Join Jennifer Angelone and Karli Negrin as they talk with Jonathan Iris-Wilbanks, Executive Director of the Edward J. Madden Open Hearts Camp. As taken from the website (https://www.openheartscamp.org/camp-info): "The Edward J. Madden Open Hearts Camp supports the brave children who have undergone the rigors of open heart surgery or received a heart transplant. We connect them in an emotionally supportive, enriching, colorful, and empowering environment that helps them relate to other children, grow individually, and have a tremendous experience." Get ready to be wowed by this special place for heart patients and the history and love that goes into making it so wonderful.

To learn more about the Edward J. Madden Open Hearts Camp:
Instagram: https://www.instagram.com/openheartscamp/

Facebook: https://www.facebook.com/OpenHeartsCamp

Website: https://www.openheartscamp.org/

Join hosts Dr. Caroline Lee and Karli Negrin to discuss the new 2024 American Heart Association Scientific Statement regarding Neurodevelopmental Outcomes for Individuals with Congenital Heart Disease. Our hosts are joined by 4 of the authors, Drs. Erica Sood, Jane Newburger, Amy Lisanti and Brad Marino, to discuss this important publication. This wide-ranging discussion highlights advances made since the previous scientific statement in 2012, covering updates in neuroprotection, risk stratification, evaluation, and management.

Hosts Dr. Caroline Lee and Karli Negrin talk to three leaders within the CNOC Diversity and Inclusion Special Interest Group (SIG): Dr. Liz Willen, Dr. Sonia Monteiro, and Dr. Faridis Serrano Forty on the importance, and challenges, of diversity, equity, and inclusion when caring for children with congenital heart disease.

CNOC Talk is a podcast of the Cardiac Neurodevelopmental Outcome Collaborative (CNOC). CNOC Talk is for patients, parents, and professionals to discuss all aspects related to cardiac neurodevelopment across the lifespan. We hope this podcast provides education and inspiration as we all work towards improving the quality of life for pediatric heart patients. 

On the inaugural episode, Dr. Caroline Lee and Karli Negrin talk with several of the current leaders of CNOC - Dr. Shab Peyvandi (Co-Chair), Dr. Kelly Wolfe (Co-Chair), and Dr. Sarah Kelly (Secretary). Take 25 minutes to learn about the history of the organization and the energy behind the great work on-going!

About the hosts: 

Caroline Lee, MD is a Pediatric and Fetal Cardiologist at Washington University and St. Louis Children's Hospital. She is the Director of the Cardiac Neurodevelopmental Program at St. Louis Children's Hospital. Karli Negrin, MS, CCC, SLP is a Speech Language Pathologist at Nemours Children's Health in Wilmington, Delaware. She is Co-Chair of the Communications Committee of CNOC.

About CNOC:

Our Vision

The Vision of the Cardiac Neurodevelopmental Outcome Collaborative is to be a multicenter, multinational, multidisciplinary inclusive group of healthcare professionals committed to working together and partnering with families to optimize neurodevelopmental outcomes for individuals with pediatric and congenital heart disease through clinical, quality, and research initiatives, intending to maximize quality of life for every individual across the lifespan.

Our Mission:

The Mission of the Cardiac Neurodevelopmental Outcome Collaborative is to determine and implement best practices of neurodevelopmental services for every individual with pediatric and congenital heart disease and their families through clinical, quality improvement, and research initiatives.