Connecting ALS

Today, we close out our week of special programming centered on The International Alliance of ALS/MND Associations annual meeting and Allied Professionals Forum with a conversation with Cathy Cummings, the Alliance’s executive director. Cathy lays out what she sees on the horizon in the global fight against ALS.

This episode is brought to you by The ALS Association in partnership with CitizenRacecar.

Today, Jeremy talks to Guðlaug Gísladóttir, a presenter at this year’s Allied Professionals Forum and a dietician at the National University Hospital of Iceland, about ways to make meal times and eating more enjoyable for people living with ALS.

For tips on maintaining good nutrition while living with ALS go to https://www.als.org/navigating-als/resources/maintaining-good-nutrition-als

This episode is brought to you by The ALS Association in partnership with CitizenRacecar.

Today, Jeremy talks to Dr. Colleen O’Connell, Medical Director at New Brunswick’s Stan Cassidy Centre for Rehabilitation and Clinical Research Director of University of New Brunswick Institute of Biomedical Engineering, who delivered the keynote address during the International Alliance of ALS/MND Associations’ annual meeting, talking about the right of everyone living with ALS to a quality of life.

This episode is brought to you by The ALS Association in partnership with CitizenRacecar.

Today, Jeremy checks in from the International Alliance of ALS/MND Associations for an update on access to high quality care around the world and talks to Maureen Clark, Director of Business Intelligence at The ALS Association about efforts to build a clinic locator map.

Learn more about multidisciplinary care for people living with ALS at https://www.als.org/local-support/certified-centers-clinics

Find an ALS clinic near you at https://www.als.org/local-support/certified-centers-clinics/locator

This episode is brought to you by The ALS Association in partnership with CitizenRacecar.

Today, Jeremy kicks off a week of coverage in conjunction with the International Alliance of ALS/MND Associations’ meeting and the Allied Professionals forums by connecting with Calaneet Balas, President and CEO of The ALS Association, and Chair of the International Alliance.

You can follow The International Alliance of ALS/MND Associations on Twitter at https://twitter.com/ALSMNDAlliance

Keep up with The International Alliance of ALS/MND Associations via Facebook at https://www.facebook.com/TheIntlAlliance

This episode is brought to you by The ALS Association in partnership with CitizenRacecar.

This week, Jeremy welcomes members of Her ALS Story to talk about the power of connecting with people who are on a similar journey while living with ALS.

Learn more about Her ALS Story at https://heralsstory.org/

This episode is brought to you by The ALS Association in partnership with CitizenRacecar.

This week Jeremy is joined by Gerald McCormick, a veteran living with ALS and former state lawmaker in Tennessee, reflecting on the connection between ALS and military service and digging into some ways to engage in advocacy to move the fight against ALS forward.

Learn more about the connection between ALS and military service at https://www.als.org/navigating-als/military-veterans

Find the full report on ALS and the military at https://www.als.org/sites/default/files/2020-04/navigating-als_military-veterans_als-in-military-white-paper_0.pdf

Read stories of veterans who have been impacted by ALS at https://www.als.org/navigating-als/military-veterans/wall-of-honor

This episode is brought to you by The ALS Association in partnership with CitizenRacecar.

This week, Jeremy welcomes Kristina Woody on to talk about her role as a caregiver to her husband, Lamar, and to reflect on what more we can do to support family caregivers.

For more information on how to support caregivers, go to https://www.als.org/navigating-als/for-caregivers

Learn more about caregiver needs at https://www.als.org/research/als-focus/survey-results/survey-3-results

Read about the Woody family at https://www.als.org/blog/woody-family-living-als

This episode is brought to you by The ALS Association in partnership with CitizenRacecar.

This week, Jeremy is joined by Daniel Cramer from The ALS Association advocacy and public policy team and Jann Vasiloff, a leading advocate of the Justice for ALS Veterans Act about the fight to make sure surviving spouses have access to the benefits they deserve.

Tell your member of Congress to support the Justice for ALS Veterans Act by going to https://als.quorum.us/campaign/42907/

Learn more about the Justice for ALS Veterans Act at https://www.als.org/stories-news/als-association-urging-congress-act-justice-als-veterans-act

This episode is brought to you by The ALS Association in partnership with CitizenRacecar.

This week Jeremy talks to Lamar Woody, who was diagnosed with ALS in 2018, about his life, his family and what he’s doing to help create a world without ALS. To follow the Woody family’s story over the coming weeks, check out The ALS Association’s blog at https://www.als.org/blog.

This episode is brought to you by The ALS Association in partnership with CitizenRacecar.