Connecting Citizens to Science

In this two-part mini-series we are focusing on health systems strengthening- what it is, how to do it and what action is needed to ensure that the approach is embedded in discussions at key global events and discussion platforms.

This episode follows on from the first episode from the Centre for Health Systems Strengthening at the Liverpool School of Tropical Medicine (episode 60) which focused on the health diplomacy and how researchers can advocate for health systems strengthening approaches and community voices in health diplomacy spaces.

Today we hear from two advocates who have been acting within health diplomacy spaces and as researchers. We hear from Emmanuel Zaizay, who is affected by the Neglected Tropical Disease Buruli Ulcer, about his experience of growing skills and capacity to communicate the needs of people affected by stigmatising neglected tropical diseases.

We also hear from Maurine Murenga, a TB advocate who has represented the TB community in high level UN meetings. She is open and honest about both the strengths and opportunities of being an advocate, but also what this means to her on a personal level. Her open reflections are really critical to how researchers function when engaging with communities.

Episode guests:

Dr Kerry Millington - Research Uptake Manager, Liverpool of Tropical Medicine

Kerry has been working in global health for over 20 years with a keen focus on ending the tuberculosis epidemic. A key part of her work is developing trusted relationships with range of stakeholders to work in partnership, in collaboration and in a coordinated way ensuring the academic and health professional voice credibly informs decisions that impact on health. This can range from co-creating research ideas to influencing policy and political commitments. A key stakeholder to engage with is the voice of TB survivors and advocates to accelerate action for those in most need of innovations in TB care and prevention to transform lives.

Maurine Murenga - Coordinator of TB Women Global

Maurine Murenga is a passionate advocate for the health, development and human rights of women and children. Maurine’s passion for advocacy is driven by her lived experience, and the inequality and vulnerability that young women and adolescent girls experience in her community.

Maurine is currently the coordinator of TB Women Global, Board Member of Unitaid, Friend of the Fight US and EGPAF Kenya. She is a former board member of the Global Fund to fight AIDS, TB and Malaria and is also a member of WHO's Global Accelerator for Pediatric Formulations Advisory and Union Working Group Gender Equity in TB. In Kenya – Maurine is a member of the Global Fund Country Coordinating Mechanism and Elimination of Mother to Child Transmission of HIV Committee of Experts.

Emmanuel Zaizay – Co-researcher and advocate, REDRESS, Liverpool School of Tropical Medicine

Emmanuel Zaizay is from Lofa County, Voinjama District. He works with REDRESS as a coresearcher and was recruited as a patient affected person having been diagnosed with Buruli ulcer. He also serves as a data collector, working in photovoice settings and participatory methods such as bodymapping and focus group discussions.

Useful links:

• S8E3 - Being a co-researcher with lived experience of an NTD - Emmanuel Zaizay, who is a peer researcher in the REDRESS programme and is affected by Buruli Ulcer, a neglected tropical disease, features in this earlier epsiode. He shares with us the value of learning new skills, through becoming a co-researcher, which has helped him better connect with his community and contribute to the improvement of medical and psychosocial services for people living with NTDs.
• CHESS - Liverpool School of Tropical Medicine - CHESS is a multi-disciplinary group using research and teaching to strengthen health systems and to improve health and well-being amongst the poorest and marginalised in low and middle-income countries (LMIC).

Want to hear more podcasts like this?

Follow Connecting Citizens to Science on your usual podcast platform or YouTube to hear more about the methods and approaches that researchers apply to connect with communities and co-produce solutions to global health challenges.

The podcast covers wide ranging topics such as NTD’s, NCD’s, antenatal and postnatal care, mental wellbeing and climate change, all linked to community engagement and power dynamics.   

If you would like your own project or programme to feature in an episode, get in touch with producers of Connecting Citizens to Science, the SCL Agency.  

Hello Listeners! In this episode we are joined by the Centre for Health Systems Strengthening at the Liverpool School of Tropical Medicine, also known as CHESS. In this first episode of a two-part mini-series focusing on health systems strengthening, we talk about health diplomacy and why it is needed.

We hear from Dr. Joanna Raven and Dr. Kerry Millington, who have both been working in global health for over 20 years and are passionate about embedding both health systems strengthening approaches and community knowledge into political commitments and policy reforms.

Bringing a perspective from the fields of maternal and child health, lung health and tuberculosis, Dr Uzochukwu Egere co-hosts this episode where we discuss health diplomacy as a new field for academics and healthcare professionals. One that is about making connections, sharing intel and learning how the United Nations and other High-Level Meetings work, so we can effectively share evidence quickly in often extremely short windows of opportunity, so policy makers can listen and act.

Dr Uzochukwu Egere - Senior Research Associate, Emergency Obstetric and Quality of Care Unit, Department of International Public Health (Liverpool School of Tropical Medicine)

Uzo is a paediatrician and public health researcher with extensive experience in multidisciplinary global health research. His research interest is in implementation research and health systems strengthening to tackle inequities in the fields of Maternal and Child health, Lung health and Tuberculosis. Uzo’s work focuses on health and health systems challenges relevant to low-and middle-income settings and facilitates interactions between researchers and consumers of research outputs (the community) to ensure timely policy change, uptake of interventions, and universal health coverage.

Dr Joanna Raven - Reader in health systems, Liverpool School of Tropical Medicine

Jo has worked in global health for more than 25 years, focusing on strengthening health systems. Jo is a researcher with a passion for co-designing and implementing health system research with local stakeholders including community members, health workers, health managers and decision makers. As a health worker herself, Jo’s work focuses on supporting the health workforce to deliver people-centred care that is of good quality and leaves no one behind.

Dr Kerry Millington – Research Uptake Manager, Liverpool School of Tropical Medicine

Kerry has been working in global health for over 20 years with a keen focus on ending the tuberculosis epidemic. A key part of her work is developing trusted relationships with range of stakeholders to work in partnership, in collaboration and in a coordinated way ensuring the academic and health professional voice credibly informs decisions that impact on health. This can range from co-creating research ideas to influencing policy and political commitments. A key stakeholder to engage with is the voice of TB survivors and advocates to accelerate action for those in most need of innovations in TB care and prevention to transform lives.

Research programme links:

ReBUILD for Resilience - Research on health systems in fragile contexts

PERFORM2scale – Scaling up PERFORM

ReDRESS - Strengthening people-centred health systems for people affected by severe stigmatising skin diseases in Liberia

LIGHT - Aims to support policy and practice in transforming gendered pathways to health for people with TB in urban settings

Want to hear more podcasts like this?

Follow Connecting Citizens to Science on your usual podcast platform or YouTube to hear more about the methods and approaches that researchers apply to connect with communities and co-produce solutions to global health challenges.

The podcast covers wide ranging topics such as NTD’s, NCD’s, antenatal and postnatal care, mental wellbeing and climate change, all linked to community engagement and power dynamics.   

If you would like your own project or programme to feature in an episode, get in touch with producers of Connecting Citizens to Science, the SCL Agency.  

In this episode we will be hearing about a seven year research programme known as COUNTDOWN. COUNTDOWN consisted of multidisciplinary research teams across 4 countries- Ghana, Liberia, Nigeria and Cameroon and used co-production research approaches to improve the equity and efficiency of health systems interventions to control and eliminate seven Neglected Tropical Diseases.

Research was implemented at each of the health system levels from policy to community and is all documented in the Journal ‘International Health’ as a supplement entitled Stronger together: evidence for collaborative action on neglected tropical diseases. The supplement tells the story of how the programme engaged with people who have lived experience, health workers, and policy makers and really emphasises the importance of togetherness.

Our guests today are Dr Luret Lar who was the programme manager employed by Sightsavers Nigeria, a collaborator on the COUNTDOWN programme, Dr Karsor Kollie who is the Program Director for Neglected Tropical Diseases at the Ministry of Health Liberia and Laura Dean from the Liverpool School of Tropical Medicine who was the Social Science lead for COUNTDOWN.

Dr Laura Dean – Lecturer, Liverpool School of Tropical Medicine

Laura has worked for the last 15 years in the use of participatory health research methodologies to support community and health systems development across sub-Saharan Africa and south Asia. Through participatory action research projects, she supports capacity strengthening within communities and health systems so that stakeholders can identify challenges and co-produce solutions. The majority of her work has focused on increasing inclusion and participation of people with lived experience of mental health conditions and chronic infectious diseases of poverty, for example neglected tropical diseases.

Dr. Luret Lar - Medical Doctor, Public Health Physician, Lecturer, University of Jos, Nigeria

Luret was involved in implementation research for seven years in collaboration with Liverpool School of Tropical Medicine when she was working for Sightsavers. Her interest and passion about preventive medicine and including the voices of the voiceless have influenced her research career over the years. Luret was interested in inclusivity at all levels of implementation in the neglected tropical diseases programme. This connected her with people affected by neglected tropical diseases and implementers at the community facility, state, and federal levels. She worked closely with these implementers to co-produce solutions to implementation challenges that everyone collectively identified.

Karsor Kollie – Programme Director, Ministry of Health, Liberia

Since 2011, Mr Kollie has established and headed the Liberian Integrated NTDs Prevention and Control Programme and is based within the Ministry of Health and Social Welfare. He developed the NTD country master plan which forms the operational national guide for the next 5 years.

Under his leadership the Liberian programme is making excellent progress in MDA control of Lymphatic Filariasis, Onchocerciasis, Schistosomiasis, Soil-transmitted Helminthiasis (STH) where treatment coverage has not gone below 75%, respectively. Alongside this, he is making significant progress in the development and application of new monitoring and evaluation criteria tailoring activities effectively with difficult on-the-ground terrain.

Want to hear more podcasts like this?

Follow Connecting Citizens to Science on your usual podcast platform or YouTube to hear more about the methods and approaches that researchers apply to connect with communities and co-produce solutions to global health challenges.

The podcast covers wide ranging topics such as NTD’s, NCD’s, antenatal and postnatal care, mental wellbeing and climate change, all linked to community engagement and power dynamics.   

If you would like your own project or programme to feature in an episode, get in touch with producers of Connecting Citizens to Science, the SCL Agency.  

In this episode we are talking about the FEPOW Research Group. FEPOW stands for Far East Prisoners of War, and it focuses on capturing the history of civilian captives during the second World War and the impact that this has had on subsequent generations.

The group brings together veterans, their families, writers, and academics to create a friendly space to capture stories that we can learn from and apply to research now.

Approximately 240,000 Allied servicemen had become prisoners of war of the Japanese by early 1942. Over 50,000 British were captured during the fighting in Hong Kong, Malaya, at the fall of Singapore and across the former Dutch East Indies (now Indonesia). The 415-kilometre Thailand-Burma railway was built by Far East prisoners of war (FEPOW) who were part of a huge slave labour force drafted from across the region. The railway provided the Japanese with a vital supply route for their fighting forces in Burma. It was forged through raw jungle, across mountain passes and was completed in a little over 15 months in October 1943. Of the 30,000 British FEPOW sent to camps in Thailand and Burma over 6,600 died.

For this episode, we welcome a new co-host, Geoff Gill from the Liverpool School of Tropical Medicine, where he has been involved with research and clinical care of former Far East prisoners of war.

He has led the medical history inquiries into Far East imprisonment, resulting in two recent books, Captive Memories, and Burma Railway Medicine. We also have two great guests, Brian Spittle and James Reynolds.

Geoff explains to us “I think one of the things I've learnt over the years, is that there are many different ways of telling a story and there's no one right way there, there are many different ways.” and in direct reference to the stories shared directly from the FEPOWs and their archives “It's a story worth learning from, and I think we have receptive generations to tell it to.”

This episode features:

Prof. Geoff Gill – Professor of International Medicine, Liverpool School of Tropical Medicine 

Geoff Gill is Professor of International Medicine at the Liverpool School of Tropical Medicine (LSTM) and the University of Liverpool, and a retired NHS Consultant Physician. At LSTM he has been involved in the medical care of ex-Far East Prisoners of War (POWs), as well as extensive clinical research into their ongoing health problems – notably persisting malaria and amoebic dysentery, chronic worm infestations, hepatitis B infection, long-term effects of vitamin deficiency, and the extensive psychological aftermath. He has published extensively on these and other POW-related health issues. More recent research has involved the medical history of the Far East POW experience, in particular on the Thai-Burma Railway. This resulted in a PhD degree in 2009, and the book Burma Railway Medicine (with Meg Parkes) published in 2017. The LSTM Far East POW Project has been in operation in different forms since late 1945, and is the longest collaboration in the School’s history.

Brian Spittle

Brian grew up in the UK and in his mid-twenties moved to the United States to pursue postgraduate studies. He has lived in Chicago for the past forty years, retiring from a career in higher education administration six years ago. His father, Jack Spittle, was in the RAMC during the Second World War, arriving in Singapore at the end of November 1941. He worked in the dysentery wing at Roberts Hospital at Changi, and followed the hospital moves to Selarang and Kranji. A keen ornithologist, he made detailed observations of the birds at Changi, publishing them after the war in the Bulletin of the Raffles Museum. It was only after his father died in 2004 that Brian found the notebooks he had made in captivity. Brian is close to completing a memoir about his own journey to understand more of Jack Spittle’s time as a POW and of his own childhood growing up with a father with PTSD. The working title for the memoir is: Bird’s Eye View.

James Reynolds 

James Reynolds is the grandson of FEPOW Eric Cordingly, and the son of author Louise Cordingly. James has worked for the BBC since 1997, firstly as a foreign correspondent, now as a news presenter on the World Service. He's spent many years covering the effects of war.

Find out more about LSTM's FEPOW programme here: https://www.lstmed.ac.uk/history/far-eastern-prisoners-of-war-fepow

Want to hear more podcasts like this?

Follow Connecting Citizens to Science on your usual podcast platform or YouTube to hear more about the methods and approaches that researchers apply to connect with communities and co-produce solutions to global health challenges.

The podcast covers wide ranging topics such as NTD’s, NCD’s, antenatal and postnatal care, mental wellbeing and climate change, all linked to community engagement and power dynamics.    

If you would like your own project or programme to feature in an episode, get in touch with producers of Connecting Citizens to Science, the SCL Agency.

Have you heard the term SciArt before? In this episode, we explore what it is and the benefits of combining art and science as a research and communication tool.

Our Co-host for this episode is Elli Wright, Public Engagement Manager at the Liverpool School of Tropical Medicine. Elli told us ‘...effective science communication can really connect people and communities with research. Science communicators and public engagement professionals want to reduce the elitism built into society with regards to who is allowed to access scientific knowledge. Science belongs to all of us which is why effective science communication is so important. There are many ways that science can be communicated to the diverse public audience, including through art.’

Natasha Niethamer shared with us, ‘the more we engage others about public health concerns that require global efforts to fight, the more likely we are to inspire community action, driving interest in policy makers and funders. Directly inspiring even one teacher, parent, young person, or community member may indirectly inspire a large network of their own. You may inspire the next major activist of our generation!’

Listen on to find out more about how a playful approach can bring new insights to your work.

This episode features:

Dr Elli Wright - Public Engagement Manager, Liverpool School of Tropical Medicine

Elli has been working in the science communication and public engagement sector at Liverpool School of Tropical Medicine for nearly 8 years. She is currently studying an MSc. in science communication at the University of the West of England, which has given her a stronger understanding of the theories behind science communication practices. Her research explores the use of autoethnography as a tool to the co-creation of the Tropical Medicine Time Machine by artists Tom Hyatt and Natasha Neithamer (also featured in this episode).

Mark Roughley - Senior Lecturer 3D Digital Art, Liverpool John Moores University

Mark is a Senior Lecturer in 3D Digital Art at Liverpool School of Art and Design and a member of the Face Lab research group that explores faces and art-science applications. Mark trained as a medical artist, gaining his MSc in Medical Art from the University of Dundee, and specialises in visualising anatomy through 3D data acquisition, modelling and fabrication. His research focuses on the affordances of 3D digital technologies for both digital and haptic interaction with anatomical and cultural artefacts. Mark is also the programme leader for the MA Art in Science programme, which provides exciting opportunities for artists and scientists to collaborate and explore the boundaries of art and science.

Tom Hyatt - PhD Student at the Liverpool School of Art & Design, Liverpool John Moores University

Tom is a polymathic artist, musician, scientist, educator, and maker from Rossendale, Lancashire. After graduating with a Masters in physics and philosophy from Oxford University he moved to London to pursue grassroots music and a career in the arts, while teaching maths and physics. He moved back up to Liverpool after receiving a PhD scholarship to study at the Liverpool School of Art and Design. Recently he has been working with Natasha Niethamer to create the ‘Tropical Medicine Time Machine’ for LSTM – a multifaceted piece of sci-art public engagement that encompasses the length and breadth of LSTM’s prolific 125 years.

Natasha Niethamer – SciArtist, Liverpool School of Tropical Medicine

Natasha is a SciArtist commissioned to create a pop up museum for LSTMs 125th Anniversary, along with a set of interactive loan boxes for use in local primary schools. Natasha has a special interest in sci-art activism and public outreach in microbiology and antimicrobial resistance. In 2020, she graduated from the MA Art in Science programme at Liverpool John Moores University. Her final MA project, an interactive choose-your-own text adventure called Bacteria, The Future, follows the heroic journey of a human from the 2050s travelling back in time as a bacteria to administer antibiotics to novel resistant microbes inside Hugh Manity, an unfortunate human in our present day, to save future humanity from the urgent global health crisis of antimicrobial resistance (AMR). Natasha also has an academic and professional background in microbiology, and since graduating spent time working in Dr Adam Roberts’ research lab at LSTM studying AMR mechanisms of evolution in clinical bacterial isolates. She grew up in California, USA and obtained a double major in Microbiology and Molecular Biology at Cal Poly SLO. She worked in plankton research, as an emergency room scribe, graphic design, and as a university science tutor.

Want to hear more podcasts like this?

Follow Connecting Citizens to Science on your usual podcast platform or YouTube to hear more about the methods and approaches that researchers apply to connect with communities and co-produce solutions to global health challenges.

The podcast covers wide ranging topics such as NTD’s, NCD’s, antenatal and postnatal care, mental wellbeing and climate change, all linked to community engagement and power dynamics.   

If you would like your own project or programme to feature in an episode, get in touch with producers of Connecting Citizens to Science, the SCL Agency.  

In this episode, we are going to celebrate World Malaria Day with our co-host and guests. This year's theme is Time to Deliver Zero Malaria, and it is focused on investing, innovating, and implementing tools that are available today and innovating for future tools.

WHO calls to action include prioritising funding for the most marginalised and hard to reach populations who are less able to access services and are the hardest hit when it comes to becoming ill from malaria. To help us understand more, we have co-host, Dr. Hellen Barsosio, who is a medical Kenyan doctor who has been investigating risk factors, tools, and interventions to prevent adverse birth outcomes, and more recently research on preventing malaria in pregnancy. She is in her final year of her PhD at the Liverpool School of Tropical Medicine under the Department of Clinical Science, where her PhD focuses on new drugs to prevent malaria in pregnancy.

The WHO also calls for stepping up innovation for new vector control approaches, so we have two guests with us today to help us to understand what those are.

We will be speaking to reader and Wolfson Fellow, Dr. Grant Hughes, and reader, Dr. Tony Nolan from the Vector Biology and Tropical Disease Biology Department at the Liverpool School of Tropical Medicine. Tony has led the development of genetic tools to better understand the biology of mosquitoes that transmit malaria, and this has led to the development of genetic approaches to control mosquito populations. This is to decrease the amount of malaria transmission. Tony is also using some of these tools to understand how insecticides work, and in particular, how mosquitoes can evolve resistance to insecticides.

Grant is currently focusing on novel control strategies for arboviruses and malaria, and his overarching goal is to develop approaches which will either reduce mosquito numbers, or stop these mosquitoes transmitting the pathogens that make people ill.

This episode features:

Dr Hellen Barsosio - Clinical Research Scientist and section Head Maternal and New-born Health Studies, Malaria Program, KEMRI-CGHR

Over the past 11 years, Hellen has been investigating risk factors, tools and interventions to prevent adverse birth outcomes, and more recently research on preventing malaria in pregnancy as one of the causes of adverse birth outcomes in malaria endemic areas. She trained in Kenya as a medical doctor, and did her post-graduate studies at the London School of Hygiene and Tropical Medicine and University of Oxford. She is in the final year of her PhD at Liverpool School of Tropical Medicine under the department of Clinical Science where her PhD work focuses on new drugs to prevent malaria in pregnancy.

Dr Tony Nolan - Reader in Insect Genetics and Research Group Leader, Liverpool School of Tropical Medicine

Tony has led the development of genetic tools to better understand the biology of mosquitoes that transmit malaria. This has led to the development of genetic approaches to control mosquito populations, in order to decrease the amount of malaria transmission. Tony is also using some of these genetic tools to understand how insecticides work and, in particular, how mosquitoes can evolve resistance to insecticides.

Dr Grant Hughes - Reader and Royal Society Wolfson Fellow, Liverpool School of Tropical Medicine

Grant has been investigating the use of microbes to control mosquito-borne diseases for over 15 years. After undertaking a PhD at the University of Queensland in Australia looking at microbial control of crop pests, Grant moved to the US to complete a post-doctoral fellowship at Johns Hopkins Bloomberg School of Public Health to examine how a bacteria called Wolbachia infected mosquitoes and interacted with Plasmodium parasites, the parasites that cause Malaria. After further work at Penn State University, working on the same project, Grant moved to the University of Texas Medical Branch in Galveston where his research shifted focus to examine microbes, mosquitoes, and arboviruses. Since moving to the Liverpool School of Tropical Medicine research has focused on novel control strategies for arboviruses and malaria, with the overarching goal to develop approaches which will either reduce mosquito number or stop these mosquitoes transmitting the pathogens that make people sick.

Relevant links:

BBC article ‘UK scientists say they have reached a milestone in the fight against malaria by creating a genetically modified mosquito that is infertile’ https://www.bbc.co.uk/news/health-35024794

Want to hear more podcasts like this?

Follow Connecting Citizens to Science on your usual podcast platform or YouTube to hear more about the methods and approaches that researchers apply to connect with communities and co-produce solutions to global health challenges.

The podcast covers wide ranging topics such as NTD’s, NCD’s, antenatal and postnatal care, mental wellbeing and climate change, all linked to community engagement and power dynamics.    

Twitter: @podcast_CCS

If you would like your own project or programme to feature in an episode, get in touch with producers of Connecting Citizens to Science, the SCL Agency.   

In this episode we are celebrating World TB Day, this year’s campaign is ‘YES! We Can End TB’ and is all about solidarity and collective action. It centres on the increased engagement of those affected by TB, communities and civil society that are leading the movement towards ending this disease.

This episode features the LIGHT consortium which aims to provide new evidence on the effectiveness of different gender-sensitive pathways and approaches to health for those with TB in urban, HIV-prevalent settings across Uganda, Nigeria, Malawi and Kenya. Our co-host Samara Barnes, who has lived experience of TB in the UK, speaks with researchers Toyosi Adekeye in Nigeria and Jasper Nidoi in Uganda from the LIGHT consortium about the ways they are enaging with affected communities in their work. Samara also shares her experience from the UK and the conversation reflects on the differences of TB across contexts.

This episode features:

Samara Barnes Affected Community Co-Lead at the UK Academics and Professionals to End TB (UKAPTB)

Samara is an Affected Community Co-Lead at the UK Academics and Professionals to End TB (UKAPTB). She was diagnosed with active pulmonary TB in late 2015 and it was discovered she was also drug resistant as her treatment went on.

Until that point, Samara knew little about the illness apart from the fact that her Grandad had died of TB many years previously. Samara has raised money for TB Alert and has been part of their peer supporter programme too. She has also studied and written papers on the Global disparities in TB treatment. It is important for Samara to raise awareness of this illness, be an advocate for reducing the stigma surrounding it and to encourage decision makers in the UK to ensure they keep to their commitment of a year on year reduction of TB and contribute to the WHO's commitment to eliminate TB by 2035. Samara works for a national children's charity and is also a borough and county councilor.

Dr Jasper Nidoi - Early Career Researcher, Liverpool School of Tropical Medicine, U.K and Makerere University Lung Institute, Uganda.

Jasper Nidoi is a Ugandan medical doctor with specialist training in health economics and health systems and policy research from Karolinska Institutet, Sweden. For over 5 years, she has been involved in the design and implementation of clinical trials that have evaluated drugs for the prevention and treatment of infectious diseases in Uganda. She is a health economist on a clinical trial that is evaluating the effectiveness and cost-effectiveness of standardized medication for MDR-TB. She was a co-investigator in a study that evaluated the impact of socio-economic factors on tuberculosis treatment outcomes in one of the poorest regions in Uganda.

Her research interests are in the socio-economic determinants of health as they pertain to tuberculosis and the use of decision-analytic models to systematically synthesise data for the economic evaluation of healthcare interventions to guide policy that maximises resource allocation in the presence of uncertainty.

Dr Jasper Nidoi joins the LIGHT Consortium as a researcher where she will contribute to generating evidence on gender-sensitive pathways and approaches for TB to increase the proportion of men in urban areas with TB who successfully complete screening and initiate treatment.

Dr Toyosi Adekeye - Senior Lecturer Department of Community Medicine and primary Healthcare Bingham University and Research Uptake Manager, LIGHT Consortium Zankli Research Centre (ZRC) Nigeria

Dr. Adekeye is a Medical Doctor and Public Health expert who serves as a senior lecturer in the Department of Community Medicine and Primary Healthcare and the LIGHT consortium Research Uptake Manager, at the Zankli Research Centre (ZRC), Bingham University, New Karu, Nasarawa State where he manages and coordinates all research activities and inputs across the LIGHT consortium in Nigeria. He leads a team that strives to generate new evidence on options and approaches to maximize male access to healthcare services for TB in urban, HIV-prevalent settings. The evidence generated will inform better gender-sensitive and pro-poor policies that will enable better access to TB care.

Want to hear more podcasts like this?

Follow Connecting Citizens to Science on your usual podcast platform or YouTube to hear more about the methods and approaches that researchers apply to connect with communities and co-produce solutions to global health challenges.

The podcast covers wide ranging topics such as NTD’s, NCD’s, antenatal and postnatal care, mental wellbeing and climate change, all linked to community engagement and power dynamics.   

If you would like your own project or programme to feature in an episode, get in touch with producers of Connecting Citizens to Science, the SCL Agency.  

In this episode we are celebrating International Women’s Day (IWD). This year’s theme is #EmbraceEquity and aims to get the world talking about why "equal opportunities are no longer enough" - and can in fact be exclusionary, rather than inclusive.

We will be discussing the differences between the terms equity and equality and why is it important to understand, acknowledge and value this.

Definitions of these terms are provided by IWD campaign, they highlight the differences.

• Equality means each individual or group of people is given the same resources or opportunities.

• Equity recognises that each person has different circumstances, and allocates the exact resources and opportunities needed to reach an equal outcome.

To explore what this means in reality, we have two guests who will speak about the work they are doing to promote equity. They unearth differences as well as similarities across their respective contexts, but draw the same conclusions,

“... it's a process. It takes time. You do get some gains and you should celebrate those. So don't feel frustrated and its small steps and nudging and knowing who to reach out to. Most importantly, listening to the voice of the community and those that we want to work with, that's the most critical part”.

About our guests:

Dr Lilian Otiso - Executive Director, LVCT Health

Dr. Lilian Otiso is the Executive Director of LVCT Health, a large Kenyan NGO that carries out programs on HIV, sexual & reproductive health, gender-based violence, mental health and community health reaching over 1 million individuals annually.

She is a medical doctor with an MBA in Health Care Management currently pursuing a PhD in Global Health at the Liverpool School of Tropical Medicine. Her PhD topic is on accountability for universal health coverage among pregnant adolescents/teenage mothers. Lilian has over 15 years’ clinical, programming and research experience in government and NGO sectors at senior management level. She has been a Principle Investigator and co-investigator of several research studies. She is passionate about the community and has conducted several studies and projects on community health. She has contributed to Kenyan and global WHO guidelines and policies and published several documents and peer reviewed articles. She is the winner of the Trocaire Oscar Romero Award 2021 for protecting vulnerable communities during COVID 19.

Dr. Renu Khosla - Director, Centre for Urban and Regional Excellence (CURE)

Dr. Kholsa is the Director of the Centre for Urban and Regional Excellence (CURE). Her core values are designed to include, level-up and connect urban low-income communities. She seeks to unthink and reimagine slum development; nudging a change from top-down to bottom-up and state to people-led development. Her work is aimed at strengthening local government capacity for: participative planning, information visualization and analytics using spatial and social media technologies, localizing and de-engineering solutions and strategies and simplifying institutions. Her work has led to deepening of the policy discourse on urban poor and access to services.

Want to hear more podcasts like this?

Follow Connecting Citizens to Science on your usual podcast platform or YouTube to hear more about the methods and approaches that researchers apply to connect with communities and co-produce solutions to global health challenges.

The podcast covers wide ranging topics such as NTD’s, NCD’s, antenatal and postnatal care, mental wellbeing and climate change, all linked to community engagement and power dynamics.   

If you would like your own project or programme to feature in an episode, get in touch with producers of Connecting Citizens to Science, the SCL Agency.  

In this episode we celebrate International Women’s Day by revealing the hidden gender inequities that lead to gender-based violence and more importantly what can be done to instigate change.

It is the first of two episodes celebrating International Women’s Day and features a Kenyan community based participatory research project by Beate Ringwald (PhD student) from the Liverpool School of Tropical Medicine who worked in partnership with LVCT Health (including our guests) and 11 community co-researchers from Gitathuru village in Korogocho. The study aimed to strengthen community capacity to prevent intimate partner violence and HIV.

Veronica Mwania and Maria Muthoki take us through a participatory research journey, discussing the ways that they engaged co-researchers whilst considering and addressing power structures of inequity. They talk about how knowledge was generated through creativity, dialogue and awareness raising which was embedded and transferred to communities through drama, word of mouth and art.

More about our guests:

Maria Muthoki – Researcher, Kemri, LVCT, Infinite Insight (among others)

Maria Muthoki is a freelance researcher based in Nairobi, Kenya and has 14 of years of professional research experience. She has done both social and market research, involving mainly qualitative and sometimes quantitative methods. Maria Muthoki worked with LVCT Health, as part of the Accountability for Informal Urban Equity Hub (ARISE), to support this community-based participatory PhD study on the intersections of HIV and intimate partner violence in an informal settlement in Nairobi. She worked with a diverse group of community co-researchers from an informal settlement. While her main role was documentation and management of data, she also supported co-researchers to analyse data and disseminate findings. Maria loves talking to people and understanding their viewpoint on the studies that she conducts.

Veronicah Mwania - Independent Researcher, Kenya Medical Research Institute (KEMRI)

Veronica Mwania has a background in applied psychology and has been an independent researcher for 17 years in Kenya. She has worked for LVCT Health on various research studies, including the participatory study that we will be hearing about in this episode. She is currently working with the Kenya Medical Research Institute on a study involving mental health screening for adolescents who are living with HIV.

Veronica’s work in this project blended intersectionality and participatory research approaches working with a diverse group of community co-researchers who were equal partners in the research process. Intersectionality links theory and action – the formation of theory through practice by marginalised groups and the use of knowledge to challenge inequalities in everyday life. By applying a participatory health research approach, the team sought to mitigate the risk of their research being a closed space, reproducing unequal power structures, and being irrelevant. In line with participatory and intersectionality research guidelines, they paid attention to power, time, space, and diversity of knowledge; and promoted reflexivity, equity, and opportunities for collective action.

Useful links:

• A research journey that brought power theories to life: Lessons from Korogocho, Kenya | ARISE [Blog]

• The effects of the COVID-19 pandemic on community-based participatory research: Reflections from a study in an informal settlement in Nairobi, Kenya | ARISE

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Follow Connecting Citizens to Science on your usual podcast platform or YouTube to hear more about the methods and approaches that researchers apply to connect with communities and co-produce solutions to global health challenges.

The podcast covers wide ranging topics such as NTD’s, NCD’s, antenatal and postnatal care, mental wellbeing and climate change, all linked to community engagement and power dynamics.   

If you would like your own project or programme to feature in an episode, get in touch with producers of Connecting Citizens to Science, the SCL Agency.  

We have a really important episode for you as we approach World Neglected Tropical Disease (NTD) day on 30th January calling for all to act together and act now.

We are going to be talking about female genital schistosomiasis, which affects approximately 56 million girls and women in sub-Saharan Africa. Host, Kim Ozano is joined by co-host Pamela Mbabazi from the United Nations with guests; Rhoda Ndubani, who is a study manager for a female sexual reproductive health screening programme for FGS in Zambia, Christine Masong, who is a PhD student with Liverpool School of Tropical Medicine undertaking research in Cameroon, exploring how culture and the social structures affect illness experiences and treatment pathways of girls and women with FGS, and finally, Dr. Victoria Gamba, who is a gynaecologist and advocate for FGS awareness based in Kenya.

If you would like to understand more about FGS, here's some resources for you:

A call to action for universal health coverage: Why we need to address gender inequities in the neglected tropical diseases community

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7067373/

Discussion paper the gender dimensions of neglected tropical diseases from the Access and Delivery Partnership in partnership with LSTM

https://adphealth.org/upload/resource/2523_ADP_Discussion_Paper_NTDs_211119_web.pdf

Useful factsheets on FGS:

Japanese: https://adphealth.org/upload/resource/2523_ADP_Discussion_Paper_NTDs_211119_web.pdf

English: https://adphealth.org/upload/resource/2658_ADP_NTDs_and_Gender_factsheet_280120.pdf

More about our guests;

Dr. Pamela Sabina Mbabazi - Department of Control of Neglected Tropical Diseases (NTDs), WHO headquarters in Geneva

Presently, Pamela is working as a medical epidemiologist in the Department of Control of Neglected Tropical Diseases (NTDs), at the WHO headquarters in Geneva, Switzerland. Her current research interests include strengthening monitoring and evaluation for neglected tropical diseases programmes particularly in vulnerable populations with a focus on women and children, notably for female genital schistosomiasis (FGS).

She has authored several publications in peer reviewed journals, mainly related to methodologies for tracking public health gains for neglected tropical diseases and the effects of co-morbidities.

Dr. Victoria Gamba - Obstetrician and Gynaecologist, Private Practice/Ministry of Health Kenya/University of Nairobi

Passionate about participatory efforts to reduce and eliminate vaccine preventable illnesses and an advocate of gender equality and promoting sexual and reproductive health rights of women and girls, Victoria is a resident obstetrician and gynaecologist at a private health group and a part time consultant with the Ministry of Health Department of Vector-borne and neglected tropical diseases in collaboration with LVCT-health Kenya.

Rhoda Ndubani -Study Manager, Zambart 

Rhoda is the study manager at Zambart on a study called ‘Zipime Weka Schista’, a longitudinal Cohort Study focusing on Integrating Female Sexual Reproductive Health Screening in Zambia focused on one-stop self-sampling for schistosomiasis and other genital infections. The aim of the study is to develop a holistic approach for the community-based diagnosis of female genital schistosomiasis (FGS) through a comprehensive package for sexual and reproductive health screening including human papillomavirus (HPV), sexually transmitted infections (STIs), HIV and Schistosomiasis across endemicity settings (from high to low transmission) in Zambia. The duration of the study is from 2021 to 2025. And they aim to recruit 2500 women in the cohort.

The women are screened for FGS and HPV using self-sampling in the household and at the health facility. The women are provided with information and instructions on how to do the self-sampling. The study is observing high acceptability so far. The next stage of the study is to run validation of the self-samples taken at home and the ones collected in the health facility. 

Makia Christine Masong (Msc) - PhD student, Catholic University of Central Africa; MTN-OCEAC fellow

Christine is a social scientist from Cameroon, where, with the immense support from the KfW  MTN/OCEAC PhD scholarship for researchers from Central Africa sub-region is conducting research on neglected tropical diseases. She is currently completing her thesis in medical anthropology on the social representations of  FGS including the sexual and reproductive health, mental and socio-economic impacts on the lives of young girls and women in Cameroon. Christine works with community members and fore-line health workers at the primary health care level to understand the existing cultural and social dynamics which encourage the continued incidences of this gynaecological condition, and also how the response towards its management is organised within these same communities and within the formal health system.  

Relevant links:

WHO road map for NTDs: https://www.who.int/publications/i/item/9789240010352

ipime Weka Schista! (Do self-testing sister!): https://www.lshtm.ac.uk/research/centres-projects-groups/zipime-weka-schista

https://journals.plos.org/globalpublichealth/article/file?id=10.1371/journal.pgph.0000007&type=printab

le https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7463188/

https://www.eliminateschisto.org/blog/gsa-celebrates-international-womens-day

Want to hear more podcasts like this?

Follow Connecting Citizens to Science on your usual podcast platform or YouTube to hear more about the methods and approaches that researchers apply to connect with communities and co-produce solutions to global health challenges.

The podcast covers wide ranging topics such as NTD’s, NCD’s, antenatal and postnatal care, mental wellbeing and climate change, all linked to community engagement and power dynamics.    

If you would like your own project or programme to feature in an episode, get in touch with producers of Connecting Citizens to Science, the SCL Agency.