Bio

"Hi, I'm Jeff. My story is in many ways typical: I was a healthy, active individual who became ill after an acute viral infection and a fever of 102F. After the acute viral symptoms subsided, I didn’t regain my health. Instead, I became far more ill than I could have imagined.

What is not typical in my case: I ultimately figured out, and treated, the underlying cause of my severe condition. I figured out the cause and treatment through my own research. I was fortunate. As a graduate student trained in research, I was comfortable navigating academic medical journals. I figured out what was causing my condition through researching obsessively, identifying patterns, reading our community’s stories, and after becoming so ill that I could have died."