collectively coeXisting

Interview with Brittney Spencer, an X-Linked woman "carrier" with Fragile X Syndrome.

Interview with Julia Apodaca-Lane, an X-Linked woman patient with Fragile X Syndrome.

Interview with Stephanie Surbaugh Payne, an X-Linked “Carrier” of Myotubular Myopathy, also known as MTM.

Interview with Loris Pesante, an X-Linked “Carrier” of Myotubular Myopathy, also known as MTM.

Interview with Emma Bliss, X-Linked Carrier of Myotubular Myopathy, also known as MTM.

Interview with Barbara Machado, X-Linked Carrier of Adrenoleukodystrophy, also known as ALD.

Interview with Taylor Kane, X-Linked Carrier of Adrenoleukodystrophy, also known as ALD.

Welcome to The Remember The Girls Podcast with Emma Bliss + Taylor Kane as your hosts! We represent women with x-linked genetic disorders and look forward to sharing their stories with you here. Stay tuned as we share our journeys as "carriers" in the rare disease world. Our goal is to educate, advocate, bring community and awareness to your space, as well as make it known that women "carriers" are NOT JUST CARRIERS. Please reach out to us at any time with any questions, concerns or collaboration ideas at [email protected]