BloodStream

Clinical Trials, Caregiving, and NEW MUSIC!?


Listen Later

On this episode, Patrick James Lynch honors the late Neil Frick, Senior VP for Medical Programs at the National Bleeding Disorders Foundation, recognizing his invaluable two-decade contribution to the bleeding disorders community. We also discuss hemophilia B gene therapy with Dr. Mark Redding, focusing on unique clinical trial designs and the role of steroids. Additionally, Makenna Dietrich shares her journey in bleeding disorder advocacy. The episode includes updates from Star Therapeutics on subcutaneous therapy for von Willebrand disease and insights on closing racial health equity gaps in the US. We also invite you to help pick a new BloodStream "theme song".

Presenting Sponsor:

Takeda, visit bleedingdisorders.com to learn more.

Show Notes:

Subscribe:

The BloodStream Podcast

Hemophilia Uncensored Social Media: Instagram & TikTok

Star Therapeutics Presents Clinical Data for VGA039, a Subcutaneous Therapy for the Treatment of Von Willebrand Disease (VWD)

How the U.S. can close longstanding racial health equity gaps

It's a Whole New World Gene Therapy Segment brought to you by CSL Behring, which now has a first-of-its-kind hemophilia B treatment. Visit BeyondHemB.com or download B SUPPORT wherever you get your apps for more information.

Connect with BloodStream Media:

BloodStreamMedia.com

BloodStream on Facebook

BloodStream on Twitter

...more
View all episodesView all episodes
Download on the App Store

BloodStreamBy BloodStream Media

  • 4.9
  • 4.9
  • 4.9
  • 4.9
  • 4.9

4.9

43 ratings


More shows like BloodStream

View all
Hidden Brain by Hidden Brain, Shankar Vedantam

Hidden Brain

43,589 Listeners

Reveal by The Center for Investigative Reporting and PRX

Reveal

8,432 Listeners

Code Switch by NPR

Code Switch

14,615 Listeners

Ask The Expert Presents Hemophilia on Balance by BloodStream Media

Ask The Expert Presents Hemophilia on Balance

14 Listeners

The Pain Podcast by BloodStream Media

The Pain Podcast

24 Listeners

Up First from NPR by NPR

Up First from NPR

56,496 Listeners

Where Should We Begin? with Esther Perel by Esther Perel Global Media

Where Should We Begin? with Esther Perel

14,917 Listeners

Crime Junkie by Audiochuck

Crime Junkie

369,001 Listeners

Today, Explained by Vox

Today, Explained

10,203 Listeners

The Journal. by The Wall Street Journal & Spotify Studios

The Journal.

6,081 Listeners

Cheat Codes: A Sickle Cell Podcast by BloodStream Media

Cheat Codes: A Sickle Cell Podcast

42 Listeners

BloodStream Journeys by BloodStream Media

BloodStream Journeys

6 Listeners

It's In The Genes: A Gene Therapy Podcast by BloodStream Media

It's In The Genes: A Gene Therapy Podcast

10 Listeners

FLOW - straight talk about extreme periods by BloodStream Media

FLOW - straight talk about extreme periods

15 Listeners

Huberman Lab by Scicomm Media

Huberman Lab

29,165 Listeners

The Ezra Klein Show by New York Times Opinion

The Ezra Klein Show

15,863 Listeners

Blood of the Paladin by BloodStream Media

Blood of the Paladin

2 Listeners

Handsome by Headgum

Handsome

13,462 Listeners

The Final Summit by BloodStream Media

The Final Summit

12 Listeners

Just Listen: Voices of PK Deficiency Podcast by BloodStream Media

Just Listen: Voices of PK Deficiency Podcast

10 Listeners

Global Hemophilia Report by BloodStream Media

Global Hemophilia Report

10 Listeners