday.com/articles/265215#Waist-to-height-ratio-better-than-BMI

Food pyramid relevant still?

https://www.houstonmethodist.org/blog/articles/2019/dec/is-the-food-pyramid-still-relevant/

Introducing the myplate:

https://www.uabmedicine.org/news/myplate-healthy-eating-chart-replaced-the-food-pyramid/#:~:text=In%202011%2C%20the%20U.S.%20Department,start%2C%20MyPlate%20is%20for%20you.

A previous episode of medical cannibis:

https://thefndpodcast.simplecast.com/episodes/conversations-with-chrissie-lets-talk-medical-cannibis

The game:Marrying Mr Darcy

https://boardgamegeek.com/boardgame/145308/marrying-mr-darcy

The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.

The FND Podcast with detty : song resonating at the moment maybe our song :

The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.

https://youtu.be/o3sXlxg4d5c

Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.

The Cadenza for fractured consciousness   From Medium.com on the fnd portal 

The Road to Functional Neurological Disorder by Gabriel Brownstein 

Also anything covid related and fnd here on neuro symptoms :

https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/

A recent article written June this year what do you think ? From MJA 

https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist 

https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1

FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW

https://imprintmerch.com.au/collections/lets-have-the-chat

from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!

HELPFUL RESOURCES:

A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

https://www.neurosymptoms.org/

Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.

https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0

An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!

Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation

https://www.tiktok.com/@drbuttgastro/video/7020472244954549510

https://www.neurokid.co.uk/\

A website for young people and families living with NEAD and neurological symptom

https://fndportal.org/

Amazing website with information and links to fnd

Information on Non Epileptic Seizures or NEAD

https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf

FND ORGANISATIONS:

https://www.fndaus.org.au/

FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

FND Australia Support services App:

Android

https://apksos.com/app/fndaustralia.com

Apple

https://apps.apple.com/au/app/fnd-australia-support-services/id1613121706

Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is

https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services

FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.

https://www.fndaction.org.uk/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

http://fnddimensions.org/

A really helpful article and explanation of what FND is: '

https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ
 

Other podcasts/ blogs / vlogs to follow:

itsmeitsmeitsfnd

by none other than our Jake! 

https://www.tomplender.com/

Tom Plender : follow this amazing creative human his art, music and writing on fnd 

https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
Bed Life and Beyond by Rach also a lovely FNDer

https://pandoralocksmith.wordpress.com/about/

John McLeans Fnd Journey

https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0

Lmtd Life with FND

https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos

FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks

Instagram follow Emma’s journey :@emmas_fnd_fun

People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out

Dylan Alcott

Athelete , paraolympics , podcaster , raising awareness and voices of the disabled

Instagram :@ listenable_podcast @dylanalcott

Website: www.abilityfest.com.au

Elle Stella

Business Success Coach , Paraolympian & intuitive healer

Instagram: @iamellesteele

Website: www.iamellesteele.com

Carly Findlay

Activist, writer, Blogger with a condition called ichtchyosis.

Instagram: @carlyfindlay

Website: www.carlyfindlay.com.au

Sophie Butler

Shes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitude

Instagram: @sophjbutler

YouTube: https://youtu.be/wgfAYDlXXvM

Meg Jacks

She is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FND

Instagram: @Meg.Jacks_

TicTok: Megjacks

Julian Gavino

(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation

Instagram:  @thedisabledhippie

Nina Tame aka the Lunch Lady

She’s a single mum who’s disabled and a disability advocate. Parenting with disability

Website: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/

Chloè Haden

she is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.

Instagram: @princesssapien

Website: https://www.chloehayden.com.au/

Youtube: Chloè Haden

Style like U

Founded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.

Website: https://stylelikeu.com/about-us/

Lucy Dawson

who unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.

Instagram : @luuudaw

Website: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/

Cripple Media

Cripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awareness

Instagram: @cripple media

Website: https://cripplemedia.com/about/

Aaron Rose Philip

 For more information check out this wonderful article here

https://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893

Instagram:aaron_phillip transgendered disabled fabulous Model check him out

Nicole Parish

she is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest

A great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it out

https://www.thedailyaus.com.au/